MD's, DO's, Internal Med.,GP's, Immunologist????

Discussion in 'Fibromyalgia Main Forum' started by Echos, Mar 4, 2003.

  1. Echos

    Echos New Member

    I am starting my search for a doctor and wanted to take a poll on who see's what. What type of doctor do you see for your Fibro and or Chronic Fatigue? Maybe I'm looking in the wrong areas of practice. Most rheumatologist treat FM but not CFS. Why, I don't know, but I'm finding that out through all my phone calls during my search. I'm being told a million (Okay,not a million) different things, and my head is spinning in all different directions. If you list the type, could you also state if it's for cfids or fm? Thanks for taking the time for this. Every little bit helps. : )
    SWAK's,
    Echos
  2. layinglow

    layinglow New Member

    I see a wonderful DO whose specializes in fibromyalgia, chronic fatigue, and chem. sensitivities. I have both fibro and cfs. He is truly awesome, willing to treat with conventional rx's which I need...and vitamins supplements and alternative...treatments...
    I have been seeing him for 5 months, my systemic candida is cleared up, my IBS 95% better, sleep better, pain under control, restless leg syndrome gone....we just started new protocol yesterday, at my appt. to work on the extreme fatigue, one of my last hurdles. I cannot sing his praises high enough! He stays abreast of all the latest research, and has a client base large enough, thus creating experience, that is so neccessary. I was going to Internal meds, endocrinologists, Infect. Disease specialists..prior to finding him and getting nowhere, fast. They would not acknowledge fm/cfs as valid diseases, wouldnt not offer treatment, and did absolutely nothing to help alleviate pain. Best wishes,LL
  3. Lendi

    Lendi New Member

    Well, my neurologist diagnosed me with CFS and a sleep disorder. My PCP agreed with the sleep disorder but said CFS is bunk(obviously I fired him), and a rheumatologist diagnosed me with FM. The rheumy is the one who seems to be progressive about treatment, maybe. I just saw him a week ago and I'm suppose to go back next week for blood test results and he said he would be changing my meds then. In the meantime, I'm looking for a new PCP that believes in CFS/FM. BTW, I assume I have both. If I had to say which I have, from research that I've done I would say CFS. But, evidently I have the tender pts. as well. Hang in there, but just wanted to remind you that you could get different diagnosis from different Dr. I didn't know that rheumy tended toward FM. That was interesting and held true in my case.
  4. Mikie

    Mikie Moderator

    Perhaps one of our members will know of a good doc. You can always go to our Home Page and check the good doctor list to see whether there is someone in your area.

    Love, Mikie
  5. TerriM

    TerriM New Member

    A D.O. is a Doctor of Osteopathy (or an Osteopath). They are medical doctors, but receive more holistic, well rounded training . . . they believe in treating the "whole person" vs. symptoms only approach. PCP is Primary Care Physician.

    As for doctors, I've actually been to about 18 of them at this point . . . for me mostly they have ruled out things in their area of expertise. My Endocrinologist has actually been the most helpful to me because there are endocrine problems associated with CFS and he is very knowledgeable and believes I'm sick. For FMS Rheumatologist should be helpful. Of course at the beginning I had no idea what I had so that is why it ran this course. My CFS occurred following abdominal surgery . . .

    family practice
    internist
    neurologist
    psychologist
    gynecologist (dr. who performed surgery)
    pulmonologist
    cardiologist
    allergist (wouldn't do testing)
    endocrinologist
    urologist
    d.o.
    pituitary/hypothalamus specialist (endocrin also)
    geneticist (I have Ehlers Danlos Syndrome)
    allergist
    rheumatologist
    immunologist
    otolaryngologist
    infectious disease
  6. Echos

    Echos New Member

    Good Morning Lendi,

    I worked for many of rheumatologist whom believe that CFS is not an illness, but in fact a state of mind that can be cared for by counseling. Almost all Rheumy's do care for Fibro patients, though many of them did not want to address that either until The Gulf War Syndrome Started. And I'm glad those with fibro finally got the acknowledgement the desereved. But going to a Rheumatologist for CFS is like going to a dentist to treat a cough. I'm not understanding why it is not recognized by many doctors that treat one and not the other, that they are so very similar in origin. They could almost be one in the same but with a few more symptoms with one and a few less with the other. During my search for a doctor, I am finding that the reactions I get when I say Chronic Fatigue Syndrome, are that of humor to some and ignorance to another. It becomes difficult to know which type of doctor is your best choice for your care. I don't want to be humored, I don't want to be pointed in the direction of Behavioral Health and I most certainly don't want to be told that its depression end of story. I want a doctor that will take me at my word when I say something is very wrong and yes my porch lights on but someone is home. It has become next to impossible to know which door is the correct one to walk through. Sooner or later, I'll find one door that someone left ajar.
    SWAK's,
    Echos
  7. Echos

