lymphoma survey...

Discussion in 'Fibromyalgia Main Forum' started by onset1990, Oct 19, 2009.

  1. onset1990

    onset1990 Member

    I searched this board for lymphoma posts but haven't found what I was looking for.

    WPI's home overview says:
    "We have new findings regarding novel viruses in a cohort of Nevada ME/CFS patients with an alarming increase in lymphoma. These findings may have far reaching implications for the prevention and treatment of the lymphoma, one of the potentially devastating complications of ME/CFS."

    My mother died of Hodgkins lymphoma at a young age, 44. My grandmother probably had Fibro but they called it rheumatism. I recognize her symptoms now as familiar.

    My daughter has serious chronic EBV. I have CFS and fibro.

    Do any CFS sufferers here have a family member that has had lymphoma of any kind? I'm interested in the link, genetic or otherwise, between lymphoma, EBV, and CFS.
  2. spacee

    spacee Member

    I had not seen an uncle and his daughter for over 15 years and probably longer. I get sick, my grandmother dies and I see them for a few hours at the funeral and after. (We all live in different states). Within a year or so, he dies of lymphoma and she developes FM and is totally disabled. That was in 86.

    My woman friend who came down with CFS (after moving to another state...I believe we were exposed to the virus at the same time) developed lymphoma but thankfully survived the bone marrow transplant and still lives. Her son has FM and has become addicted to pain meds. V. Sad.

    I will probably post this more than a few times. I do not believe this is only transmitted by certain body fluids. That is not my experience at all.

  3. kermworm

    kermworm New Member

    Check out the study below linking lymphoma to radiofrequency and microwave radiation, only 'think' of the cell phone and wi-fi towers and antennas blanketing the planet today. You might also want to google the Bioinitiative Report. But here's the study - the last sentence says it all...

    Cancer morbidity in subjects occupationally exposed to high frequency (radiofrequency and microwave) electromagnetic radiation

    Stanislaw Szmigielski
    Department of Biological Effect of Non-Ionizing Radiations, Center for Radiobiology and Radiation Safety at the Military Institute of Hygiene and Epidemiology, 128 Szaserow, 00-909, Warsaw, Poland

    Available online 25 February 1999.


    Cancer morbidity was registered in the whole population of military career personnel in Poland during a period of 15 years (1971–1985). Subjects exposed occupationally to radiofrequencies (RF) and microwaves (MW) were selected from the population on the basis of their service records and documented exposures at service posts. The population size varied slightly from year to year with a mean count of about 128 000 persons each year; each year about 3700 of them (2.98%) were considered as occupationally exposed to RF/MW. All subjects (exposed and non-exposed to RF/MW) were divided into age groups (20–29, 30–39, 40–49 and 50–59). All newly registered cases of cancer were divided into 12 types based on localisation of the malignancy; for neoplasms of the haemopoietic system and lymphatic organs an additional analysis based on diagnosis was performed. Morbidity rates (per 100 000 subjects annually) were calculated for all of the above localisations and types of malignancies both for the whole population and for the age groups. The mean value of 15 annual rates during 1971–1985 represented the respective morbidity rate for the whole period. Morbidity rates in the non-exposed groups of personnel were used as ‘expected’ (E) rates for the exposed subjects, while the real morbidity rates counted in the RF/MW-exposed personnel served as ‘observed’ (O) rates. This allowed the calculation of the observed/expected ratio (OER) representing the odds ratio for the exposed groups. The cancer morbidity rate for RF/MW-exposed personnel for all age groups (20–59 years) reached 119.1 per 100 000 annually (57.6 in non-exposed) with an OER of 2.07, significant at P < 0.05. The difference between observed and expected values results from higher morbidity rates due to neoplasms of the alimentary tract (OER = 3.19–3.24), brain tumours (OER = 1.91) and malignancies of the haemopoietic system and lymphatic organs (OER = 6.31). ***Among malignancies of the haemopoietic/lymphatic systems, the largest differences in morbidity rates between exposed and non-exposed personnel were found for chronic myelocytic leukaemia (OER = 13.9), acute myeloblastic leukaemia (OER = 8.62) and non-Hodgkin lymphomas (OER = 5.82).***

  4. onset1990

    onset1990 Member

    that you guys were affected by this in your families. There does seem to have been something of an outbreak in the late 80s and early 90s about CFS but that's just my opinion.

    I was exposed to high EMF at work for years that started just before I became ill. I worried about it but needed to earn a living.

    Well, after I wrote this post I remembered that my first Rheumy Doc told me that some Hodgkins lymphoma patients are misdiagnosed with CFS earlier... before signs of the illness are apparent. He told me that Hodgkins disease is a very slow onset cancer that takes at least 10 years until symptoms are apparent as cancer, thus the misdiagnosis. Maybe this is why I read that some CFS patients had recovery after being treated for Hodgkins. Maybe it hadn't shown up yet.

    I just want an answer within my lifetime, that's all. And to know if my children and grandchild are safe or if this is a genetic weakness issue. I want a test.