Might have ear surgeryanyone else with hearing problems?

Discussion in 'Fibromyalgia Main Forum' started by EllenComstock, Apr 6, 2006.

  1. EllenComstock

    EllenComstock New Member

    Hi, Everyone:

    The past few years I have been gradually having problems with my hearing. My audiologist told me last year I needed hearing aids, but I didn't really think I needed them. In denial, I guess. I went for my hearing test this year and she again told me I needed hearing aids in both ears. My high pitch noises haven't worsened since last year, but the low pitch noises have definitely worsened.

    I have noticed that I am having trouble hearing low noises, especially men talking. I am constantly asking my husband, father-in-law, and male students where I work to repeat themselves. I don't usually ask the male professors I work for to repeat themselves, but the audiologist said it was probably because they are used to talking louder when teaching. Women with soft voices are a problem, too.

    She showed me the hearing aids and put one in my ear and I hardly noticed it was there and it's not very visible. Of course at 47 years old, I'm not thrilled at wearing hearing aids in both ears. The hearing aids will help me hear better, but won't prevent my hearing from getting worse. I'm wondering if eventually I could go deaf? The audiologist can't predict how bad it will get, of course.

    She did say that there was possibly surgery that could help me. They would have to go in on each side and grind the bones that help you hear. It sounds kind of scary, but my husband said I should investigate all my options. I know he's right. The audiologist gave me the name of a doctor and I have an appt. for April 18. I'm a little nervous about the whole thing.

    Has anyone had this kind of surgery or at least had hearing loss like me? Thanks for any responses.

    Ellen
  2. sfrazier

    sfrazier New Member

    Hi Ellen first let me apolgize becouse i'm a bit off and my spelling is the first to go. lol. When I was a kid I had to have two ear operations. I always had a lot of ear aches and finally ended up at the Mayo Clinic. Anyways the first one was to replace the ear drum itself. seems the little tissue that covered it was gone. The second one was to go in and fix the bone. I haven't had any problems since then with ear aches or anything else. It really is a very simple surgery. I'm sure once you go see the doctor he can put all of your questions and worries to rest. Good luck....SueF
  3. wildflowers2

    wildflowers2 New Member

    I am hearing impaired and have tinnitus in both ears.
    I got sucked into surgery 20 yrs ago and IT DID NOT WORK!!!!

    Tinnitus doesnt go away you learn to mannage it.
    GO with the hearing aids.

    The digital ones behind the ear. I can hear better than I ever did.

    I REPEAT I WOULD NOT HAVE IT DONE!!!!

    Even IF you entertain the ideas...GET several oppinions.

    THey told me too I would MAYBE hear better *laughing*

    It was a50/50 chance if it worked. and after I had it done.
    to have it re done would be a 99/1 Id loose my hearing!!!

    They wanted to do my other ear at 50/50 and I said NO>

    I went with the hearing aids.

    there is a group called self help for the hard of hearing.

    go on thier web page its a wealth of info.

    the group is calles SHHH


    good luck any questions ask me.

    I am 49 by the way.



  4. EllenComstock

    EllenComstock New Member

    Thanks for the responses. I used to have titinitis, but haven't had it for a long time. I've been wearing a tooth guard at night because of grinding and my audiologist says that sometimes this eliminates the titinitis. I'm so glad it helped that. It really is so annoying. Sorry to the one person here who the surgery didn't help their hearing or the titinitis.

    To the other person who said the surgery helped them-thanks for the encouragement. It sounds like maybe the surgery isn't as scary as I thought. I will go to my appointment with an open mind. Right now I don't have a lot of information as the audiologist wasn't able to give me much. All she could give me was information on the hearing aids.

    Thanks again.

    Ellen
  5. Jordane

    Jordane New Member

    I have had hearing trouble all my life it seems.Been to several Drs.But nothing they can do.Have 30% hearing in left ear,and 30some in my right.It was passed down to me,thru the family.
    I was told years ago to get hearing aids,but cannot afford them yet,maybe later.
    Low sounds are impossible to hear.Someone who talks softly is out of hearing range,I watch their lips and try to catch what they are saying.Or a whole bunch of people together is very tricky.
    Really hope the surgery helps you!!!May God keep watch over you,to help you thru this!
    Take Care
    Jordane
  6. EllenComstock

    EllenComstock New Member

    Thanks so much for taking the time to give me this information. I will definitely look into this website and possibly the booklet.

    Thanks again.

    Ellen
  7. wildflowers2

    wildflowers2 New Member

    No problem. I know first hand how frustrating it is.You see I have been hearing impaired for over 16 years.

    ANy questions just ask me.

    Go to the web page a WEALTH of info. I joined to get the monthly magazine and there are SO much helpful information.


    I have also been fired because of my hearing impairment.

    And since the ADA changed I cont do nothing about it.




    Wildflower
  8. EllenComstock

    EllenComstock New Member

    That's awful that you lost your job because of being hearing impaired. Years ago, I worked in an office that had a lady who was deaf. She did fine, but of course couldn't do some things like answer the phone.

    Ellen
  9. Malteaser1955

    Malteaser1955 New Member

    I'm sorry you're having such problems. I have tinnitus and was diagnosed by an independent hearing specialist in UK a few years ago with Otosclerosis, which is the abnormal growth of bone of the middle ear. It causes reduced hearing at the low end of the range of sound, so as you say hearing men's voices becomes harder. However in UK when referred to the hospital they refused to recognise any such problem, probably because it would involve cost, it's really bad here.
    I have managed to just carry on at the moment, but crowded places and low range tones can be difficult. I was advised by the independent specialist that surgery was possible, but not always successful, often resulting in deafness if not successful. Without surgery hearing will reduce over the years only at the low range, so I opted not to go for it, until I really need to consider it.
    I would not wish to be in your shoes making such a choice, but if advice is better and outcome more successful in US, perhaps I would consider it more if I lived there.
    Good luck with your decision and outcome if you opt for it.
    Best wishes
    Rita x
  10. EllenComstock

    EllenComstock New Member

    Thanks for the information. That explains why they have to grind some of the bone. It sounds scary, but some of the people here have said it's not a real serious surgery. I'm so sorry you are not able to have the surgery.

    I'm not here on the weekends, so if anyone else responds, I won't be back until Monday morning.

    Thanks again.

    Ellen