Made an appointment with FFC

Discussion in 'Fibromyalgia Main Forum' started by namow, May 19, 2006.

  1. namow

    namow New Member

    I finally decided to make an appointment, I hope we don't go broke after this. My husband is very suppotive and he thinks that we should try it.

    I have been very doubtful but I guess I have to take a chance.

    Any advice from all of you who have gone already? What do you recommend for the first visit etc??

    I would appreciate any advice...and pray for me!
  2. horselover2

    horselover2 New Member

    i am thinking of going too. which center are you going too??
    i have heard it is expensive, but if it helps than it will be worth the $$ and the trip. hope it helps you. let us know
    anne
  3. namow

    namow New Member

    I'm going to see dr. Sharp. Hopefully he will understand that I am very sensitive to medications.
  4. livin4him

    livin4him New Member

    1.Take a small recorder to record your visits. Very IMPORTANT - you will want to listen to this after your visits.

    2. Do not buy their supplements. Just get the list of what they want you to have. You can buy them online much cheaper. They will try to push this on you, just don't give in. Also, you can buy the supplements one at a time to make sure you can take them. (I still have not been able to take some of mine - due to stomach problems).

    3. Be prepared. Make a list of questions you want to ask. Make copies of any medical records you have to give them - maybe just the ones that highlight your history. Make a list of your history, symptoms, etc. to hand doctor so she/he will have an overview to visually look at. Plus you won't have to try to remember everything.

    4. They will try and push iv supplements on you. Do research on these before so you will know which ones you want. Also, ask for the pain reliever (lidocaine) with the ivs from the start (don't wait for the pain to start).
    Also, if you have to travel, like I do, it made me really sick (the creamed corn one) at first visit.

    5. They had juice and crackers at the one I went to. But I also had snacks with sodas (caffiene) in cooler in car. I needed my coke in order to drive back home, plus I was too tired to stop after visit.

    6. Dress comfortably.

    Hope this helps, take care.



  5. namow

    namow New Member

    That is VERY helpful and I will follow your advice
    THANK YOU, THANK YOU, THANK YOU
  6. Dee50

    Dee50 New Member

    I wish you the very best:)
  7. spiritsky

    spiritsky Member

    I agree about the supplements. You can buy them cheaper elsewhere, but if they prescribe hormones, get them from the FFC. They contract out to a pharmacy in Colorado and the price is cheaper than elsewhere and they are all bio-identical.

    The only thing is with the Growth Hormone. FFC charges a big markup on this one. If you need to get some I can get you in touch with the pharmacy that I use. It's half the price and better quality ( about twice as strong so you only need to inject half as much, so really it's only about 1/4 the cost of FFC).

    Good luck...hope you have as good an experience as I did.
  8. namow

    namow New Member

    I will take all the advice that I can take, and I would love to have the names of theplaces where to get things at a better price. This is a pricey adventure and every little bit helps!
  9. ldbgcoleman

    ldbgcoleman New Member

    Here's my best advice.

    The info on the first two visits is overwhelming. Take someone with you to listen and ask questions you don't think of. I took my husband. It also helped him understand what I was going thorugh.

    Don't be afraid or feel like any question is too stupid. Ask them all. Don't be afraid to question the Dr if you don't understand something. If you get home and find you still have questions call them and ask.

    Know that you may get worse before you get better. If you do the Candida diet you may feel bad for a short time. If you have and treat hypercoagulation you may feel worse for a while. If you treat a virus the meds may make you feel worse. BUT there is a light at the end of the tunnel and eventually you get things turned around.

    It may take 6 months to a year to get better. Prepare for this up front. Do not expect to walk out and a week later you are cured. I will take a couple of months to even figure out everything that is wrong with you.

    I personally was feeling better at the 5 month mark. (My main issues were EBV and mycoplasma) Now I am feeling much better but I don't condsider myself cured at all. I still have ups and downs but the downs don't put me in bed now like they used to. They never promised me a cure either.

    If they find Lymes it is gonna take a while. You may decide to also go to an LLMD which is a Lymes specialist for this part.

    I go to Atlanta and they have never pushed IV's or supplements on me. I do buy most everything from them because it is too much time and effort to buy things from several different places with postage ect... I do it for convienience.

    Also it will seem like you are on alot of things at first but when you get into maintenence you remove things so it is not forever. Find a way to organize what you are taking as it is a challenge!

    Try to have a positive attitude and keep your mind on the 6 month mark and stay focused on the long term goal. Also talk to everyone you meet at the center. Most people are friendly and you will start to hear some first hand stories of how well some are doing and how they are doing it which is encouraging. Just be friendly with everyone.

    Good Luck and Keep us posted! Lynn



  10. aylasmom

    aylasmom New Member

    What is FFC? Sorry, I'm new here and newly diagnosed with fibromyalgia.

    Thanks!
  11. namow

    namow New Member

    Thanks for all the advice, it is wonderful to get all this help because it makes it easier to start this new path.

    T H A N K Y O U!