Discussion in 'Fibromyalgia Main Forum' started by maxi, Jan 16, 2003.
Can anyone out there recommend a Dr in manitoba?
Hi Maxi, below is a list of doctors in Canada, maybe you could contact one that is close to your area, and they will help you find someone in Manitoba .
If you want additional information on doctors, just go to the top of this board where it says; 'Doctor Referral', click there and it will bring you to an area that has lots of information concerning how to select a doctor for FM/CFS.
Welcome to the board, and I hope this helps. Maybe we have someone here from Manitoba to share with you.
I am from Louisiana in States.
Ontario, Canada CFS & FM GOOD DOCTOR LIST
Wharncliffe Road near Oxford
Tel: (519) 434-1449
(He is in a professional building beside the Toronto Dominion bank.)
Rideau Medical Centre
Tel: (613) 272-2500
Dr. Blair Lamb, M.D., C.C.F.P.
331 Sheddon Ave.
Oakville, ON L6J 1X8
(just outside of Toronto)
Tel: (905) 844-3561
Fax: (905) 844-3560
Web site: www.drlamb.com
("Pain treatment practice including fibro")
Dr. Anil Jain
118 - 1025 Grenon Avenue
Tel: (613) 596-3211
("Since he worked with Dr. Bryon Hyde when CFS was first diagnosed in Ottawa, Dr. Jain has become very well known and an expert in the CFS Field. My rating is a 10 out of 10 for this doctor.")
Dr. Dan Sweet, M.D., FRCP(C)
380 Hunt Club Road, Suite 203
Ottawa, Ontario K1V 1C1
Tel: Office: (613) 738-7900 Fax: (613) 738-3757
420 East St.
N, Sarnia, Ontario
Dr.Alison C. Bested, M.D, F.R.C.P.(C)
Specializing in Chronic Fatigue Syndrome and Fibromyalgia
3600 Ellesmere Road,Unit 4
Scarborough, Ontario M1C 4Y8
Tel: (416) 283-0007
Fax: (416) 283-0007
("She is amazing! I dont know what i would have done if it wasn't for her!")
168 Annette Street
Toronto, Ontario, Canada M6P 1P4
(Self Referred to the list) (Interested in CFIDS/FMS. Dr Sherkey has the illness and can relate to the patients' concerns and
Right country just the wrong province.
It is the next one over.
i would like to welcome you maxi to here this is a great place to be i hope to see you again to shirli would like to say thank you to you i did not relize that there was a docter that close to me for fm the next time i go to my docter i will see if i can get a refurl to go there thanks
[This Message was Edited on 01/17/2003]
I know this is an old topic but I just wanted to say that I am from MB. Any others from Manitoba? Check my profile for my e-mail.
P.S.- Has anyone tried dr. anil jain from the co-cure website? Is he any good?
[This Message was Edited on 04/10/2003]
DR. SEAN CEASER, ND
PH,,,204 831 6112
You may have to leave a message as he works out of the Charleswood Chiropractic & they don't have a full time receptionist. Good luck, sorry about the wait I haven't been on the computer to a while.
Hey Maxi - as far as I can figure, FMS does not occur in Manitoba - that's cause there is no one that will recognize it lol I note that all the referrals were for Ontario - if you live in the Peg, that doesn's help - plse respond as I live about 1.5 hrs west of Winnipeg - maybe we can actually talk?
Yes I live in the peg. I've just found out they have a fibro support group here the 1st tues of each month. In May they are hosting a course living with fibro. If you call the Manitoba Disabilties they should be able to provide you with a number. I haven't actually been to a meeting but am hoping to attend the course in May. It's spread over 3 or 4 evenings.
There should be a way that we can get ahold of each other to talk but I'm not sure how we do that without sharing our personal information. Any suggestions from anyone else out there?
Hopefully we can get in contact with each other and chat soon.
My Dr. is the one who actually diagnosed me with Fibro and has now referred me onto another Dr here in Winnipeg that deals with Fibro.
Thanks for the info I'll try and get to him if things don't work out with the Dr I have just been referred to.
I'm in the peg and was wondering where the support groups are held? Also, are these support groups FMS? I am looking for a CFS one, you see.
