low cortisol levels, anyone?

Discussion in 'Fibromyalgia Main Forum' started by rockinrobin, Dec 29, 2005.

  1. rockinrobin

    rockinrobin New Member

    Hey everybody, have any of you been diagnosed w/ a low cortisol level, & if so, what has been your treatment? I have had several blood tests, all low, but they want to wait a month & retest w/ a fasting am test. Any kind of symptoms you have w/ this? I just notice I feel very tired lately, but I always do w/ the fibro anyway, so I don't know if it might be due to the low cortisol levels or not. Thanks for any input! rockin robin
  2. alaska3355

    alaska3355 New Member

    which is hydrocortisone for his weak adrenals. I think he's had more energy since he started last week. He's taking 2 10mg. pills a day, which is considered a low dose mimicing your body's natural production. Hope this helps.
  3. sdown

    sdown New Member

    Hi, I was diagnosed with adrenal gland exhaustion also known as Addison's disease by a doc in Kansas City, Missouri. Im from Canada and no one helped me here. If I remember correctly I think the doc did a spit test. Then she showed me the graph as to when my adrenals where performing at their best and their worst. So mine are terrible in the morning. I usually sleep all morning or I get up at 0700 and go back to bed at 0830 till 1130 am. I am taking 25 mg a day of cortef and 25 mg a day of DHEA. The downside for me is Im prone to infections like sinus, ear, etc. I believe it says that on the cautions from the pharmacy that when you are on steroids you are more prone to infections. On the positive side I definitely have more energy and can handle stress alot better than I used to. If only I didnt get infections the results would be truly amazing. Im dehydrated all the time. I eat lots of soups high in sodium and use sea salt on everything. I avoid coffee and sugar. In cases of severe dehydration I drink pedialyte from the pharmacy. The doc said there is no such thing as using too much salt when you have adrenal problems. He said your body gets rid of what you dont need. If your interested in my doc's website look up Dr. Carol Ann Ryser in Kansas City. She was most helpful and knows alot about adrenals and CFS & FM. Good luck!
  4. Fudge43

    Fudge43 New Member

    I have low cortisol levels .. saw an endocrinologist that stumbled on it .. had insulin tolerance testing which was wacky .. but I have had NO treatment .. I'm glad it is NOT Addison's .. that is one tough problem to have .. steroids are used in treatment but that can blow you up fast .. meaning gaining weight .. something I do NOT need ..
    But I'm annoyed that there is no real help for this part .. I'm left on my own to try out supplements etc ..
    The fibro, Hashimoto's, MVP would be enough you would think ? LOL ..
    I'll watch this thread for any suggestions .. and I'm sorry to see another Candian had to go south for HELP ...
    Fudge : )
  5. Jen102

    Jen102 New Member

    is a very good doc. What other things are you doing?

    I am taking 20 mg of hydrocortisone (cortef) broken down into 4 dosages 8:30-2:30. It helps. I also take glandulars and they include herbs (licorice) and vitamins, including b vitamins. These things helped and kept me going. I crashed before I was allowed to take the next dosage. I couldn't get out of bed without them. Now I am taking glutathione IV's and I don't crash as much and am not as dependent on the adrenal meds. Blessings to all of you. Jen102
  6. alaska3355

    alaska3355 New Member

    pantothenic acid (500 mg.) and vitamin C (at least 1000 mg daily) as supports to the Cortef. Since my son has lost 25 lbs. over the last year, a few extra won't hurt him!
  7. sdown

