migraine attacks

Discussion in 'Fibromyalgia Main Forum' started by kinkypinky23, May 10, 2003.

  1. kinkypinky23

    kinkypinky23 New Member

    I had an extremely unpleasant migraine attack recently that scared my doctor, he thought i was having a stroke.

    It turned out to be a migraine that left me temporarily paralysed and partailly blind for a few hours.

    Is migraine a symptom of cfs/fm.? how bad have your migraine attacks been?

  2. kezza_nottm

    kezza_nottm New Member

    I suffered my first major migraine attack a couple of days ago and i thought i was suffering from a stroke also. i was checked in the hospital and everything was fine.

    They are extremely nasty at times and the best thing is if you feel one coming on take some paracetamol or aspirin straight away it usually prevents me getting an attack

    kez
  3. amaryllis

    amaryllis New Member

    I have had them since I was a teenager. Bad ones, but never quite that bad, although I have been in the ER for them. The best "home rememdy" I have found when I feel one coming on is a Coke and a couple of aspirin (if you can drink cola and take aspirin).

    Please talk to your doctor about migraine medications. There are so many prescription medications out there on the market nowadays to help ward off attacks or stop them in their tracks. He should know this! If he doesn't, please get a referral to a neuorologist.

    Be well...

    ~A
  4. Aisling13

    Aisling13 New Member

    I have had migraines since 1994. I saw family Dr's and a nuerologist and they put me on meds but I suffered so bad. Last year I found a book at the library that finally helped me. The triggers for my migraines are MSG, BHA, BHT and sodium benzoate. In short- preservatives. If you read all food labels you will find that most foods contain these ingredients. Anything prepackaged or frozen. Any thing quick and tasty! Even bottled drinks have sodium benzoate in them. I have a list but I'm not going to type it now. If you want the list and can't find it on the net I will type it out. I will give you an example of how I live. Keep in mind I went through two boxes of imitrex (at 100.00 a box but co-pay was 60.00) and a bottle of pain meds a month. Now I can go six months without refilling my rx. I rarely take the pain meds anymore. I don't eat at any restaraunt that may cook pre-packaged food. I only eat McDonalds. I never eat anything there except fries and a hamburg. Most salad dressing contains preservatives. I don't eat any potatoe chips except the organic no preservative kind. I make everything myself from scratch. I don't buy any prepackaged food. I don't eat chinese. (no soy sauce) Get the pic? It was a drastic change and sometimes people make fun of me. BUT I have enough pain without the migraines. If this works for you it is worth it. Keep a food diary and note your symptoms. Write down everything you eat and how you feel 20 minutes up to the next day. I usually can tell within 20 minutes. My mother has the same problem. If we go to a family outing and eat the same food we both will have headaches. I used to think it was the stress from going someplace unfamiliar that caused my migraines. It wasn't. It was food allergies. Good luck. It is so hard in the beginning. It was worth it to avoid spending days in bed with tunnel vision and pillows and blankets over
    my head.
  5. CATLADY912

    CATLADY912 New Member

    I had a extremely bad weekend about three weeks ago where I had a migraine for 3 straight days. This was the worst one I had in years. I was throwing up and the medication was not working. I thought that I was going to end up in the hospital. I have a drug that is old called Bellegral, its a greenish color and i take two when I feel the migraine coming on. I also take a muscle relaxer to relax the muscles in my shoulders and neck. Then I get a very cold face cloth and put it on my forehead and lay in the dark. When this fails I take a demoral with phenergan in it (I actually take 2) and than lay down again.

    Migraines can be very nasty. To avoid them you have to find out what causes them besides stress. Mine are brought on by lots of stress, certain smells and certain foods. One time about 4 years ago I had one ever day for a month. Plus having fibro also brings them on. We can't always live a stress less life but we have to do whatever it takes not to get ourselves stressed out or worried. I would say that most of the time the Bellegral and muscle relaxer and cold cloth help the most. But sometimes I have to take a heavy duty pain pill for it.

    They are now saying (my migraine specialist) that sinus headaches are really migraines.

