Lyrica not working.

Discussion in 'Fibromyalgia Main Forum' started by ChungieDolor, May 17, 2006.

  1. ChungieDolor

    ChungieDolor New Member

    Well, I have been on Lyrica for a month or so, and it has not helped me with the pain at all, as a matter of fact, I feel worse when I take it. I am on (2) 50 mg per day. I find that I have an increased appetite. Sleep deprivation is at its worse, and I feel very irritable. oh, fibro fog is bad too!

    I have had 2 episodes in the early morning where I can not bend my knees. Pain is just horrible. Last week, I had to go to the bathroom, and was standing, the pain was so excruciating. Felt like a man! Almost want to laugh now, but was crying at the time.

    I have an appt with the doc next week. I have not been on the net to do research in a long time. Any other meds being studied for this horrid dd! Thanks for your input. By the way, I tried Neurontin a long time ago, and got very nauseated! Its like a needle in a haystack, when will we find relief!

  2. tomcollins

    tomcollins New Member

    I was on 50 mg twice a day and my doctor upped my dosage to 75 mg three times a day because I was complaining of little relief.

    In addition to not helping I feel like I am on a roller coaster 24/7. My sleep deprivation is also worse but atleast I can fall asleep now since my neuro put me on Cymbalta (does not help with pain, but it gets me to sleep).

    I too am looking for a better way to manage pain. I think I will ask for a reccomendation to a pain specialist.

    I hope that you find something that works.

    "No Day But Today"
  3. ChungieDolor

    ChungieDolor New Member

    for your reply. I will ask my doc next week about Cymbalta. Would help if I could sleep some more. Then again, the sleep apnea probably does not help. I have tried those cpaps but can not handle the noise, and they are difficult to get used to. I applaud those that can use them.

    I was rather disappointed with Lyrica since there are some who have seen improvement. My docs wife is doing well with it. Wish I was one of those people!!!

    Sometimes I think I have a Donkey brain. I have a bag of meds in my closet. Hope, I do not have to go through another!

    By the way, are you or anyone else on a special diet. Doc said to get on South Beach Diet. Foods with sugar are like drinking sodas with aspartame for me. But I can not help eat that ice cream once in awhile! Best wishes Tomcollins!

  4. tomcollins

    tomcollins New Member

    I'm sorry for not catching this sooner..but the board is moving so fast these days. I have yet to get a sleep test to see if I have sleep apena..but I'm not going to doubt it as a possibility.

    I get the pharmacist to fill only a 3 week supply when I try new meds..this way I can try them and if they don't work-I don't have a ton of pills and wasted money. But I have quite a collection myself.

    As far as a special diet, my spouse is hypoglocemic so I am forced to eat well. I also stick to-no caffiene-this has made a huge difference.

    Hope this helps and hope you get some sleep.

    "No Day But Today"
    [This Message was Edited on 06/24/2006]
  5. JLH

    JLH New Member

    Have you tried Cymbalta?

    I take the Neurotin, 300 mg 3 x day, and it really helps. I never did have any nausea with it. Did you stick with yours at least a week to get used to it?

    I also take Cymbalta which really helps, too.

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