Any info would be greatly appreciated!
I am also living in Ontario and agree with you that the Good Doctor List should be updated at least for Toronto.
After seeing one doctor on the list, I can honestly say that after two visits, it was a waste of time. Dr. Bested I believe is the most reputable one and is affiliated with Women's College Hospital (The Environmental Clinic), where I have been as well when it opened with very little success and support, they are just not up to the challenge, at least not when I saw the doctors there, and their info bulletin does not even mention the words CFS/FMS or I missed them.
I am very fortunate that I have a doctor who has treated me with CFS/FMS for the past 15 yrs. and knows what he is doing, and I have educated myself over the many years to have a choice also as how I want to be treated. There are so many lose ends out there yet on these illnesses, and that's why it would be quite interesting to know where you get treated in the U.S. and what the treatments are. May be you can drop me a line - who knows your doctor might be just across the border.
I do not know if you have FMS, CFS or both?
I would appreciate hearing from you, take care, Lucky
[This Message was Edited on 04/14/2003]
You should try calling SMD 975-3010. Hopefully they can connect you with the appropriate support group for CFS. I found the one for FMS in the paper. Their meetings are at the SMD center 825 Sherbrooke st. I was planning on attending the one in April as I had just found out about it but unfortunately I was un-able to make the meeting.
for your reply - it is great to also find people in Ontario who are as fed up as I am with the little resources which are available in Ontario. As mentioned, I am one of the lucky ones to have a doctor who will treat me and understands CFS/FMS, but he is not a specialist. If a specialist is needed, he is the first one to send me to one. Also, he will make sure, and this is interesting, to protect me from those doctors who are not familiar with CFS/FMS. And, over the years, I am quite educated myself to have a say in how I like to be treated. But not everyone is that lucky.
I would love to get in touch with you to find out where and how you are treated in the U.S. I am very interested, however, I am also cautious with many treatments which are supposed to be helpful, cost a lot of money, and do not get you anywhere.
I only saw your message today, I have been in bed with a nasty virus - which almost started like SARS.
Ria, if I would know where you live, I could give you my phone number or else my e-mail address, but which is not that advisable, I understand. Any suggestions?
Take care and hope to hear from you. Lucky
[This Message was Edited on 04/17/2003]
In your message of 4/14, I wasn't sure if you were saying that Dr. Bested did help you, or didn't. If not, could you recommend who you are with? I'm trying desperately to find some help for my CFIDS.
I never have seen Dr. Bested and never had the intention after I was told that her treatments are not what I am looking for. Unfortunately, after many years (20), I am still looking for a doctor in Toronto who is really of any help. My family physician is my main source for treating CFS/FMS. But, also I have seen a lot of specialists who today are familiar with these illnesses. Also, I have seen Dr. Sherkey who has CFS himself, and who follows. Dr. Jay Goldstein's protocol (check it out on the web), which I believe in. However, his help is limited, since he will not do any testing etc.. I'll try to see him again in July for updating my meds (Celexa and Ritalin).
Also, I am getting very vocal about the help we are getting and will again write to my local MPP. It really is something that our government recognizes these illnesses, but do not provide help.
I do not know how ill you are and for how long. One source to go to is the Environmental Health Clinic at Women's College, however, although I was diagnosed for the 3rd time there, they did very little or nothing to follow up and help.
Hope, you find some doctor who will be able to help you It is so frustrating and very hard. The best you can do, is get as much info on these illnesses, so when you see a doctor that you can challenge him/her.
I went to see a new family physician who was taking new patients in my area. I walked in and walked out, she let me know that I have too many problems and she would not be up to it and to stay with my doctor. Just wanted to see and that's what I got.
If you need more information, pls. let me know, and meanwhile, good luck and take care, Lucky
[This Message was Edited on 05/27/2003]
for your quick reply and support. I'm 38 and have had this since about 16 yrs old. My GP knows nothing about treatment for this DD, and it seems to be getting worse, or maybe it's just worn me down with time, so I'm quite desperate for help. Quality of life is less than minimal.
