ME/CFS Worldwide Patient Alliance (MCWPA) Updates

Discussion in 'Fibromyalgia Main Forum' started by puggles, Mar 30, 2011.

  1. puggles

    puggles New Member

    The MCWPA (www.mcwpa.org) has many updates that need to be posted.
    As you all know, the month of May is going to be HUGE for us sick people. So here goes with the posts from MCWPA.

    1) Time to Contact Patient Organizations! Public Service Announcements for Patient Orgs!

    http://apps.facebook.com/causes/posts/711549?m=90525af8


    Posted by Tina Marie Miller Tidmore 30 March

    May 2011 will be big for ME/CFS awareness. Awareness means getting the message to the public. One way to do this is through advertising, which leads to news coverage. We need your help in inviting patient organizations to do their part. You might send an e-mail to them that says:

    I am helping with MCWPA to bring awareness to ME/CFS in May. Ads are being designed now for local organizations to distribute or publish. MCWPA is designing the ads and offering to help with the cost. Please read either of these documents to see more information.

    "http://mcwpa.org/wp-content/uploads/2011/03/MCWPA-Awareness-Month-2011.pdf"

    "http://mcwpa.org/wp-content/uploads/2011/03/ME-CFS-Awareness-Month-ads.docx"


    Also, this is the form to fill out if you would like to participate: "https://spreadsheets.google.com/viewform?hl=en&formkey=dHpfNFdqNjZWNEZaUWFOS3RBOFZtU3c6MA#gid=0"

    Tina Tidmore
    MCWPA Administrator (www.mcwpa.org)
    -----------------------
    2) Please give feedback on the four PSA Ads that have been done for the public on the TV stations.

    http://forum.mcwpa.org/viewforum.php?f=8

    PRINT and VIDEO ADVERTISEMENTS in the Forum on www.mcwpa.org
    PLEASE SEE THE PUBLIC SERVICE ANNOUNCEMENTS AND GIVE FEEDBACK!!!
    --> We need everyone to give feedback on what they think. After April 3, we will begin the voting process and every single person has a vote and voice.

    http://forum.mcwpa.org/viewforum.php?f=8
    WWW.MCWPA.ORG - PRINT AND VIDEO ADVERTISEMENTS LINK TO THE PSA VIDEOS.
    Look at the PSA Entries on Youtube - all about 30 seconds so they are quick - PSA must be quick.

    http://www.causes.com/causes/511536?m=f042604e

    Your Voice on Public Service Announcement
    Posted by Tina Marie Miller Tidmore at 10:25pm yesterday
    The MCWPA team is pleased to announce that five entries have come in for the public service announcement contest. We are now inviting the patients to go to the Patient Discussion Board and give their feedback between now and April 3 at midnight EST.

    http://forum.mcwpa.org/viewforum.php?f=8

    You will find it under Print and Video Advertisements with each entry having a separate thread.

    After April 3, the contestants will decide what, if any, changes they will make. And then you will be able to vote on which one you prefer.

    This PSA is going to be distributed to T.V. stations around the nation. A letter is being prepared now to be given to patient organizations asking for help in getting the PSA to the cable companies. We would also like to have print advertisements in newspapers across the nation that is designed in a similar look and message to the PSA that wins the contest. MCWPA will be giving $150 per advertisement in co-op money with local organizations pay the balance.

    Our goal for the print ads is $3,000 for 20 of them. At this point, we need $1,400 more.

    Action request 1: Please post this message on Facebook, message boards and every other place on the Internet you can find to get more input. We would like to see this blasted everywhere.

    Action request 2: Please donate at least $10 toward this cause.

    MCWPA Team
    (Posted by Puggles for MCWPA Team)

    3. Posted by Tina Marie Miller Tidmore 28 March via Puggles.

    The MCWPA team is pleased to announce that five entries have come in for the public service announcement contest. We are now inviting the patients to go to the Patient Discussion Board and give their feedback between now and April 3 at midnight EST.

    http://forum.mcwpa.org/viewforum.php?f=8

    You will find it under Print and Video Advertisements with each entry having a separate thread.

    After April 3, the contestants will decide what, if any, changes they will make. And then you will be able to vote on which one you prefer.

    This PSA is going to be distributed to T.V. stations around the nation. A letter is being prepared now to be given to patient organizations asking for help in getting the PSA to the cable companies. We would also like to have print advertisements in newspapers across the nation that is designed in a similar look and message to the PSA that wins the contest. MCWPA will be giving $150 per advertisement in co-op money with local organizations pay the balance.

    Our goal for the print ads is $3,000 for 20 of them. At this point, we need $1,400 more.

    Action request 1: Please post this message on Facebook, message boards and every other place on the Internet you can find to get more input. We would like to see this blasted everywhere.

    Action request 2: Please donate at least $10 toward this cause.

    MCWPA Team
    http://www.causes.com/causes/511536?m=f042604e
    www.mcwpa.org

    Please also join us on FACEBOOK! Friend people like Tina Tidmore or Kathryn Stephens or SarahmcG or Karen Ravitz. All nice people and all involved in the MCWPA team.
    Get involved in advocacy in tiny bits! We all are sick as well so we do things in small amounts and back eachother up.
  2. skeptik2

    skeptik2 Member

  3. skeptik2

    skeptik2 Member

    Some of you may never been involved in advocacy for your
    illness; NOW is the time!

    Do check out mcwpa.org and join in the activities. You may
    feel better for it, as self-esteem and belief in helping others
    is vital to our welfare.

    There is no better way to do this if sick and disabled, than
    just from out beds in some small way.

    Hope to see you around there.

    skeptik2