MCWPA Moving Forward: Actions Completed, $ Raised, $ Needed, & Progress Rpt

Discussion in 'Fibromyalgia Main Forum' started by puggles, Mar 23, 2011.

  1. puggles

    puggles New Member

    --->> ME/CFS Worldwide Patient Alliance ( Moving Forward, Actions Completed, Money Raised, Money Needed, and Progress Report.

    Reposted by Puggles since this is critical information:
    PLEASE Read so everyone knows what MCWPA has done and is going to do. So much done in so little time and yet more to do especially in the next couple of VERY critical months. Read and get involved in any way possible!

    2,172 Members as of 25 March 2011

    Moving Forward --- Posted by Tina Tidmore at 12:12pm 24 March 2011

    The MCWPA team is moving forward with the actions you said you wanted to accomplish in the first half of 2011. Next action:In the January survey, sending letters to other patient organizations that are now linked to XMRV was high in the survey response. So we are ready to start on that. The first and obvious one is prostate cancer. We would like to ask for any patient who would like to help in writing this letter, please contact us at

    Action Completed:
    Doctors Need to Know (report- we were informed of people all over the world who mailed letters to their doctor. Over 1,000 viewed the instructions on the MCWPA Patient Discussion board.)

    Money raised for actions:
    We have the money for the press release to be distributed internationally through a wire service of the next big biological finding. It has been "pre-written," waiting for the published study. We have the money for the Public Service Announcement to be distributed to cable networks in May.

    Money needed:
    We need $1,450 more for the print ads on May 12. (Goal for this project was $3,000- total of 20 ads with the MCWPA contribution on each being $150.)

    See our Cause Page at:

    Progress report:We have at least four planned submissions for the Public Service Announcement contest. We hope to have examples posted for patient feedback next week. Please read all bulletins so you don't miss the opportunity.

    MCWPA Team

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