One of my most disturbing symptoms is the sudden weight gain of 30 lbs in just 3 months! Under NO meds, no diet change, no change of any kind. It happened several years ago, and I can't lose it and can't explain it. I thought it had to be thyroid related, so I saw an endicronologist who did all the tests and she found nothing unusual. I only weighed 130 lbs to begin with, so this was a gain of 25% of my bodyweight in only 3 months? And none of the doctors can find a reason? That just can't be right. It feels really uncomfortable and unnatural. Has any one else out there experienced anything similar to this?
Re Dr. Bested, can you please elaborate a bit on what treatments she provides that weren't right for you? If anyone reading this has seen Dr. Bested, can you please relay your experience.
This message board really helps one to feel a little less alone with this DD. Like many of you, I've had to live with this secretly from most people, as it could cost me professionally.
Thank you for your reply and as you, I am also still searching for many answers to these illnesses. Over the many years and with my ongoing health problems which are getting worse than better, I came to the conclusion that before the real problem, namely a virus or viruses, bacteria, etc. is not really identified and treated, the search and frustration to find something which is helping us, goes on.
When I mentioned to one of my doctors that I was planning to see Dr. Bested, the answer was....that her treatments are mostly 'natural' and this person was not impressed. Dr. Bested is affiliated with the Environmental Health Clinic, and as I mentioned, I was not impressed with them at all at the time when I saw some of the medical doctors there, except that it was confirmed that I had CFS. No follow-up, no answers when I phoned, and I gave up on them. Again, therefore, my gut feeling is that's not who I would like to see. Also, I had bad experiences with alternative practioners and instead of getting better I got progressively worse. However, as you know, some people respond well to it, and I know that to get an appointment with Dr. Bested is almost impossible. So, it might be worse a try for you.
The weight gain is probably due to the change of your metabolism and also with the fatigue, we are not very active anymore to burn off all the extra calories. I gained almost 45 lbs., however, mostly from meds.
Most of the tests, as you mentioned, come back normal, the same thing happen to me.....mostly. But, lately, and here I see that with this illness going on for many years, the immune system really starts to completely fall apart, because I am having new infections all the time.
I don't know about you, but I have been studying this illness for so many years that I manage to also get the proper respect, and my doctor only will send me to specialists who are familiar with CFS/FMS (to not stress me any further). And my doctor is fully aware and will do tests which I am asking for.....most of the time at least, so mostly I have been very lucky. However, if I do not do my homework, I would not get treated accordingly, since as you know our doctors are very stressed for time.
Dr. Sherkey, of course, having the illness himself, can be of great help for some patients. But, as mentioned before, his treatments are more on the neurological side since he is a follower of Dr. Jay Goldstein in California. After seeing him, we found out, that Ritalin is a big booster for the fatigue next to the Celexa I am taking which made a huge difference in my daily life. And, of course, he understands too well what is involved.
If you have any more questions, I gladly will share information and experiences with you.
Meanwhile, I wish that your doctor also understands this illness so that he can help you to make your life a little easier.
Take care and all my best, Lucky
Which tests should I be asking for? I, like you, try to be informed and vocal with my Dr., but I'm not aware of any other tests I can/should request other than the basic blood work I've had done.
Also, I'm taking Effexor for the depression/fatigue, which has helped quite a bit, but I'm still nowhere near "good". Are you saying that you take both Ritalin and Celexor? I don't know if you've suffered depression, but if so, do these meds help with that, as well as with the fatigue? Can I ask how long you've been ill? Also, do you know of any good support groups in TO?
If anyone else has any info on the above, please jump in!
I really appreciate your patience in answering all my questions, Lucky! I'm certainly lucky to have found you here with me in Toronto!
I have been ill for at least 20 yrs. (if not longer), but was diagnosed in 1989 by an internist who was the expert on CFS and well respected who had the illness herself. This doctor was like an angel and at that time was the best thing which could have happened to me when hardly anybody knew about CFS or FMS for that matter. Not only did she diagnose me, but also did a lot of intensive bloodwork to rule out other illnesses, like Lyme disease, etc. But also she rescued me at that time after seeing a homoepath in desperation at the onset of the illness, who told me he was making me better. Instead I got progressively worse and it was she who discovered that I had everything wrong, from kidney to other infections. Since that time, I'll never again put my foot into any natural doctor's office nor any other alternative health practioners. And....started to do my homework. With this internist's proof and diagnosis, I was probably getting a little more respect and it eliminated a lot of phases like 'it is all in your head' and when one urologist asked me and that was abt. 1 year ago, that he heard that CFS is a mental illness, I asked my doctor to never make an appointment with this doctor for me again.