    Hope this helps you.
    Gentle Hugs,
    Janice
  6. layinglow

    layinglow New Member

    Some other things that some find attract migraines are nitrates, and chocolate. Keeping a food diary is an excellent idea.

    There are prescription medications for the relief of migraines (I have found fiorinal effective, if taken early onset.) You might also want to look at an herb called "Feverfew". Many people take this on a daily basis for prevention, and have good results.

    Best wishes,
    LL
  7. lorgirls

    lorgirls New Member

    Hi,I get migrains also.I just got over a 3 day migrain and today is still iffy. I had about 3 or 4 episodes of thinking they were strokes. Once they gave me morphene and the other times ( different doc ) gave me a shot of demerol and a shot of muscle relaxer. They ran a CAT scan ( dye free . Im hightly allergic to the dye )and blood work etc.. and ended up just letting me sleep it off in the ER.It can be very frightning. Once I was taken by ambulance because whole left side went numb. One doc said it was an Ocular migrain.,Lori
  8. TaniaF

    TaniaF Member

    How can you tell the difference between migraines and sinus or tension headaches? Mine don't throb, my head and/or scalp hurts and I feel oozy. Sometimes my face hurts too.
    If I run to the dr. he just gives me a prescription for an antibiotic and says it could be a sinus infection. I do not have any drainage, nor totaly congested. I'm confused.
    Tania
  9. AnnetClo

    AnnetClo New Member

    where you get the pressure/pain across the nose and behind the eyes. But if I took OTC Sine-off as soon as I felt it coming on, I could avoid anything major. And as far as I know I've never had a "migraine". But about a month ago, I had a doozy. The pain started the same as always - across my nose and behind my eyes. But I took the Sine-off about noon and it didn't help. So about 6 I took another one and about 10:30 I took another one. I know this was sooner than I was supposed to take it but by then I was getting desperate. I didn't sleep a wink all night. I tried hot packs on my face, ice packs on my face, putting mentholatum in a cup and filling it with boiling water and covering my head with a towel and inhaling. Nothing worked. I would throw up and feel like the pain eased a little and then it would build up again and the pain went from my nose and eyes to feeling like the top of my head would explode from the pressure. I couldn't keep pain medicine or Phenergan down and I was too sick to go to the ER. I don't think I have ever been that sick. I was in the bed for 3 days with that sucker. And even after the pain went away, my whole face felt sore. When I told the doctor about it he just did the "hmmm" thing and didn't offer any suggestions about what to do in the future. But man, if I had those things on a regular basis I don't know what I would do. I feel so sorry for those of you who have to deal with that type of pain. And then I've heard that migraines are common with FM/CFS so I do worry some. Like I need something else to worry about it. Sorry I don't have any suggestions but just wanted to say how much I sympathize/emphathize with you.

    Hugs
    Annette
  10. Plantscaper

    Plantscaper New Member

    I went to a Headache Clinic staffed by neurologists, and a simple supplement helped me more than any physician..Called Olive Leaf Extract..look at articles on the subject from PatPalmer

    Plantscaper
  11. pam_d

    pam_d New Member

    ....are on one side of your head; mine always occur on my right side, hurting my ear, eye, etc. on that side only. But there are a lot of migraines that do not fall into the "classic" category. I use Maxalt for mine & it is very effective, but mine are standard migraines. I think I would definitely see a specialist for these more severe, atypical migraines, like a neurologist, or go to a headache/pain center for treatment.

    Good luck, I hope you get some relief from these!

    Pam
  12. aching

    aching New Member

    I have had classic migraines since I was 5. Sometime my aura is so bad it looks like I'm in a blinding snow storm and can't see anything. When I was 8 months pregnant I had one at work that left me with aphasia. The left side of my face dropped and after awhile i not only could not speak, i could not think. Thankfully this passed. Scary. Must of had something to do with hormones. I find if I eat cheese and chocolate on the same day I get them, or any red wines. Since I've been on elavil I have had only one. This is the first time in my life
    that I have been free from them. It's wonderful.
    Piper