Lymph Nodes/ Support, Prayers Needed please. UPDATE!

Discussion in 'Fibromyalgia Main Forum' started by Kimba4318, Nov 21, 2006.

  1. Kimba4318

    Kimba4318 New Member

    Hi friends.... I meet with an ENT today at 2:00. The cardiologist said yesterday that he was not happy with my EKG (getting another one next week).

    I have had this big lump behind my ear for 6 weeks now. The cardiologist felt it and said "If that is a lymph node we have some serious problems!" He said it felt like bone...I told him it grew in the past 6 weeks, how could a bone just grow like that this quickly? He told me to see the ENT.

    Last night, like a dummy, I googled hard lymph nodes and everything brought me to cancer sites. "call you doctor if they are over 5 cm" (mine is 1 1/2" round)! Also "call you doctor if they are not soft and if they are a hard mass" (mine is hard as a rock, really does feel like bone). I wished I had not see that. Putting together the EKG thing with the way I am feeling and this "Mass" of "whatever" is scaring me to death.

    I want to have a good thanksgiving and it was this time last year that my brother was diagnosed with Kidney Cancer. I am just so scared and do not want to freak my family out, but nervous as can be and could not sleep last night. I hope he can tell me something positive today so I can rule out anything too bad.

    Any words of advice for me? Tell me this will be okay. Feeling like a baby and scared. Thanks for all of your support.
    Worried Hugs..
    Kim
    [This Message was Edited on 11/22/2006]
  2. Kimba4318

    Kimba4318 New Member

    well... leaving now
  3. Slayadragon

    Slayadragon New Member

    I had a lump like that once and so read up on it. Apparently nodes like that can be a sign of a disease called lymphoma, which is indeed cancer. However, they can also be indicative of what is called "pseudolymphoma," which is not dangerous at all.

    My primary care physician sent me to a cancer specialist. By the time of the appointment, the lump had started to get a bit smaller. The doctor spent a bit of time examining it and stated that it was not cancerous.

    Soon after that, it disappeared completely.

    CFS patients get all kinds of weird stuff. I wouldn't be surprised if this were related.

    In any case, while you certainly should get it checked out, I wouldn't worry about it too much.
  4. NyroFan

    NyroFan New Member

    Kim:

    I am so sorry about this happening to you, but it seems that you caught whatever it is at an early stage (six weeks you said).

    You get it checked well and do not worry over the holiday.
    Everything will work out OK for you. It sounds like you have a good doctor.

    Get some rest and my blessings and prayers are with you.

    nyrofan
  5. mlrarr

    mlrarr New Member

    I know all those sites take you to scary places. I had a lymph node just like the one you are describing but mine was under my arm. I went to doctor after doctor and even posted about it here. Well I had a tooth the had broken off at the gum line and finally after 4 years went to take it out. Guess what? The lymph node went away!! I had it for the 4 years and after they cut that tooth out it was gone within a months period.
    Have you had any blood test lately? All my doctors told me that if the blood test were fine than they were not worried. I still have lymph nodes swell up from time to time under my arms but not like that one.
    Oh yeah- My blood test didnot show any infection from that tooth- funny uh?
    My point is dont panic. I know that sounds hard. This dd is scary. Some days you hurt so bad and things come up that you know it had to be something serious.
    Let us know ok...
    Big hugs Melinda
  6. jillian44

    jillian44 New Member

    My Lymphnodes get enlarged alot! So don't worry go to the doctor and remember we are all with you and so is God. Have a great Thanksgiving
  7. Kimba4318

    Kimba4318 New Member

    Thank you all for all of your words of wisdom & your persoanl experiences. Well, I will not be able to get this off of my mind as quick as I wanted... but your advice is certainly helping me feel more at ease. Thank you.

    ENT - seems like a very nice guy. Have to have it biopsied on Tuesday morning. My heart was doing that weird thing in the office (stress I am sure)... he said he also wants to surgically remove it to be safe, but not until after what we see on the biopsy. Said I would have to have the cardiologist "clear: me for surgery because my heart was "skipping beats" when he listened to it (MVP will do that).

    Anyway... that is my update. I also remembered 6 mos. ago an infectious disease doc saying that a test "CA-19" (I believe) was a little "off" and explained it as a cancer screening. Now I am like - OMG... it's all stressing me out. I cannot think that way, I know. Listening to your thoughts are making me feel more at ease. Thank you.

    Oh... prob. do a separate post but... Anyone had a needle biopsy before? Yuck....

    Hugs
    Kim
  8. pamlamb

    pamlamb New Member

    Hi. I just wanted to tell you its not always bad if it is lymphoma, I'm living proof! It had been 20 yrs, non hodgkins lympoma stage 3. MIne were under my arm pit. When it was diagnosed I was told no one has lived past 20 yrs, but I'm clear, and proving them wrong. They also thought of it as a middle aged mans disease then. I am now a middle aged women. I spent a lot of time thinking I was dying and lost precious time, and here I am! My drs tell me a lot that I am a very lucky person. Treatment options have improved greatly since then too. The stigma attached to lymphoma is not what it was. Wishing you nothing but good luck! pam
  9. ikumdo

    ikumdo New Member

    Kim how old are you now if you don't mind me asking.

