Lupus And Rheumatoid Arthritis Patients, Please Write Me!

Discussion in 'General Health & Wellness' started by Dajotay, Aug 17, 2003.

  1. Dajotay

    Dajotay New Member

    I have Systemic Lupus, Arthritis, Chronic Fatigue and Clincial Depression.

    I would like to correspond with others in similar circumstances.

    My email address is:
  2. frieda57

    frieda57 New Member

    Hey, just got on these boards...I have lupus/RA/Fibromyalgia...just recovering from a flare, and dealing with really bad fibro/fatigue symptoms. Here I am! Write me!
  3. 1952

    1952 New Member

    myname is gail the best place for you to go is the lupus boardds there are alot of people there and me that can help talk to you or if you just want to vent

    gail aja 1952
  4. Hopefulpam

    Hopefulpam New Member

    Hello,
    I,m PAm I ahve SLE ,Dle ,RA, and firbo.
    I Live in Georgia in the Usa .
    You can e-mail me at
  5. Mikie

    Mikie Moderator

    We do not encourage members to post their e-mail addresses in public forums like this. Nor do we encourage our members to answer new members' requests to have our members e-mail them.

    No offense to anyone, but not everyone is who they seem to be online. Members have received spam sales pitches, porn, and even viruses.

    Please be very careful. Your e-mail address is a door into your computer. The most dangerous time for your computer to be hacked is when it is off. Always pull the power to you modem or disconnect the phone line or cable when the computer is off. Few people realize this.

    Love, Mikie
  6. tdiana

    tdiana New Member

    I would enjoy hearing from you. I also have lupus, ra, op, and fibro. I hope to hear from you.
  7. KyLady

    KyLady New Member

    Hi diana,

    What is op? I can figure most out but this one has me stumped. It probably is something simple if I took time to think about it. Help me out.
  8. EL

    EL New Member

    HI CALL ME EL I HAVE FIBRO I WAS FEELING PRETTY GOOD UNTILL I FELL THE OTHER DAY AND AND IT FLARED THINGS UP. BUT YOU KNOW JUST KEEP LOOKING UP TO GOD AND MAYBE CHANGE SOME MEDS AND THINGS WILL EVANTUALLY START GETTING SOMEWHAT BETTER I DID.
  9. EL

    EL New Member

    I HAVE FIBO HERE WRITE IF YOU WANT MY HUSBAND SOES NOT UNDERSTAND IT
  10. dononagin

    dononagin New Member

    There is a special board for lupus and CFS/fibro. Check them out! Great folks here to help! Click on message boards at the top of this page and it will take you there.
    Dona
  11. fmscfids

    fmscfids New Member

    You might want to consider subscribing to an online support group. I belong to two for FM. They are free to subscribe to and are similar to a chat board but far more active and you can list your email addy as well as post to the entire group or to just one person, whatever. I don't know of any for Lupus and RA specifically, but you might want to do a web search for one or two or post the request to this message board as someone who does know might see it and know of one.

    Robin
  12. tpiper

    tpiper New Member

    wow it sure is different hearing that someone else has all three. Its hart living with all three and what message board are you suppose to use if you have them all? I see people telling us go to the lupus board but I also have fibo and op come on I too need to talk with others where do I go.
  13. Dajotay

    Dajotay New Member

    Hello Everyone!

    Kylady, I'm assuming that op would stand for osteoperosis. I could be wrong though.

    I am so late getting back to this thread. I see some nice people have left messages ages ago. I really appreciate eveveryone who took the time to reply.

    Unfortunately, I could not email the ones who posted their enail addys, as they have been deleted. Sorry.

    To the moderator: I apologize my oversight in requesting others to write me. I totally understand what your post here is trying to convey. Very reasonable. And thank you.

    I have been ill for a while...lupus flare, which is why I've not been back here to the site. I hope everyone is feeling okay today and I wish you all the best.

  14. magdawolfe

    magdawolfe New Member

    Hello there,

    I am new to this message board, this is my second message. I too have Lupus, Rheumatoid Arthritis, CF/FM, Behcet and Hughes syndrome. This all started around 7/8 years back. I did see many Dr's and went through many kinds of medications, injections until the correct diagnosis was found and the correct treatment given.

    I am willing to share my experience with anyone in need of it. Please let me know since how long you have it, and what are the medications you are taking.

    Fondly
    magdawolfe
  15. trivas

    trivas New Member

    Hey everyone! I have SLE Lupus and R.A.I'm 25yrs old and have been diagnosed since I was 19yrs old. Its a pain! ! I just gave birth 2months ago and now I'm suffering from a flare. I have a very bad butterfly rash, easy bruising, very weak and tired, constantly irritable, and these headaches don't seem to go away. I need to find a new doctor but don't know where to go. I've tried scheduling appointments w/ a rheumatologist but I haven't heard from them & its been 4months!! I'm currently taking prednisone. does anyone have any advice where to search for a doctor; advice on my butterfly rash (it itches so bad!) advice on any herbal vitamins to increase energy/ mental alertness etc?? please respond
  16. FishieFun

    FishieFun New Member

    Hi everyone! I have lupus and feel as if I'm always in a "flare up." I just got out of the hospital and I am having some depression. Please write me :)
  17. tdiana

    tdiana New Member

    Sorry, Osteoporosis,lol
  18. williamtodd

    williamtodd New Member

    Has any tried to get disibility benefits or social security benefits from having lupus? todd in texas