Discussion in 'Fibromyalgia Main Forum' started by schaken, May 25, 2008.

  1. schaken

    schaken New Member

    Hi all,

    Wanted to let everyone know that if you have any changes in the way you feel to please, please see a Doctor.

    I have been have pressure on my chest for years. Related to FM

    Then when I lay down my heart would feel like butterfys.

    that lasted for months.

    We the 21st I started having dizzy headaches. This about 15 times in 2 1/2 hours. Stupid me I didn't want to see the Doctor thaought it was not eating right, FMall the typical excuses.

    When I got to the ER my heart was beating over 200 times a minute.

    My electrical current was over acting in my upper ventricules. (This is what I understand) The ER docs and the next 4 doctors in the ER, ICU and the regular ward said that I should have died. So everyone please listen to your body.

    I am now at home but I am on heart medication for the rest of my life.

  2. schaken

    schaken New Member

    Glad to hear that someone out there works the emergency room. I was seen in Triage as soon as I arrived by private vehicle. Then stat to a room then seen by a wonderful doctor and team of nurses.

    My heart had to be stopped to get it back in rhythm. Took 2 doses. I was out about 30 deconds. Spent 2 days in ICU because of that.

    I thank God for my husband and the emergency room team. You are all angels.

  3. Susan07

    Susan07 New Member

    Good reminder Leslie, it is so easy to chalk many things to "oh it's just the FM".

    Glad you made it through.

    Take care
  4. schaken

    schaken New Member

    Hi all,

    I did not feel like a heart attack or stroke was coming on. All I had was chest pressure. No high blood pressure. Then it went to butterflys in my chest and several days later I started getting dizzy. Please
    everyone listen to your body for any changes. If one Dr says that it is just FMS and then another symptom comes up see the Docotr again.

  5. doloresf1

    doloresf1 New Member

    This is such important advice. Thank you for posting. I'm so glad you are alright!

  6. schaken

    schaken New Member

    Have to see my PCM tomorrow and also have lab work done. I will be referred to a cardiologist. Don't know if I had a heart attak or the beginning of a stroke.

    All I know is that if I hadn't gotten dizzy I would NOT have called my PCM.

    Hope that this keeps everyone alert and aware. Please don't think that it is just FM>

  7. momof27

    momof27 New Member

    they say the big one comes about one year later well times up so we'll see soon, hpoe I beat the odds swollen glands every where right now neck collar bone etc.
  8. schaken

    schaken New Member

    How do you know if it is a stroke or not? I'm pretty dumb about this stuff.

    Thanks in advance

  9. tonia1990

    tonia1990 New Member

    Thanks for posting this good advise!
  10. marti_zavala

    marti_zavala Member

    stroke sometimes manifests as slurred speech, being incoherent.

    There is a fascinating video about a brain researcher describing a stroke.

    My mom is bilingual and when she had a stroke, she reverted to spanish which my niece cannot understand. That's when they knew something was wrong and took her in.

    It would be good for you, when you get time, to research the warning signs so that you and your loved ones can recognize the signs.

    This is good advice for all of us.

  11. schaken

    schaken New Member

    Thank you all. Still don't know what happened. But justwanted to put out the waring.

  12. Goldyfm

    Goldyfm New Member

    As a heart patient, I had an episode from a reaction to a steroid epidural. I know personally how important not passing off a new symptom can be. It is always better to play it safe, rather than be sorry you waited. I know how varied the symptoms of FMS can be in each individual. If you have some new episode, always have it checked! Thanks for the reminder.
  13. schaken

    schaken New Member

    I see my PCM tomorrow. I will probably be sent to a cardiologist.

    I also have a colonoscopy schaeduled to the 11th of June. I have 2 blockages in my colon.

    Everything happens at once.

  14. Goldyfm

    Goldyfm New Member

    I do hope you get a good report. I know how hard it is to deal with multiple health issues. You take care of yourself.
  15. CanBrit

    CanBrit Member

    That's pretty scary. My son was diagnosed with WPW Syndrome (Wolfe Parkinson White) when he was 10 years old. During his first attack, his heart rate was over 200.

    We were lucky that at the small hospital in our town, the ER doc was young and had done a rotation with specialists who treat the condition. He was put on medication as well.

    We were fortunate that the Dr's at a near by University Hospital were developing a procedure through ablation (they put a wire in through his leg). Our physician suggested we wait a few years for the procedure to be perfected.

    Four years later, he had the procedure done, where they closed off the extra electrical bundles in his heart and he's been fine ever since.

    Has there been any mention about medical procedures that could eliminate your condition?

    All the best,

  16. schaken

    schaken New Member

    Dr says that this is what I have.

    Could have been caused by smoking (30 plus years) quit in Dec. To much caffeine. I know I should be using decaf tea and coffee but they got to expensive. (Now I can't drink them at all), and possibly medication as well as getting closer to 60,

    I now have some big lifesyle changes. No Caffeine, no chocolate, no salt and very little green leafy vegetables (Vitamin K)

    Have to get bloodwork every week, blood pressure every day, and see my Dr every 2 weeks. And if anything changes to go directly to ER.

    I houlgt FM was bad.

    They did say that I could go back to work though.


  17. libra55

    libra55 New Member

    For years I was told I had IBS related to fibromyalgia.

    I ended up in the ER from severe diarrhea and fever. I got a big surprise. I found out I also have Crohn's disease IN ADDITION TO the FM.

    Many of the symptoms of FM are also crossover to Crohn's....the aches, the fatigue, the eye problems.

    Some days, I don't know which disease is causing what!

    I wholeheartedly agree, if it doesn't feel like regular symptoms it probably isn't. We can have heart attacks, strokes, GI bleeds, and other things not related to our FM.