LYME DISEASE -- Symptoms You Won't Believe!!!

Discussion in 'Fibromyalgia Main Forum' started by karatelady52, Nov 29, 2005.

  1. karatelady52

    karatelady52 New Member

    Below is an article from the Canadian Lyme Disease Foundation:

    Lyme (commonly misspelled as Lime or Lymes) Disease symptoms may show up fast, with a bang, or very slowly and innocuously. There may be initial flu-like symptoms with fever, headache, nausea, jaw pain, light sensitivity, red eyes, muscle ache and stiff neck. Many write this off as a flu and because the nymph stage of the tick is so tiny many do not recall a tick bite.

    The classic rash may only occur or have been seen in as few as 30% of cases (many rashes in body hair and indiscrete areas go undetected). Treatment in this early stage is critical.

    If left untreated or treated insufficiently symptoms may creep into ones life over weeks, months or even years. They wax and wane and may even go into remission only to come out at a later date...even years later.

    With symptoms present, a negative lab result means very little as they are very unreliable. The diagnosis, with today's limitations in the lab, must be clinical.

    Many Lyme patients were firstly diagnosed with other illnesses such as Juvenile Arthritis, Rheumatoid Arthritis, Reactive Arthritis, Infectious Arthritis, Osteoarthritis, Fibromyalgia, Raynaud's Syndrome, Chronic Fatigue Syndrome, Interstitial Cystis, Gastroesophageal Reflux Disease, Fifth Disease, Multiple Sclerosis, scleroderma, lupus, early ALS, early Alzheimers Disease, crohn's disease, ménières syndrome, reynaud's syndrome, sjogren's syndrome, irritable bowel syndrome, colitis, prostatitis, psychiatric disorders (bipolar, depression, etc.), encephalitis, sleep disorders, thyroid disease and various other illnesses. see -- Other Presentations and Misdiagnoses

    If you have received one of these diagnoses please scroll down and see if you recognize a broader range of symptoms.

    If you are a doctor please re-examine these diagnoses, incorporating Lyme in the differential diagnoses.

    The one common thread with Lyme Disease is the number of systems affected (brain, central nervous system, autonomic nervous system, cardiovascular, digestive, respiratory, musco-skeletal, etc.) and sometimes the hourly/daily/weekly/monthly changing of symptoms.

    No one will have all symptoms but if many are present serious consideration must be given by any physician to Lyme as the possible culprit. Lyme is endemic in Canada period. The infection rate with Lyme in the tick population is exploding in North America and as the earth's temperature warms this trend is expected to continue.

    Symptoms may come and go in varying degrees with fluctuation from one symptom to another. There may be a period of what feels like remission only to be followed by another onset of symptoms.

    PRINT AND CIRCLE ALL YES ANSWERS ( 20 yes represents a serious potential and Lyme should be included in diagnostic workup)

    Symptoms of Lyme Disease

    The Tick Bite (fewer than 50% recall a tick bite or get/see the rash)
    Rash at site of bite
    Rashes on other parts of your body
    Rash basically circular and spreading out (or generalized)
    Raised rash, disappearing and recurring

    Head, Face, Neck

    Unexplained hair loss
    Headache, mild or severe, Seizures
    Pressure in Head, White Matter Lesions in Head (MRI)
    Twitching of facial or other muscles
    Facial paralysis (Bell's Palsy)
    Tingling of nose, (tip of) tongue, cheek or facial flushing
    Stiff or painful neck
    Jaw pain or stiffness
    Dental problems (unexplained)
    Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


    Double or blurry vision
    Increased floating spots
    Pain in eyes, or swelling around eyes
    Oversensitivity to light
    Flashing lights/Peripheral waves/phantom images in corner of eyes


    Decreased hearing in one or both ears, plugged ears
    Buzzing in ears
    Pain in ears, oversensitivity to sounds
    Ringing in one or both ears

    Digestive and Excretory Systems

    Irritable bladder (trouble starting, stopping) or Interstitial cystitis
    Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)

    Musculoskeletal System

    Bone pain, joint pain or swelling, carpal tunnel syndrome
    Stiffness of joints, back, neck, tennis elbow
    Muscle pain or cramps, (Fibromyalgia)

    Respiratory and Circulatory Systems

    Shortness of breath, can't get full/satisfying breath, cough
    Chest pain or rib soreness
    Night sweats or unexplained chills
    Heart palpitations or extra beats
    Endocarditis, Heart blockage

