Mayo Clinic recommends exercise? WHAT?

Discussion in 'Fibromyalgia Main Forum' started by 2sic2mooov, Nov 20, 2008.

  1. 2sic2mooov

    2sic2mooov New Member

    The Mayo clinic has always been known as a premium care facility with a melting pot of specialists. I was just looking and saw, as part of their tx information, that they recommend moderate daily activity (I WISHED) and a regimen of "gradual but steady exercise" and they say that 70% of CFS sufferers improved with this. WHAT the HEY! All I have heard, and more importantly what my body KNOWS is that exercise makes things SO much worse. Do they not have CFS specialists there? i have had numerous family members beg me to go to this clinic because they are simply "the best in the US". I had a first cousin go there with CFS like symptoms but I havent had a real deep conversation with her about what they said. (She eventually recovered and is back to work as a nurse). I would like to know if others have gone here and what do they actually SAY to you about exercise as a tx?

    I also found it strange that they cited otc meds for pain, but for other symptoms they cited RX meds.
  2. TeaBisqit

    TeaBisqit Member

    CFIDS or just what they call CFS. There was a mental illness known as CFS, which is one major reason we've had so much trouble with the medical community giving CFIDS that label. Plain ole CFS has nothing to do with CFIDS. If you are just chronically tired, sure some exercise might possibly help, provided you really don't have an underlying medical condition. But CFIDS is Chronic Immune Dysfunction, which is what most of us here are complaining of where our immune systems and other body systems are disregulated and no amount of exercise will ever fix that, nor can most of us do it without becoming worse. It's like trying to tell people who have the flu that a good workout will cure them right up. It's ridiculous. But you would think that after all this time, large agencies like The Mayo Clinic would finally admit that people with CFIDS cannot exercise. If they aren't going to be honest, I would never go there.
  3. tansy

    tansy New Member

    ME became CFS then was watered down further so that it includes functional somatic disorders that may be amenable to graded exercise.

    The insurance industry asked for help when claims for ME and other illnesses related to work place illnesses, injuries etc increased. In stepped the UK based psychobabblers who had already been busy selling their psychosomatic hypothesis to health officials in the US. The psychobabblers claims that CBT (based on illness beliefs and overvigilence) and graded aerobic exercise (based on deconditioning) will get patients back to work was an attractive proposition for the insurance industry and the CDC.

    The psychobablers were the driving force behind the UK's NICE guidelines which also advocate CBT and GET but nothing else. The CDC provide a link to these guidelines on their web site and comment favourably on the specialist clinics here that provide these two Tx. There is to be a judicial review of these guidelines early next year.

    The same psychobabblerswere were also active in the US over Gulf War Illnesss that they claimed was essentially the same somatic disorder as CFS, as they define it. Need for a sickness role, secondary gains etc, were pushed as the real reasons behind the Sx in ME/CFS, GWS/I and more.

    tc, Tansy
  4. brains

    brains Member

    they are right we need exercise very much it helps to cleanse the blood and keep our muscles from wasting .you just have to take it slow as you continue to progress you will see that your body wants and loves it.WE NEED IT MORE THEN YOU COULD EVER KNOW!!27yrs with cfs
    [This Message was Edited on 11/20/2008]
  5. wendysj

    wendysj New Member

    4 Years ago they diagnosed me... They said they couldn't treat me. I needed to find a specialist in Atlanta (where I live). It took 4 years to find a Rheumatologist that diagnosed FM with it. She told me to excercise as well. Go very, very slowly and it will help... after 6 - 9 months.

    I'm going to try it. I've tried everything else. I still work full time. If it starts getting in the way of that, I'm going to give it up. Working is hard enough as it is.


  6. fibromickster

    fibromickster New Member

    It really does help to exercise. I am not talking about jumping jacks or situps, but simple stretching, leg lifts and walking. Those are all good exercises, however, I can't stress doing stretches throughout the day. That is the best think for you.

    It definetly won't cure us but after doing it for awhile and sticking with it it really does help. Good Luck.