Massage therapy-how well has it worked for you?

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Sep 18, 2002.

  1. EllenComstock

    EllenComstock New Member

    Hi, Everyone:

    How many of you have tried massage therapy? I started this therapy a couple of months ago. Sometimes I think it is helping and sometimes not. I would be interested to hear about other people's experiences with this. In the beginning, I felt better afterward, but lately I am not although it feels good while the therapist is actually doing the massage.

    Thanks!

    Ellen Comstock

    P.S. I had a really rough day yesterday and was struggling to get through the workday. I checked out the messageboard and found humorous stories of funny things people did when having fibrofog. I really loved the one about the woman who accidently brushed her teeth with Ben Gay! Anyway, the humor really lifted me up and helped me make it through the day. Thanks for making me laugh!
  2. EllenComstock

    EllenComstock New Member

    Hi, Everyone:

    How many of you have tried massage therapy? I started this therapy a couple of months ago. Sometimes I think it is helping and sometimes not. I would be interested to hear about other people's experiences with this. In the beginning, I felt better afterward, but lately I am not although it feels good while the therapist is actually doing the massage.

    Thanks!

    Ellen Comstock

    P.S. I had a really rough day yesterday and was struggling to get through the workday. I checked out the messageboard and found humorous stories of funny things people did when having fibrofog. I really loved the one about the woman who accidently brushed her teeth with Ben Gay! Anyway, the humor really lifted me up and helped me make it through the day. Thanks for making me laugh!
  3. Ness

    Ness New Member

    I have had good and bad results from massage...If you can find someone that know how to do trigger point release and understand that the knots we get can't always be worked completely out than you will have much better results.Also if they can stretch your muscles out at the same time.

    I have a decline in my pain level when I can go at least once a week..the problem is that the treatments are a short term fix and you have to keep going back, it is costly and insurance will not pay for this. I do recommend it if you can afford it ...We get to the point where we just want to stop hurting so darn much. I have not gone in almost a month and I can feel a BIG difference...I am hurting more again..

    I will tell you that in the beginning you may feel very sore...but I found that this got less and less if I went on a regular basis. Look for someone that knows about Fibro..and myofacial pain syndrome.

    Peace and Smiles
    Ness
    [This Message was Edited on 09/19/2002]
  4. LisaMay

    LisaMay New Member

    I am a former massage therapist and I know only too well the great effects of massage. The key is to find one that has had special training in Trigger Point Therapy, Myofacial Pain, or Craniosacral Therapy. Yes, we learned what TP's were, how to work with them, etc., but it really is a specialized field. I went to someone who said they knew TP's, she really didn't, and I felt awful for 1 week. I have had Reiki treatments and Reflexology treatments as well, both were helpful. In case you are not familiar, Reiki is a laying of the hands healing method working with the chakra's. Reflexology is massage working with the feet or hands (each area is associated with different parts of the body). You are right, it sure does get expensive.

    I wish we could be our own MT, since nobody else knows us like we do. Believe me I have tried.

    Lisa
  5. fibolady

    fibolady New Member

    it is so expensive is the biggest problem, plus when i am in a flare and really need one i don't have the energy to get there. i used to have a lady come to the house, but in the end gave it up because of expense and did not change my overall "being"
    do you have anyone at home that can give you a good massage. they are free and feel good too!
    warm regards, fibolady
  6. tandy

    tandy New Member

    I had gone for massage therapy 2-3 days a week,for a couple months and thought it was the best!!!It really helped me~I loved it!!I can't praise it enough.
    I was sorry to stop...only reason being is my insurance would only cover so many sessions and I was at the limit.
    I inquired on the price if I were to pay for them myself and got a quote of about $25 for a 20 minute massage.I was able to treat myself a couple times but it became to much for me financially~I tried to convince my man to take a coarse in Masssage therapy but so far he has'nt acted on it~Oh well........(sighs~).
    good luck to you-
    Tracey
  7. GILL

    GILL New Member

    I have had massages on my legs. They are very wobbly for a few hours afterwards but then seem to get better. The problem i find is that i don't like the wobbly feeling as its too much klike a flare and i panic that i am worse! My massager will not massage me on bad days. On the whole i would say it helps

    Love Gill
  8. BethM

    BethM New Member

    I just bought Clair Davies' workbook on trigger point therapy done by oneself. This idea is new, the book has a vast amount of info, and I'm just starting out, so don't know yet if it's going to help. I suspect it will. I hope to have time and enough mind clarity to really look carefully at the book this weekend. I've followed his directions a little on my lower back muscles and I think it's helped a little.