    Neurologic System

    Tremors or unexplained shaking
    Burning or stabbing sensations in the body
    Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
    Pressure in the head
    Numbness in body, tingling, pinpricks
    Poor balance, dizziness, difficulty walking
    Increased motion sickness
    Lightheadedness, wooziness

    Psychological well-being

    Mood swings, irritability, bi-polar disorder
    Unusual depression
    Disorientation (getting or feeling lost)
    Feeling as if you are losing your mind
    Over-emotional reactions, crying easily
    Too much sleep, or insomnia
    Difficulty falling or staying asleep
    Narcolepsy, sleep apnea
    Panic attacks, anxiety

    Mental Capability

    Memory loss (short or long term)
    Confusion, difficulty in thinking
    Difficulty with concentration or reading
    Going to the wrong place
    Speech difficulty (slurred or slow)
    Stammering speech
    Forgetting how to perform simple tasks

    Reproduction and Sexuality

    Loss of sex drive
    Sexual dysfunction
    Unexplained menstral pain, irregularity
    Unexplained breast pain, discharge
    Testicular or pelvic pain

    General Well-being

    Unexplained weight gain, loss
    Extreme fatigue
    Swollen glands/lymph nodes
    Unexplained fevers (high or low grade)
    Continual infections (sinus, kidney, eye, etc.)
    Symptoms seem to change, come and go
    Pain migrates (moves) to different body parts
    Early on, experienced a "flu-like" illness, after which you
    have not since felt well.
    Low body temperature

    Allergies/Chemical sensitivities

    Increased affect from alcohol and possible worse hangover
    If you are contemplating testing, the Western Blot through a lab called Igenex gives a much more accurate test result. Many use the Elisa and can get a false negative.

    A clinical dignosis is important along with the lab test as the article says. Its also good to find an LLMD (lyme literate MD) as many doctors don't know much about lyme. The Fibromyalgia and Fatigue Centers are also gaining knowledge of this fast growing disease.

  2. busybusymom

    busybusymom New Member

    THANK YOU for all this information. I am going to print it out and be tested for Lyme. Although I have chronic epstein barr titers that are sky-rocketed, I think I need to be tested for this as well, just to rule out.

    I can't believe how many of the symptoms you listed I have. It is almost scary.

  3. karatelady52

    karatelady52 New Member

    I believe the lyme so compromises our immune system that the EBV and other viruses (for me it was 3 viruses) become active.

  4. karatelady52

    karatelady52 New Member

    Thanks for the idea!
  5. Dalphia

    Dalphia New Member

    I too, agree when Lyme if left untreated absolutely plays havoc on our immune systems, hense, becoming so weak it cannot do it's job in patroling and keeping the Lyme Bacteria at bay. When this happens, I believe any other infections/virsus also take hold, then we have a total fisaco ravaging within our least I feel that has what happend to me...............
  6. ulala

    ulala New Member

    that I have. It doens't seem possible to be so sick without something major like Lyme going on.

    I'm waiting to get my test results from the FFC although they called this morning to tell me that my doctor will not be there on Dec.8 when I have my scheduled appt. They offered me to see the nurse practioner for $185.00 instead of the $325.00 for the doctor, but the doctor would "pop his head in to see that I am alright". I am not happy because I already paid $795.00 for my first visit with this doctor and had to borrow money to see him.

    Would you be angry or would you see the nurse practioner?
  7. vacrow

    vacrow New Member

    I think a nurse Practioner is as good as a dr and you are saving money. I went to the FFC in Marietta, GA and my first visit was $800 and I was told my second visit would run about the same. My third visit and thereafter will run $160, but this does not include my injection and supplements. This clinic was my last hope of getting help for my Fibromyalgia, but I cannot afford the supplements. Like you I had to borrow the money. Why isn't there something more reasonable that the average person can afford?
    Any one out there have any input for fatigue, insomnia, depression that some of us can afford?
    [This Message was Edited on 11/30/2005]
  8. justlikemom

    justlikemom New Member

    The CDC has recently stated that a clinical test is not enough, and that we need to test positive (by CDC, not Ingenex standards) on a Western blot.

    I am still having trouble fighting my disability case because so few people understand how Lyme disease works. I was told by a lawyer I should get a rheumatologist to confirm my figromyalgia and just forget about making a case for Lyme disease. They just don't realize that the Lyme causes so many more symptoms than the fibro.

    It's very frustrating.

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