Migraines FM

Discussion in 'Fibromyalgia Main Forum' started by abcanada, Oct 13, 2006.

  1. abcanada

    abcanada New Member

    I'm new to this in a sense. I've been dealing with many symptoms of FM for a few years. My biggest problem is with daily migraines. I've been through all the specialists, and seem to be leaning towards Fibromyalgia as my diagnosis. It all began during my last pregnancy almost two years ago. Migraines one day, and I've had them almost daily since. I'm wondering how many of you suffer from severe disabling migraines. It has been a difficult time for me trying to raise four young children, then to have this take over my life! If you could let me know what has worked for you, I'd appreciate it.
  2. Redwillow

    Redwillow New Member

    Hi Abcanada

    Welcome to our message board!

    Sorry you are having so many migraines. I understand how that feels as I get a lot of migraines too.

    I don't know if you have problems with sleep but my doctor decided that I was getting daily migraines because I never go into a deep sleep. I had a sleep study done that showed that I don't sleep properly.

    My doctor finally put me on amitriptyline at night. It is an very old anti depressant but on the low dose that I take it is used to help me sleep. I take 30 mg (started with 10 mg and worked up to 20 then 30) at about 8:00 pm so that by bedtime I am sleepy.

    Since I started to take the amitriplylene I am down to about 1 migraine a month. When I can feel a migraine starting I take imitrex and a lot of times that stops it. Both of these are prescription medications so you would have to talk to your doctor and see what they can do to help you manage your headaches.

    Raising children when you have FM is certainly a challenge. My FM got bad after my children we born too. Amazingly enough they both turned out to be wonderful children.

    hugs Redwillow
  3. pam_d

    pam_d New Member

    ...but when I get them, they're BAD and last 2-4 days on average. I use Maxalt (a triptan) very successfully, but that's not something you can take on a daily basis, unfortunately (and triptans don't work for everyone; in my case, discovering Maxalt allowed me to be able to return to work).

    They're much better now that I've gone into menopause (I had cancer recently & did chemo; I found out that chemo puts a woman my age into "instant" menopause)---the saving grace of this is, my migraines aren't as frequent, and they aren't nearly as severe as they used to be.

    Have you tried any of the preventative choices for migraines---like Topomax taken daily, for example? Maybe something to ask your doctor about.

    I hope you get some relief---I know how disabling these can be, and I wasn't getting them as often as you, but still, they can ruin your quality of life.

    Hugs,
    Pam
  4. jjoys

    jjoys New Member

    I get migraines a lot, but they're what my dr. calls "atypical", cuz they're not real severe. I've had severe ones a couple of times when I was younger, during pregnancy. Relpax and Axert have helped me.
  5. maedaze

    maedaze New Member

    I have been suffering daily for 12 yrs and i know exactly where you are coming from and i am so frustrated that they still don't KNOW how to fix a headache??

    I have heard amatryptiline works well with people also the stronger ones in that family, but i have sever side affects from them.

    I have been on an anti seizier med, epilim for the last two years which was keeping things under control, ( taken daily) but they were starting to wear off so was changed to verapamil which is for people with high blood pressure (mine is not high)

    But they have found it helps with some migrainers, because it changes the shape of the blood and oxygenates it. After 3 weeks on it and 2 trips to emergency I had to give in that it wasn't working. So am back on the epilim till i can get back to the nuerologist to sort something better out.

    Basicly it's just a trial and error, you need do find something you can take daily to keep headaches at bay but also you need to have in your cupboard imigran, don't know what it's other name is but you take it BEFORE things get too bad, and it quite often stops a migraine. But you seem to have to get it in time... It doesnt seem to work after the fact.

    All in all it is a long and expensive process of working with your doctor and trying one drug at a time until you find one that works and suits your body.

    other things to try is cranial osteo - that helped me for a few months and then didn't work any more, but others have had full time relief. physio, only with ones that know anything about headaches. I have worked with crystals, even past lives issues??? I mean i have tried everything and anything!! And am still suffering.

    I wish i had the majic answer, have heard some people are getting relief with botox being injected in the base of the skull. From what i have gathered the majority it lasts for about 3 months, then the next lot seems to only last 2 months and it gets less and less.

    But I am in a position right now that 3 months relief sounds like bliss. I am willing to try anything, so anyone else out there with anything that works, i am interested too.