    I attended a 'grand re-opening' of a healing and massage center near me, and spoke with someone there about insurance covering massage therapy. He said it depends on how it is worded. Insurance will be more likely to pay for 'myofascial release therapy', as it is considered physical therapy. I'm willing to try, anyway!

    I've used massage therapy in the past with success, as long as the therapist knew not to dig too deep into the muscles right away, as that left me worse than when I walked in. It was a learning experience for both of us. I am hoping that with this group of healers available, someone there will know about FMS and MPS and be able to help me. Just hope I can pay for it...

    Peace,
    Beth.
  9. teach6

    teach6 New Member

    I have been going to weekly massage therapy for over a year now. When it's almost time for my appointment I can really feel it.

    Last week a friend told me about a new chiro she had gone to and what a help it had been for her FMS. So I did a web search and discovered she is trained in ART (level 3, which is great). I called for an appointment and her first available one was three weeks away, but I've waited this long, three weeks will pass quickly. Besides, now that I am able to somewhat keep my pain under control with Ultram waiting is a lot easier than when I was relying on OTC stuff.

    I'll let you know how it goes. She's one of only three people trained in ART in the state of VA. I feel lucky to have found her!

    Barbara
  10. nancyneptune

    nancyneptune New Member

    Hi Ellen, I had a masseuse for three years while I was still working. That woman was good!! She used to stretch my butt muscles by flexing my leg sideways like a frog! It's hard to describe. But when she was done murdering me that way I could actualy walk like a normal person. Now I can't afford massage, and she left to be a flight attendant.
    I really miss my massages, they were the only thing that kept me working.
  11. klutzo

    klutzo New Member

    ..was a full hour, and even though I made sure to tell the therapist not to do deep-tissue work, I still paid with big time pain. It felt great while she was doing it, but later I had the gelling effect and it got so bad on one side of my neck that I threw up from pain and had to call my doctor for a narcotic. I have been afraid of it since, though I had ten minute massages as part of my physical therapy and those were very nice, except when they worked on my neck. Then I would be unable to turn my neck for the next day.
    I know somoeone who claims massage cured her FMS. She went 3 times per week for 3 yrs. by which time she was well and went back to work. She has to go once every two weeks for maintenance.
    So, there are big differences in the success of this treatment just as there are with others.
    Klutzo
  12. EllenComstock

    EllenComstock New Member

    Thanks, everyone, for the info. I am having my massage done at my doctor's office-he's a fibromyalgia specialist. In my reading I noted that the massage has to be gentle or it can cause you more pain. I have heard that rolfing is way too rough for people like us.

    Thanks, Mel, for your info on active release techniques. I have never heard of it, but will have to do some reading. I was just diagnosed this summer so am still in the learning stages with this disease. So much of what I have read makes me feel discouraged at times.

    I am so glad to have found this website. I love how everyone here is always willing to help others even in the midst of your own pain.

    Ellen
  13. EllenComstock

    EllenComstock New Member

    Thanks, everyone, for the info. I am having my massage done at my doctor's office-he's a fibromyalgia specialist. In my reading I noted that the massage has to be gentle or it can cause you more pain. I have heard that rolfing is way too rough for people like us.

    Thanks, Mel, for your info on active release techniques. I have never heard of it, but will have to do some reading. I was just diagnosed this summer so am still in the learning stages with this disease. So much of what I have read makes me feel discouraged at times.

    I am so glad to have found this website. I love how everyone here is always willing to help others even in the midst of your own pain.

    Ellen
  14. jeanann

    jeanann New Member

    this disease is the key for me. I tried accuapunture when i first got diagnosed. Two times per week for $84 per session. I felt really good while i was getting treated, however, that was close to $800 per month. And the time of going all the time , well i just felt like i was chasing this disease. So if massage feels good do it. Now i do rolfing and guifenesin, until i stop and try something else. For me its all about learning about managing this so i can increase my quality of life. I have accepted i will always have this disease, it will not go away. I have to learn to manage it.
    Love
    jean ann
  15. Shoobie

    Shoobie New Member

    I only can afford to get them once a month or so, but ohhh do they feel good!! "If I had a million dollars... I'd be me a personal massage therapist" Sing it! LOL

    On a serious note, I'm a CMT (Certified Massage Therapist) but it just got too much to practice anymore.

    My favorite techniques to receive are:
    * Swedish w/ a little deep tissue work
    * Trigger Point Therapy
    * Myofascial Release
    * Craniosacral Therapy
    * La Stone Therapy (this is a must try at least once)

    Mel, thanks for the information on the ART! I actually hadn't heard of that yet! There's a certified ART therapist one block from where I work. I'm going to go check it out!

    -Shoobie