    Echos New Member

    layinglow
    (167)
    Doctor Search 03/05/03 01:40 AM
    I see a wonderful DO whose specializes in fibromyalgia, chronic fatigue, and chem. sensitivities. I have both fibro and cfs.

    Good Morning to you LL.
    Thanks for the reply. You are very lucky indeed to find a doctor like you have. Most people I know and don't know are telling me to check into a DO. I've been to 4 now, and have had the worst of luck with all. The doctor whom diagnosed me was a DO. He recently passed away shortly thereafter. At the time, I didn't realize finding a doctor would be a challenge, because I did know a lot about what I was just diagnosed with. I've decided not to pay another co-pay until I have the right person to hand it to. I do know that some Internal Medicine Doctors subspecialties are that of CFIDS, it's just finding out which one those are. I feel like I'm playing a game of Dodge Ball with these doctors. I'm getting really tired of getting slammed with the ball. I think I'd much rather play "Red Rover". Sooner or later someone will call me right over.....lol
    SWAK's
    Echos
  8. Echos

    Echos New Member

    mikie
    (2675)
    Moderator Anyone Else Here From The Phoenix Area? 03/05/03 06:11 AM
    Perhaps one of our members will know of a good doc. You can always go to our Home Page and check the good doctor list to see whether there is someone in your area.

    Hello Mikie,
    I've met a couple people from Phoenix, but still having no luck finding a doc. I did check the good doctor list and found none that are a provider through my insurance. Which is really too bad, because there was one on there that was somewhat in my area. Everyone here has been very supportive and helpful, and still trying to help for that matter. When working for a doctor, I heard Fibromyalgia on a daily basis, but never heard Chronic Fatigue Syndrome. When you think you know most of whats out there (illnesses) something new comes along and stumps everybody. Now it's time to wake up and smell the coffee all you doctors out there. For all of us. :)
    Thanks for you help Mikie. If you here of something, let me know.......lol
    SWAK's,
    Echos[This Message was Edited on 03/05/2003]
  9. Echos

    Echos New Member

    jellybelly
    (1207)
    Mine is a DO also 03/05/03 06:49 AM
    I have been seeing him for 9 years, he is great. He uses both meds and nutrition/supplements. He is always informed on the very latest they have to offer us.


    Hello jellybelly, thanks for responding. I see most here have DO's. I guess I'll start there in the phone book. I did find a couple of infectious disease doctors listed that treat both cfids and fm. But again, not on my insurance. It makes it difficult when I call these offices, because I instantly freeze up on the phone and the only thing that comes out of my mouth is blah, blah, blah. No wonder I keep getting referred to counseling......lol
    Thanks for the info jellybelly.
    SWAK's
    Echos
  10. Echos

    Echos New Member

    carla-nl
    (267)
    DO ? 03/05/03 06:05 AM
    Hi guys,
    Ehhhhh..... what's a DO ? and a PCP for that matter?


    Hello Carla-nl. What does the nl stand for? Terrim was right on the money about the differences in the types of doctors. A PCP is your Primary Care Physician. Each doctor studies a different array of Medical care and areas of treatment. The problem is, finding one that will treat this and not tell you that it's all in your head. Most here are seeing Doctors of Osteopathic Medicine, your DO. So this is where I will start and just work my way down the list.
    SWAK's,
    Echos
  11. Echos

    Echos New Member

    terrim
    (193)

    Hello and WOW! Your list is bigger than mine terrim. I'm surprised at the Endocrinologist being the one to take notice and believe you. So is this the one you see for cfs or is he/she by referral through your PCP? I wonder if my Neurologist would have any leads on a doc. I'll have to call her. The worst that can happen is, she'll just think I'm crazy.......lol
    SWAK's,
    Echos