    Good luck abcanada and i hope you find something real soon, headaches and migraines are just the worst to deal with.
  6. Lendy5

    Lendy5 New Member

    Hi abcanada - Welcome to the boards!

    I suffer from Migraines also and get daily chronic headaches. I have suffered with headaches since I was a young teenager and never knew what a migraine was until about 10 years ago.

    I've been seeing a neurologist for almost nine years and he is the greatest and is willing to try just about anything that will relieve them.

    Migraines normally attack a person with a throbbing pain on one side of the head and in my case it's always my left temple. They put me in the bed for at least 24 - 72 hours and sometimes Relpax or Maxalt (Triptans) will relieve it sooner.

    I also take Fiorinal contains aspirin, caffeine and
    fenobarbital. This really is the best I have ever taken for my headaches.

    Also get you some migraine ice patches or put some ice packs in your freezer and when you feel a bad headache coming on lay down and put that on your forehead.

    There are so many triggers that can lead to migraines such as certain foods, red wine, aged cheese, smoked fish, chicken livers, figs, and some beans, MSG,bacon,hot dogs, and salami, Other foods such as chocolate, nuts,peanut butter,avocado,bananas,citrus,onions,dairy products and pickled foods.

    I have had to cut back on so many of these products and it has helped some but I found out that my blood pressure was causing a majority of them so I also take a BP med to prevent as many.

    Sorry to be so long but I understand and hope you find relief.

    Love & Hugs!
    carolin
  7. abcanada

    abcanada New Member

    I appreciate everything that has been suggested. I didn't give too many details before, but have tried every family of preventative drugs, and they either did not help or gave me very unwanted side effects. I also have a blood clotting disorder which makes alot of the drugs such as Immitrex risky for me. Honestly, I've been taking Percacet which alot of docs frown upon, except my own who finally realizes what I go through. Just today on the National FM site I was reading that drugs like these pose no risk for addiction when used for severe pain. I agree with that, as I don't run to the med cabinet every morning. Instead I wait and take them when I feel headache beginning. It seems to be the only thing that puts a good dent in the headache, and relieves joint/muscle pain as well. Of coarse it doesn't take it away only relieves pain for awhile. I saw a Neurologist a few days ago who wanted me to try 800mg of Ibuprophen. That doesn't help either. I do have an MRI the end of Oct., at which time I will be relieved when they don't find anything. If I were on my own, I could "rot' away by myself, but since I have sooo much to live for I need to do what works.
  8. lenasvn

    lenasvn New Member

    You really should have gotten s script for something. I have tried a variety of things, but Imitrex is the only thing that works, although it's not a preventative. Some get help from Topamax which is preventative. I have had migraines since I was 3yrs old.

    I have sleep problems but that doesn't seem to have anything to do with it. Blood pressure, sunlight and dehydration seem to be the sweet triggers for me.

    Imitrex is a good start, you really should try it. A small dose like 25 mg should be fine, and if 25 don't work continuously, 50.

    Good luck, please ask your doc for medication. he needs to make sure you can funtion daily, and this is not a difficult thing for him to do.
  9. Redwillow

    Redwillow New Member

    50 mg of imitrex didn't even make a dent in my migraines. I take 100 mg of imitrex as soon as I realize a migraine is starting. Most of the time I still have to lay down in a dark quiet room and hopefully go to sleep to make my migraines stop even with the imitrex.

    hugs Redwillow
  10. lenasvn

    lenasvn New Member

    Just for the purpose of trying Imitrex for the first time, it is adviceable to start with a low dose to see how the body reacts to it. I take 100 as well!

    many hugs
  11. bkayisme

    bkayisme New Member

    hi ive had my migraines since iwas like 15 years old maybe a little younger but thats when i started to get them about 2-3 times a week on average i was pt on antidepressants to prevent them and i trie imitrex and that there i thought was going to kill me i couldnt take imitrex my heart went to my throat and chest pains maybe cause i have an extra heartbeat i dunno. but they put me on topamax to see if itd help for fm pain well it doesnt but a side affect from it is to help migraines ask your doc about that one too. let me tell you have a migraine a whole day first, stroblight effect then tunnel effect then you go blind then bam pain where you thnik youre head is to explode-all day long not letting up nausea then the next day you have migraine hangover why was this invented by god?! woouldnt wish that on an enemy, you know? well abcanada good luck!