Lyme? I know this is redundant, but...

Discussion in 'Fibromyalgia Main Forum' started by minimonkey, Jan 25, 2006.

  1. minimonkey

    minimonkey New Member

    I'm wondering if I may have Lyme disease. I just read today that Humboldt County (northern CA) has one of the highest concentrations of this -- I lived there for 2 years, and had several ticks during that time -- not to mention the tiny deer ticks I may have missed. I don't remember a rash, but did have "ringworm" a few times -- apparently the Lyme rash can mimic this. As for flu like symptoms -- well, this was about 15 years ago, and I was sick about half the time I was living there -- chalked it up to the constant cold and rain, and the mold that resulted from that. I've had several flu viruses that left me sick for months on end.

    Most of my symptoms started after I lived there --- could this be Lyme???? Yes, I'm going to go get tested (Western Blot -- Igenex lab is an hour from where I live) -- I'm really wondering now. My mom and grandma had some symptoms of FMS too, but they lived in rural Virginia for most of their lives (Appalachia)on a farm, and apparently Lyme can be transmitted from pregnancy.

    FMS, Lyme, MS -- what the heck? I'm so tired of having a mystery illness that has no identifiable cause and no known cure....I've been sick for at least 15 years, and it seems to be getting worse....
  2. hopeful4

    hopeful4 New Member

    Could be! Don't have to have a rash. Sounds like you've been exposed. 15 years is a long time to be sick with a mystery illness!

    I sure hope you find out soon. Just remember, Lyme is a clinical diagnosis. The lab test is just one part of that. A negative lab does not rule out lyme.

    That's why it's so important to be tested by a LLMD (lyme literate medical doctor). Many doctors are clueless about Lyme.

    Check out lymenet.org and ilads.org There's also a California Lyme Disease Assoc.

    Best wishes, take care,
    Hopeful4
  3. hopeful4

    hopeful4 New Member

  4. Cromwell

    Cromwell New Member

    I was just reading a site on Lyme which said that it takes 36 hours for the infected tick to transmit the bacteria. So one should always check for them daily. The site also said that 90% of Lyme is not detected by standard tests as they fail to ID the chronic form which closely resembles FM/CFS and indeed is probably a precursor to FM/CFS. The Western expanded blot test with revised criteria for diagnoses(apparently most docs are using the wrong criteria-they use the surveilance criteria instead which is useless) it improves rate of detection to 90%. There are a number of coinfections transmitted with Lyme sometimes that makes testing both difficult and insensitive that produce false negative results. The IgG test and IgM antibody tests are only good for Acute(just contracted) Lyme, which would be the period when most symptoms were not showing and why would you get tested in that case? Also the bulls eye rash is only present in 60 to 70% of bites, some people just have a cluster of what looks like spider veins or tiny dots and others nothing much.

    To adequately test and treat CHRONIC Lyme docs must understand the standard tests will fail and must have patients undergo more specialised testing and a multi-system integrative treatment approach to achieve success in eliminating the disease from the body.

    This is the NY State site and by the way, we had 10 cases of West Nile and 4,000 cases of Lyme in 2004-go figure why better testing is not more available. The other infections that "go" with Lyme are Bartonella, Babesia. Ehrlichia and others too.

    Hope this helps.
    Love Anne(Crom)
  5. minimonkey

    minimonkey New Member

    Yes, Anne -- that was really helpful. That would all really make so much sense -- now I've got a ton more research ahead of me on Lyme --- don't know why I didn't look into it sooner.