Message for Emayer

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Sep 24, 2003.

  1. EllenComstock

    EllenComstock New Member

    Hi:

    I saw that you have replied to the person who wrote about congestive heart failure. You said you had times of heart palpitations and feeling like you are going to pass out. I am 44 now, but when I was 16 I had my first heart "episode". Off and on through the years my heart would just suddenly start racing. I would feel like I was going to pass out (never did) and it would make me feel sick. Sometimes it would last only a few minutes and sometimes an hour or more. I always had to lay down when it happened. I was checked and had an EKG, but the problem was never diagnosed. As I got older it began to happen more and more to the point that I was afraid to drive (it happened more than once in the car) go to the store, work, etc.

    Anyway, one time my husband rushed me to the emergency room during a particularly bad episode. The doctor on duty set me up with a heart specialist who diagnosed that I had a defect in the electrical system of my heart. The problem was, they had to determine exactly where in the heart the defect was before they could do surgery and they could only do that if I was being monitored at the time. I had to wear a heart monitor for over a month (wouldn't you know I never had an episode long enough for the monitor to record it, which was unusual for me). Finally, I had another episde at home, my husband rushed me to the hospital and they hooked me up and finally knew where in the heart the problem was.

    I later had laser surgery. They threaded a wire with a laser light at the end through a vein in my leg and burned the defective areas in my heart. I was awake for the surgery. They did give me some medication to keep me calm. Later in the day I went home and felt pretty good, just a little tired. I had to take it easy for a few days. Since that time (two years ago now) I haven't had any more troubles. Once in awhile my heart will start to flutter for a few seconds, but that's all. The heart doctor said that was normal and to expect that.

    Anyway, it sounds like this could be your problem. It is fairly common. I can't think of the name of it-it's long.
    I would get it checked out. Let me know how you make out.

    Ellen
  2. EMayer

    EMayer New Member

    You really shed some light on that for me...I had a EKG and also wore a halter monitor and like you it didn't happen at all while I was wearing it but the one time I got really scared and called 911 and the ambulance crew came just in time to catch it on a monitor for about 1 min. or so and they said that I was tachacardic and that when it was calming down, my heart was actually a stopping here and there!....Let me know if you can remember the name of the problem....thanks :)