Lumbar epidural injections anyone???

Discussion in 'Fibromyalgia Main Forum' started by benalliesmom, Jun 14, 2006.

  1. benalliesmom

    benalliesmom New Member

    I just had this procedure done Tuesday to help with my back problems and am still pretty sore. The doc said it might help a little with the fibro, too, but I think I'm hitting bottom instead of helping that way. My pain in my back that I've had for 11 years seems to be better, but the pain from the procedure itself is starting to really hurt! Can't win for losing!! LOL!

    I just wandered if anyone has had these steroid injections and if they really help with anything?? Also, how long did the shot last for you?? Doc says it's all personnal, but I really want to know like every week, month, whatever that I might need these shots.

    On the up shot, the meds they give you to put you out helped me to sleep for 18 hours straight! Don't feel tired now, because I've been asleep all day and last night! LOL

    Peace & Love,
    Vicki
  2. gladone

    gladone New Member

    Hi Vicki,

    I have had alot of epi's over the course of the last five years. I too have very bad back pain.

    My own personal experience was that my first one did not work. My second did but only lasted a short time (2-3 wks).

    The problem is that you can only have so many in a certain period of time. I think it is one every two months or so.

    My longest period of relief was for about 1 1/2 months. In the end, I elected to stop having them.

    I felt I did not get enough relief for a long enough period of time to have it worth my while.

    As for the pain you are having at the injection site. Keep icing the area, take a anti-inflamitory and take it easy. It can take several days for the local pain to go away. If the area bleeds, swells, or feels warm to the touch call your doctor ASAP.

    Try to remember we are all different so your experience will be unique. I wish you the best of luck and hope it last a good long time.

    Gentle Hugs,
    Galdone


  3. Greenbean7

    Greenbean7 New Member

    I had them in March/April. One every two weeks until I had had three.

    The doc that gave me the first one said there is only a 50/50 chance that they will help. They didn't.

    I wasn't put out for them, just had to have someone to drive me home. Made me hurt worse for the first two days and then couldn't even tell I had them.

    I guess I shouldn't say they didn't work at all because I think they actually did decrease the horrible shooting leg pains at night. They aren't gone, but they are better.

    I won't have it done again. Too expensive and not enough benefits.

    Hugzz
    Greenbean
  4. ksp56

    ksp56 Member

    I have had two. One in my cervical spine. It did nothing to help my neck. My neck was tender for only a few days.

    One and a half weeks ago, I had a spinal epidural. My back and neck are in really bad shape. They gave me a 'twilight' sedative so I could respond. I felt it a little bit. Back was sore, and got worse before it got better. Typical.

    That was a Tuesday. Late Friday evening, I almost fell due to a sudden onset of dizziness. Walking was hardly possible. Tremendous headache. Could not tolerate any type of light. Sick to my stomach, twice. I got in my recliner and stayed, until Monday.

    DH called doctor who thought it was probably spinal fluid leaking. It needed a blood patch. Never heard of one. This is how they fix the area that was probably 'nicked'. I saw the doctor the next day, and had another epidural to replace my own blood.

    It acts like a 'blood clot' Similar to when wisdom teeth are taken out and you don't want the clot to move. I had to lay in a prone position for several days. It has taken awhile for most of the dizziness and headache to go away.

    I would have another one, if I thought it would work. My back is already hurting again, and I'm not sure if I'll try another or move on to possible surgery.

    It works wonders for many people, and does nothing for others. It is your call. There is only a 1% chance of having what I described. Hopefully, they will tell you what to look for, should there be a problem.

    Believe it or not, I am not one of those who scare pregnant mommies with the worse case scenerio! LOL

    Take care Vicki. I hope you find some relief!

    Hugs,

    Kim



  5. JLH

    JLH New Member

    I have had them, too. I have very severe back pain due to multiple back problems. I also have a pinched nerve in my low back that causes me horrific pain.

    I had the injections before I got the pinched nerve though.

    They did not help me at all.

    I had no pain from the injections themselves. They did not give me any meds to put me out either! They just did a little local numbing around the shot site. I walked out of the hospital wide awake and never slept at all when I got home.

    Each injection cost about $1500.00

    Won't get any more -- not worth it.


    Hugs,
    Janet
  6. kirschbaum26

    kirschbaum26 New Member

    Dear Vicki:

    I have had more than I care to remember...but more than 50 over about a 2 year period. I remember having one every Friday for some time...they were not in the same place, as I had 3 ruptured discs and some bone spurs and other lower back problems. I did not have any sedation...and I remember them putting ice on it for at LEAST an hour. That seemed to really alleviate most of the injection site soreness. They helped to some extent, and sometimes lasted months.

    Since then, I have found out that this was not an approved practice. When I had to have arthoscopic surgery on my knee, I wanted to remain awake, as I have asthma and always have trouble with sedation. They asked me how many epidurals I had received...when I said 50 or more, the Anesthesiologist said he would not put another needle into my back for all the money in the world. I also told him that I had also had some injections with floroscopy (when that was new) and also had to have 2 nerves in my groin frozen. I still have the shooting pains down my leg, but I do not have the contstant burning that I had prior to the freezing of the nerves.

    It just depends on your doctor, and who actually does the injection. If he/she is not an anesthesiologist or a pain specialist, I would be very leary and probably not have them done by any doctor.

    I have also had the spinal headache from a myleogram that I had to have. Worst pain of my life. Could not even THINK about opening my eyes for 3 weeks. Had to go to a different ER, and they started treating me for meningitis before they could figure it all out. Spinal tap for nothing. The blood patch is a new development, and it apparently works most of the time.

    Good luck, and if you are still sore, use ICE, and take some over the counter anti-inflammatory.

    Ingrid
  7. benalliesmom

    benalliesmom New Member

    Very, very much. I am doing better now. My doc is a pain specialist and by the sound of some of your letters, knows what he's doing! I would not have gone through with it if he had not given me the "happy juice"! Don't people know that we are in pain already, why put someone through that procedure without help of meds?!? I feel for all of you that told me they didn't get pain meds for the injections. I am up moving around now, but am still tender around injection site. The original pain seems to be lessened, so I guess we'll see how long it'll last!
    Again, thanks to all who responded. I really appreciate you taking the time and telling me your stories and advise.

    Peace & Love
    Vicki
  8. kbehy

    kbehy New Member

    I had all the injections done when I was first told about my fm, They did not work. My husband and I fought about letting them do the shots, he was against it, I was for anything that got me out of pain. The only thing I did get, was no feeling, till this day in my feet, I do get intense burning and itching in them, I used to ticklesh not any more, nor do I know when i cut them and its been a yr later.
  9. rachel432

    rachel432 New Member

    i have never had them done myself, but i'm a nurse and i have assisted that procedure quite often and treated a lot of patients who get hose done regularly. i will say that honestly they don't work for everyone and that is really the only downside to them. however, there are a large majority of the patients that swear by them as almost a cure and get them done regularly, so for the patients they work ell for they work exceptionally well. since the procedure is minimally invasive with so few risks if your doctor even thinks they may work for you it's worht giving the treatment a fair shot.
    i hope this helps.
    rachel
  10. rockgor

    rockgor Well-Known Member

    who had epidurals. Both said the procedure was helpful, but wore off after some time.

    However, I've read lots of medical reports on this topic and as indicated above, some people got good results and some didn't.
  11. I have had several. They only helped for a short time . Usually a month or two. The relief was welcomed but short lived. It is worth trying.