Meniere's Disease

Discussion in 'Fibromyalgia Main Forum' started by acesk, Feb 19, 2006.

  1. acesk

    acesk New Member

    My Mom has been having some dizzyness and sore, plugged ears. They have done some tests and say its Meniere's Disease. She also has FM.

    They put her on antivert for the dizzyness. She is very depressed over it. Any ideas for any help with this disease?

    Thanks.
    Sue in Florida
  2. Summer3

    Summer3 New Member

    Meclazine is what is commonly used in canada. The condition is alot more common than you would think.
    Good advice to check on net but I think like anything
    take everything with "a grain of salt" . I too have the
    understanding that it does come and go so your Mom
    does have hope for recovery.
  3. Jeanette62

    Jeanette62 New Member

    Sorry to hear your Mom is suffering from Meniere's. I too suffer from a similar chronic vestibular disorder causing daily dizziness. I've been dizzy daily this time for over a year now. I was dx with FM in Sep.

    I've done a lot of research on dizziness and there are a few good website that explain it. There are 2 really good web sites that explain dizziness and vestibular disorders. http://www.vestibular.org/index.php
    http://www.dizziness-and-balance.com/disorders/index.html

    Joining an on-line support group for dizziness is helpful because they can answer a lot of questions pertaining to her dizziness symptoms. It helped me a lot. There are groups listed at vestibular.org. My favorite was Dizzinews. It also has a couple of experts that work in the field that answer questions. One is a vestibular rehab therapist and the other is a director of a very good balance clinic. Both are extremely knowledgeable and helpful as well as the members.

    Did her doctor set her up with a vestibular rehab therapist? Getting vestibular therapy can help retrain the brain to compensate to the mixed signals it is receiving. A good yoga or Tai Chi class can also help her learn some balance exercises.

    Going for short daily 10 minute walks helps the brain compensate. Don't avoid movements that make you dizzy or the brain won't compensate, just don't over do it or do it a little less while the brain is relearning and processing the signals again. Taking antivert long term can prevent the brain from compensating for the mixed signals so be aware of this.

    It takes time for the body to adjust to an inner ear problem, but it can go into remission.

    Good luck to you and you mom.

    Jeanette


  4. BabiCati

    BabiCati New Member

    My mom was diagnosed with this more than 20 yrs ago and given duretics to remove the excess fluid in her ears, after a couple of years it went away by itself... for some reason after the treatment she received she went into "remission". Hope this helps.
  5. Cromwell

    Cromwell New Member

    Also removes excess fluid in the ears and helps the FM. I have daily dizziness and thanks to Jeannette will be having lots of tests by qualified specialist this Wednesday. The sites she mentions are excellent.

    Antivert is mecalazine by the way. Also low dose valium can help. I've had my dizziness following vertigo for 9 months now and I honestly think I could deal wiht the FM IF the dizziness would go away.

    It has gotten somewhat better, changed its appearance somewhat, so now the feeling I have is almost like that sensation you get when you are nodding off to sleep and jerk awake.

    I have been doing the vestibular exercises.

    My brother in Canada mentioned to me that when he had the vertigo then dizziness, dx'd Menieres, it turned out it was the thyroid and it has cleared up almost completely on thyroid meds.

    Ove Anne C
  6. mlrarr

    mlrarr New Member

    Sue,
    I have been having a problem with my ears also. I didnt know what it was though. At night and sometimes I can hear my heartbeat as my ears feel like they are pluged up. It drives me crazy. I get dizzy and feel sick. All my doc did for me is give me phergan for the sick feeling and told me to go to bed. I guess I better go see a different doc uh? I hope your mom gets some relief...
    Take care
    Melinda
  7. elsa

    elsa New Member

    I don't think it's caused by herpes virus ... at least docs never shared that with me. I always thought it might be somewhat hereditary as my grandfather, mother and myself had/have it. (grandfather past some time ago.)

    In my mother's case, it came on very suddenly ... she was walking down the hall and her world just turned upside-down. Very, very sick. After her diagnosis, she was given a diuretic too ... told to watch salt intake, etc.

    In my case, I don't recall any big event as an onset, it just "was". Maybe after watching my mom and grandfather deal with it, I had ingrained coping techniques that kicked in within a few seconds of virtigo hitting.

    I never got sick, but one was a close call ... found I could not do the IMAX theater type places. One at DiseyWorld had a surround screen of fighter jets going through a mountain range .... Oh, I don't think so! Not for someone w/ Meneire's.

    I barely got out of there .... once I did though and was able to focus on something vertical and stationary I was fine. Somehow, my Mom the Meniere's pro was able to handle that theater ... not me by golly and never again!

    It usually effects one ear more then the other. With me it always is my right ear that will have fluid build up. Tussi-bid will help me with fluid ... it is guai and a decon. ... can't remember which one at the moment. By an rx though.

    Tell her it will be alright. Like someone earlier said ... it seems to resolve or ease up after initial blast. It may be that medications and diet changes (low salt) plus a better awareness of what to expect, avoid and coping tips jus make it seem like it is fading. Either way, the big, bad upside-down, sick inducing symptoms do get better.

    Elsa
  8. acesk

    acesk New Member

    Thanks, everyone, for all of the great ideas. I'll let Mom know.

    Sue in Florida
  9. FMhurts

    FMhurts New Member

    My husband who has been disabled and suffered from ankolosing spondilitis for 26 years, was diognosed with meniere's disease three years ago he's been thru the mill with it, one specialist said it was a life long illness , he said sugar works the same as salt intake to avoid both.
    One specialist told my husband that menieres only lasts 2 to 5 years. From what I'm reading here evidently it does last a long time.
    He know longer can lay on his sides to sleep, only on his back.
    he avoids the balance excercises because it makes him so sick.
    He sees a ear, nose and throat dr. for it.But he's not to good.
    He's cut out sugar, thats bread and any carbs. and cut back on salt and it has helped a lot, but not cured it.
    On his real bad days I have to give him motion sickness meds. to knock him out.
    if any one does have any info on this please let me know as well." Me just another FM victum "