message from 25% group uk app byron hyde as new patron and med adv

Discussion in 'Fibromyalgia Main Forum' started by simpsons, Nov 9, 2009.

  1. simpsons

    simpsons Member


    The 25% ME Group is pleased to report the appointment of their new Patron
    and Medical Advisor.

    We are absolutely delighted to announce that Dr Byron Hyde will be taking up
    the role with immediate effect.

    Dr Byron Hyde is leading physician and researcher specialising in Myalgic
    Encephalomyelitis (ME) and has worked exclusively with ME patients since

    He is the founder and chairman of the Nightingale Research Foundation which
    is dedicated to explore, understand and treat patients disabled with ME and
    is at the forefront of the struggle to draw a clear distinction between ME
    and the current definitions of Chronic Fatigue Syndrome. In 1992 he
    published the medical reference book still used by researchers
    internationally "The Clinical and Scientific Basis of Myalgic
    Encephalomyelitis and Chronic Fatigue Syndrome".

    Dr Byron Hyde is an outspoken critic of the role psychiatry has played in
    ME. His entreaty that "Psychiatrists should not ever be placed in charge of
    diagnosis and treatment of M.E. patients" is one we fully support.

    Dr Byron Hyde has been instrumental in bringing about recognition of ME as a
    serious illness and we feel he fully represents the interests and aims of
    the 25% ME Group. We are proud to have him as our Patron.

    We also take great pleasure in announcing our new additional Medical
    Advisor, Dr Nigel Speight, who, as you will read below, recently departed
    from AYME. We are extremely pleased to have Dr Speight on board as he is a
    highly respected medical professional within the ME field and a great
    advocate for the biomedical view of ME.

    Below we have posted resignation letter from Dr Nigel Speight to AYME (Young
    Childrens' ME Charity) for your information.

    "Dear all

    I just thought I should inform you officially that after a long and happy
    association with AYME I have decided to resign as their Patron. Without
    going into too much detail I would say that over the last couple of years I
    have become aware that they have changed their position on several areas and
    that our views have accordingly


    In particular AYME seem to have become more willing to collaborate with the
    medical and psychiatric establishment in order to appear respectable. This
    appears to have been the cause of AYME's relative enthusiasm for the NICE
    Guidelines, which most of us feel involve an overemphasis on CBT and GET.
    This compromise seems to have helped the

    psychiatrists to get a new lease of life.

    The result of all this is that AYME appear to have alienated themselves
    from most of the other ME charities (with the exception of AfME who appear
    to be taking a similar position). In this controversy I feel more in
    sympathy with the rest of you.

    I have gained the impression that AYME no longer appreciate my opinions and
    prefer my status as their figurehead to be a largely

    silent one.

    It is a combination of all these factors that has caused me to resign and I
    am sure you will all understand.

    With Best Wishes

    Nigel Speight"

    We are especially delighted to announce the new Patron and Medical Advisor
    for our Group because as many of you will know, both stand for the true
    recognition and research of ME (as opposed to including it along with other
    Chronic Fatigue conditions). They also are firmly opposed to any
    psychological intervention within the area of ME.

    We hope you will be delighted along with us regarding this news and please
    feel free to report or republish this information within your own
    publications etc.

    With best wishes

    Simon Lawrence


    25% ME GROUP

    21 Church Street



    KA10 6SQ
  2. karynwolfe

    karynwolfe New Member

    Amazing! Thanks for sharing!
  3. simpsons

    simpsons Member

    yes lum

    fantastic news just imagine the impact this will have byron is not on e to be messed with

    nigel speight is so motivated towards the children and helping them

    yet another good news for the uk this group need teh help with their poster girl having died i hope for the best for them

    shame on ayme action for young people with me that they have let the children down so badly that the brilliant nigel speight has had to leave them

    hope he got the mailing list so he can get the worst children
    who need it the most onto the 25% group

    can.t wait to see the action when they get going nhs will have a shock
  4. skeptik2

    skeptik2 Member

    Have you seen the outrageous response Hyde had to the WPI
    XMRV findings? I don't understand it. His book is at my bedside;
    I have always had the greatest respect for him, but his remarks
    disparaging the WPI have me really confused.