Lyrica... questions about it?? I need advice

Discussion in 'Fibromyalgia Main Forum' started by BethM, Nov 28, 2006.

  1. BethM

    BethM New Member

    I sent information on Lyrica to my primary care doc. She told me she will talk to the rheumy I saw one time about it, and whether it might help me or not.

    I am a little afraid to start another medication, as I tend to have side effects to many of them.

    Darvocet and acetaminophen in small doses help with that awful flu-ey pain, (I have fibro) but I've taken it for so long that we are watching my liver function carefully. No problems yet, but I'd like to be able to use something not quite so liver toxic.

    I function pretty well and am able to work part time, but would like better pain control.

    questions:
    1. what sort of pain does Lyrica control? Does it work for the 'forever flu' pain and aching? Or is it more for nerve type of pain?

    2. does it help with fatigue, or does it make that worse?

    3. I worry that I am using too big of a 'gun', with this med. How do I know if I am or not?

    I prefer a more wholistic approach to healing, but believe that western medicine has its place too. It's just that Lyrica seems scary to me, seems like a very powerful medication.

    I feel like if I start taking Lyrica I might be opening up a Pandora's box of new problems.

    I'd sure appreciate your input on this.

    Peace,
    Beth.

  2. Fudge43

    Fudge43 New Member

    Beth .. I also thought the same thing .. that I am on a lot of meds .. why do I need one more ?
    My GP thought it might help with the nerve pain I have in my neck, feet and hands .. it is a burning .. tingling pain .. aching too

    When I first started Lyrica .. and we advanced to higher levels (I have a tolerance to some meds).. I thought YIKES ! .. I'm too dopey on this stuff .. so I cut way back .. but stayed on 150 mgs at night to use up my script (this stuff is expensive even with insurance !) .. I found it really helped with sleep ( we all know how hard it is to get any .. let alone quality sleep!) .. so after being very surprised by this benefit I thought I would try it at a higher dose again .. but only at night .. so I am not sleepy during the day ..

    This is working for me .. but everyone is so different .. and your first reactions to this may not be positive .. I was in that position initially, but if I hadn't extended the time I was on it , I would never had known that it works to help relieve some of this rotten pain .. nerve or not .. and the sleep quality was such a nice surprise .. I am very grateful !

    So .. my advice to you .. whether you are in to holistic practices or not .. if a med makes your life more bearable and less stressed from relief of pain .. why not use it ? The problem is that some meds take a long period of time to have the right impact you are working towards .. so you might have to put up with some side affects for a little while .. but for me the benefits were so worth it !

    I hope you find what you are looking for !
    Good Luck !
    Joy : )
  3. Cindyvr

    Cindyvr New Member

    I take Lyrica twice a day . 150 mg each.. I see some benefits for it. I was taking Neurontin and my pain management Dr said Iwas at the highest dose I could take and I still had the achy flu feelings. So he put me on this..Less pills but better for me. I seem to be tired during the day but I can still function fairly well. My sleep is actually getting alot better. The onlything I think is different is that I get these jumpy things ( muscles kinda have s spasm..doesn't hurt just feels funny..Sometimes I giggle from it cause I think my body is trying to keep working when Im trying to rest)when I try to relax like going to bed at night. I don't know if it is a side effect or something else just popping up. Gonna ask Rheumy next month!! LOL
    I say try it. There are benefits from it. I know it seems expensive but I know I pay tons more for my sleeping pills then I do for Lyrica.
    Cindy
  4. BethM

    BethM New Member

    Thank you, I appreciate hearing about your experiences. It really helps to know how other folks with fibro react to meds.

    I don't know yet if I will be taking it, but I need to understand what I can about Lyrica so I can discuss it intelligently with the doctors.

    I don't even know if I will be able to get it, or afford it, for that matter. I just have to wait and see!

    I read that it is related to neurontin, and I was on neurontin many years ago. I don't remember if it helped, though, way too long ago.

    Peace,
    Beth.
  5. dragon06

    dragon06 New Member

    I have been taking Lyrica for over 7 months now. I have had good results. I did get some side effects early on such as blurry vision and fatigue and a few others I can't remember but most of the side effects were gone after 2 months. I still get the blurry vision occaisionally but only when I am really tired or straining.

    It has helped with nerve pain.

