Lymph Nodes Removed

Discussion in 'Fibromyalgia Main Forum' started by CarolynAnne, Aug 7, 2006.

  1. CarolynAnne

    CarolynAnne New Member

    Just curious... Has anyone had there Lymph nodes removed?

    Before I even knew what CFS was, my ENT removed the lymph nodes in my neck (due to swelling and my blood counts) on 3 different occasions. I look back now and wonder if I did the right thing. I felt better for about 6 months then went back to feeling bad again.

    Four years later and a CFS diagnosised by another doctor, I am curious if any of your doctors took this route, before formally giving you the diagnosis of CFS?





  2. PITATOO

    PITATOO Member

    I know you get swelling with CFDIS. I do, armpits, front of neck, base of skull in back of head, groin. But I never heard of removing them except for cancer reasons. Your lymphatic system is part of your immune system. I see a specialist for lymphatic drainage about once a month. It helps after a couple of days. I fell worse the first and second day afterwards. Also exercise if good for getting the lymphatic system flowing. I don't understand what your doc's reasoning behind removing them. Do he/she give you a specific reason besides blood counts, if you white cell count was very high, removing the lymph nodes should not impact that, it would be higher because of an infection, hmm...
  3. 1sweetie

    1sweetie New Member

    Yes. I have had several removed due to breast cancer. I now have swelling in my arm and arm pits. I use massage therapy to help reduce the swelling.
  4. CarolynAnne

    CarolynAnne New Member

    I had my lymph nodes removed prior to having a CFS diagnosis.

    I was so ill, and the only outward sign was the darn lymph nodes in my neck that measured over 3cm each - enough to have them removed surgically under insurance. Thinking that my elevated blood counts were due in part to these nodes - they were removed. My counts got better for a month or so - then I was back to square one.

    I agree it was drastic, but at that point - I would have done anything if there was a chance that I would feel better. I had no idea what CFS was - that is why I think it is so important to educate on this DD.


  5. cczub

    cczub New Member

    Mine have been constantly swollen for the past 16-17 years now. When I was around 12 I came down with mono and colitis as well as some undiagnosed neurological thing.... Ever since then my lymph nodes and spleen have been enlarged. I've had several biopsies and none of them found anything "conclusive"... I take that as not cancer but there's something going on... That's pretty much what the last surgeon said... The ones that are ALWAYS swollen are my neck and groin....
  6. findmind

    findmind New Member

    That does seem drastic, but in a way, I think it was wise, IF they did cancer screening on them. Did they?

    You know, I've read EBV has been thought to POSSIBLY contribute to cancer, so this is why we must be vigilant and make sure we are getting our regular screening exams.

    Now, if drs removed mine every time they were swollen, I'd be a pincushion! But I've also had beginning cancer twice, and early detection possibly saved my life.

    Good question, caroleanne, thanks.

    There's always hope!
    findmind