But, the road to getting help is the same as yours. My good internist doctor had to retire because of her illness and I also got 2nd and 3rd opinions - one at McMaster university - and also the Environmental Health Clinic that I have CFS. However, nobody would help greatly but give me new or more antidressants, until I got so frustrated and angry that I started to make it my little life project to get as much info as possible and be in the driver's seat when I see the doctor or specialists. Meanwhile, I must say, that all the younger doctors I have seen, are very familiar with CFS, however, no great help there either, except if one has infections and has to be treated accordingly.
I was asking for more answers and more tests to at least rule out thyroid or other problems.
Thanks to Dr. Sherkey, Ritalin was added to the antidepressants and is the most important treatment in my case. I tolerate this drug well my the Celexa and Dyserel which I take at night. Some people are greatly helped by Modafinil. The depression with CFS - if one does not suffer from clinical depression or a mental disorder - are caused by the imbalance of chemicals, and, therefore, to find the right dosage can be difficult, the less sometimes the better.
The tests I was asking for in the past were quite a few.
1. being tested by an endocronologist for thyroid and
growth hormones, estrogens (I am a few years older
than you are.....), mono, creatinine, lympth, and mre
as well as white blood cell count and red blood cell
count, etc. This testing is much more intense than
the usual blood test done by a GP.
2. I was just checked for Lupus and bacteria (negative)
However, the mycoplasma test came back inconclusive
and since I am just
getting over walking pneumonia am sure that
I do have a micoplasma infection and that's why other
symptoms are always flaring up again.
3. Also I was tested by a specialist (he is the head
surgeon of Credit Valley) for my IBS problems and he
discovered that I have diverticulitis. I believe that
this is also caused by CFS and I suspect that
mycoplasma might play a role in it.
4. Since I had the Epstein-Barr-Virus also in 1988,
I periodically get rechecked, but my titers are
I have to think, what else I got checked lately. Of course, with my chronic sinus problems, I had CAT scans, and quite a few visits to allergists/nose/throat/ear specialists and nobody was able to help but tell me that the problems are caused by CFS and the dysfunct immune system.
As you, I am getting impatient, not by the fact that I am not getting better, but because there is no help out there whatsoever, and quite honestly, if I would have put my foot down many times, I would not have been heard at all.
I myself do not believe in support groups and have gone once and never again, since in my case they do more harm than good. Again, some people like to join a support group, and I will see if I can find one for you on ME Action Group (you can look it up on the web as well). This is a Canadian group based in Ottawa who has quite a bit of info which might be of interest to you. Also, ME Ontario has quite a good website, and I believe they are the ones with the locations of the support groups in Ontario.
If there are any more questions I can answer, pls. feel free to write to me. I try to help whereever I can knowing how frustrating our illness is.
Again, all the best and talk to you soon, Lucky
P.S. What are your worst symptoms? Would be interested
[This Message was Edited on 05/29/2003]
I was told i have "fibromyalgia" over five years ago. I can't find a doctor in Winnipeg (where I live)who treats it, nor have I heard of one. My family doctor says she looked around. She started me on megadoses of tryptophan but the cost was $5000 per year+, so her only suggestion for treatment was out of my budget (not covered by pharmacare). I also sometimes go to my doctor and ask about possible treatments that could help. I always find them reluctant to try cause they have no experience with it and don't want the responsibility. I would love for a doctor who actually knows something about fibromyalgia and has had success treating it to move to this province. Unfortunately our country is so big that finding one and then getting to them could be quite a problem (and quite a cost). I would love for someone to change my mind about finding treatment!!! Until then I don't see a lot out there for us. Finding treatment seems to be like finding a needle in a haystack.
[This Message was Edited on 05/30/2003]
[This Message was Edited on 05/30/2003]
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