    It has helped with the very bad abdominal muscle spasms I had that caused a lot of stomach and IBS problems.

    It has also helped with sleep. It doesn't help me fall asleep but once I am asleep I get a much deeper, longer and restorative sleep.

    All in all the benefits from this drug far outweigh any cons for me and I will keep taking it.

    I am on 300mg per day.
  6. jessica0123

    jessica0123 New Member

    Hello,
    My Dr.was so excited to put me on Lyrica because it was new and she had a few patients doing beautifully on it. I WAS SO EXCITED MYSELF! We got it approved with the insurance and I finally got the RX filled and it was magical almost all my pain was gone with in 24 hours. I laughed and cried calling my Dr. saying how wonderful this was why did it take so long for technology to come up with this? Well...my magical experience soon ended. Five days later I awoke with swollen ankles, wrist and pain beyond belief. It had to be the Lyrica because that was the only thing I had added to all my other meds. Now I take Cymbolta which is an antidepressant but also wqorks with the nerves, and I am doing well on it, and I haven't cried because of my pain in a while (BONUS)! I feel so alone and desperate when I hurt. Good luck

    I have over 100 pills I wish it was legal to give them away because they are just sitting in my drawer.
    Jessica in VA
  7. BethM

    BethM New Member

    Jessica and dragono6, thanks for your responses. Jessica, I am so sorry you had such an awful response to Lyrica! And yes, there needs to be a way to recycle meds. Sometimes churches that go on medical missions can use donated meds, or so I have heard.

    Doesn't look like I will be on Lyrica anytime soon. My doctor responded, after consulting with the rheumy, that I should see a psychiatrist, since Lyrica is a psychoactive med. Huh?? It's on-label use is for neuropathic pain, not psych issues.

    I wrote back to her, thanked her for her reply, and told her I need to see a fibro specialist, not a psychiatrist.

    Whew. Not the response I expected. I suspect this doc doesn't know how to manage a patient who is more informed than she is about this illness. I think she means well, but this relationship isn't going to work.

    Onward and upward,
    Beth.
    [This Message was Edited on 11/29/2006]
  8. Fudge43

    Fudge43 New Member

    Beth .. I'm so glad that you have the sense to see this doctor does NOT know what she is talking about .. other more insecure people would be upset .. I don't see that in your case and I'm so glad !

    My GP admits upfront and very frankly she does NOT know enough about this illness .. and is more than willing to try new things if I find information about other meds that might work ..
    She in fact brought Lyrica to my attention because I suffer from neuropathic PAIN .. burning and tingling in my feet .. neck and some in my hands .. this does help and it benefits over all pain even though I am still on time released narcotic meds for the fibro pain.

    Hang in there .. you have more sense and intelligence that these so called "doctors" you have had to deal with .. trust your instainct ! You are on the right road of information for what you need to know !

    Good Luck and stick that chin out woman ! haha
    Joy : )
  9. BethM

    BethM New Member

    I appreciate the support. Your post gave me a smile, and I needed that this morning. Most of the time I feel like I am on my own with the fibro, in terms of medical support, anyway. This board is my life raft.

    Fortunately, I really am pretty functional, much of the time.

    I'd prefer to be completely functional ALL the time, but wouldn't we all??

    I think it is the rare doctor who is open minded enough to admit they need to learn more about fibro and CFS, and is willing to do the work. I'd like to find one. It's pretty pathetic when the patient has to teach the doctor, and pay for the privilege.

    Peace and hugs,
    Beth.
  10. Fudge43

    Fudge43 New Member

    Beth .. I know I am so lucky to have such a great doctor .. it would be hard to explain, but believe me .. we (my husband and I) deserved this break so much it is amazing .. life has been tough these last few years .. and having this doctor has made all the difference in the world to us.
    I just wish all of you could have the same opportunity too !

    We have to educate ourselves even under the best of conditions .. ignorance is not an excuse any more in this day and age .. we have to work with what we have .. there are days when I just want to throw in the towel but I keep in mind that this day will pass and I will have a chance to feel better .. I know that is hard for some people to grasp at a time when they feel like hell.

    I'm in pain even typing this .. but my mind is yelling at me to say "Hey ! .. I understand ... it sucks .. but hang in there and keep fighting !"

    Joy : )