    sdown New Member

    Yes, I have a wonderful doctor. Too bad she is in Kansas City, Missouri and Im in Alberta, Canada. I usually make phone appointments with her every 6 months or whenever I need her. In the past she has worked closely with my doc in Canada. To start back 4 years ago she said I had bad mercury poisoning which started all my problems. I had my mercury fillings removed and underwent DMPS (a type of chelation treatment) to remove the mercury. That helped alot with the brain fog. Then she told me I had the HHV6 virus which by the way I read an article about it on this website recently. She put me on biaxin for 18 months to make the virus dormant. Most doctors believe that you cannot make a virus dormant but she has alot of experience with infectious diseases and believes you can. Then I went on heparin (blood thinners) for 18 months for poor circulation. She tested my sed rate which was bad. Dr. Ryser told me over 90% of her CFS and FM patients go on blood thinners because they have very poor circulation. Then she told me I was anemic so I take B12 sublingual drops under the tongue. I used to do the shots but she said the drops are just as good and of course no pain. The supplements she has recommended are PADMA (great for circulation and energy-you can find it by doing a search on internet-its a Tibetan formula), IQ Maximizer (from Novus Optimum Inc. in San Francisco)which has gingko biloba and other stuff in it - very good for energy, SAMe available on this site and is amazing for relief of pain, mood stabilizer and overall makes you calm, transfer factor available thru 4Life in the US. The IQ Maximizer also known as the Smart Pill helps with brain fog, cortisol balance, regularity, depression, etc. I take 15 mg of cortef in the am, 5 mg at lunch and 5 mg at dinnertime.
  8. Jen102

    Jen102 New Member

    I am going to read it again and look up the suupplements you are taking. Have you improved alot on these aggressive treatments? I am seeing a very good doc in MN. I am quite ill and have had the best help from glutathione iv's. I take 2000 mg three times per week. I too have infections and possible lymes. my doc thinks i am too sick to do iv antibiotics. i am not sure aabout them anyway as it seems that people have difficult time getting better. since i continue to make baby steps forward with the glutathione (google glutathione and wellness pharmacy for lots of articles) i am just continuing it for now (along with treating sleep, pain, nutrition, and many other things). Blesings to you. jen102
  9. sdown

    sdown New Member

    Hi Jen, Glutathione saved my life recently. I had reoccuring sinus infections this year for 10 months. I was finally informed that I had nasal polyps. I was given all kinds of meds and nothing worked I thought I was doomed and going to die. I went to emergency as I was severely dehydrated and went into convulsions for 10 days because of this infection. Doc told me the worse place to get an infection is in the sinuses because the meds have a really hard time reaching them. I had never heard of nasal polyps or I would have pushed to see a specialist sooner. I just went to a walkin clinic when I had my first sinus infection thinking this is easy for them to detect. When the sinus infection was not getting better month after month I just assumed it was due to a weakened immune system. I will never wait that long again to see a specialist. Anyways I was prescribed a glutathione nasal spray which I have been taking for 2 months. I got rid of the nasal polyps. Usually people need surgery to get them removed. So I was really lucky. The supplements definitely help me alot. Everything my US doc recommended has been a God sent. After 2 years on her treatment I was able to go back to work part-time for 19 months. Of course, this year was bad because of the sinus infections but I hope to be able to find something part-time next year. Im kicking myself now though for waiting so long to get the sinus thing resolved but I had too much faith in that stupid walk-in clinic. I have a good doc in Calgary but he charges extra at his private clinic. I was trying to save money by going to one of these useless walk-in clinics.
  10. rockinrobin

    rockinrobin New Member

    I too have hashimotos, MVP. I had a partial thyroid removal for a nodule, which was benign. I do not take thyroid supplement. Doctor says he doesn't think I need them yet since blood levels are ok. I don't know if that is why I'm tired all the time, or the cortisol levels. I also don't want to take cortisone since I cannot lose the weight I've gained the past couple of years. I too sleep alot. I will get up aound 8 am, & end up falling back asleep till 11:30 am, unless I have to get around to run errands, or shop. I stay up late though, because if I do try to go to bed a reasonable hour, I cannot sleep. I do not sleep well anyway, even taking meds for it. The fibro is "good" ? about that! Thank you for answering me back. I'm not too far from Kansas city either, about 6 hrs. If I don't get any answers w/ my regular doc, I might try her.Thanks again everyone! God bless :)