    My lymphnodes swell I'm realizing when I have sinus allergies which I believe have developed because of cfs/fibro. I have been freaked out by the swelling and the pain and now I'm learning to live with it better and control it by taking care of the allergies. This cfs/fibro thing is something I tell ya. It does weird things to the body. I do believe a large part of our pain is because we worry so much about the symptoms that we know we have but others can't diagnose or understand. The stress intensifies the whole thing. A big part of this everyone is getting a hold of our stress. We can do it. Just like some of us get a hold of our cfs/fibro we can get a hold of our stress. My doc keeps telling me that cfs/fibro itself won't kill me so I've decided that I'm not going to kill myself by letting my pain and stress overrun me.

    Everything is going to be o.k.
  10. Slayadragon

    Slayadragon New Member

    My husband had a needle biopsy for his liver. We thought it was going to be really painful, but it turned out not to be any big deal at all. I would imagine the one for the lymph node would even easier.

    I hope things go well, of course.
  11. boltchik

    boltchik New Member

    Everything will be okay. Don't worry, there are a lot of us saying a prayer for you. I am sorry that you are scared right now. I have been thinking about you a lot and everything that you are going through. I hope that you will allow yourself to enjoy Thanksgiving tomorrow. Try not to let your worries take away your spirit. I know how it is to worry that you may have something wrong with you. I have had to wait for 2 weeks for test results that turned out to be nothing. I know it is hard. I hope you have something to take for anxiety right now, to help calm you down. Well, I am praying for you! Kim :)
  12. mistress-o-pain

    mistress-o-pain New Member

    I was told I had Non-Hodgkins Lymphoma. Had Lymph node and skin removed. It was all sent for testing and came back negative. I get enlarged nodes alot and the doc's now give me antibiotics when I have an episode of it.

    My advice to you is try not to wig out. I know that seems easy for me to say on my end but I have had several misdiagnosis in the last 4 years. None of which were good. I wish doctor's wouldn't tell their patients what they "think" something might be. It adds so much unwarranted stress sometimes. And of course stress makes the FM symptoms exacerbate.

    God bless.

    M.O.P.
  13. kbak

    kbak Member

    Hang on Kim,
    Don't panic to bad till you know something for sure. My daughter had MANY swollen lymph nodes and had to go to an Oncologist. They looked for cancer and came up negative.

    She does have EBV, and they figured when it flares up so do her lymph nodes. That said, you still have to be careful and make sure (anyone) with swollen lymphs, that they are checked. EBV, IBS, Chrone's are all highly suseptable to lymphoma.

    I'm going to say a prayer for a good outcome!

    kbak
  14. Catseye

    Catseye Member

    I had a big one behind my neck for years but when I got cfs and cleaned up my diet it went from being the size of a quarter to a little BB after a few months. I've read that toxins will cause them to swell which is really a buildup of fluid with the toxins in it. And a couple of years or so before my lymph node swelled, I had my appendix out because it swelled up. It's supposed to be another storage place for toxins. Gee, isn't hindsight so nice and crystal clear? It may just be a matter of cleaning up your diet. karen
  15. Mikie

    Mikie Moderator

    I can only imagine how stressful this is for you. You will feel better when you know what it is and you can start treating it. It's the not knowing and imagining the worst which is so hard. Try to focus on a good outcome. Visualize it as nothing to worry about. If one can learn to do this, it really does make a difference.

    Let us know as soon as you know anything.

    Love, Mikie
  16. PVLady

    PVLady New Member

    You are in my prayers. Please let us know how you are doing...

    I know it is stupid, but try not to worry. Our prayers here are powerful..
  17. Kimba4318

    Kimba4318 New Member

    I DO feel your prayers and appreciate it more than you know. I was just browsing on here tonight trying to keep my mind off of it. I saw my brother in law today and his new girlfriend is a doctor and she made this sad face when she felt my "bump" and I explained that it is def. a lymph node. Sooooo hmmmm :-(

    I am trying to stay positive with all of the help from you all. It is now a deep, deep aching feeling on that side of my head, the pain arches around my ear and up to my head. So, as soon as I try to get my mind off of it, it reminds me that "it" is still there and then I wonder if it is cancer. Trying to stay positive.

    Nice to hear from you and knowing you are still thinking of me. I hope by Tuesday night I get some good news and then I will just schedule the surgery to get that nasty thing removed. I can do without this pain on top of all of the rest of what we deal with daily.

    Thanks for those prayers that mean so much!
    Love & Hugs
    Kim