Migraines

Discussion in 'Fibromyalgia Main Forum' started by earthdog2000, Jun 2, 2006.

  1. earthdog2000

    earthdog2000 Member

    Just wondering if anyone has some good ideas or treatments that work well for migraines. I have had a headache or migraine every day for the last 2 weeks. I'ts so frustrating esp. since it's the beginning of my week-end and I don't want to have to stay in bed again!!
    Help! Thanks, Julie (Earthdog)
  2. KateMac329

    KateMac329 New Member

    Your guess is as good as mine!

    I have had a migraine/cluster headache/tension headache since the day before Mother's Day. I am starting to feel insane! And I am serious.

    It hurts to look at the computer, hear my son cry, hear the phone ring, watch tv and sometimes even open the refrigerator.

    When it first hit I was drugged pretty heavily my the ER and my family doc but it never fully went away.

    I am sorry that I don't have any advice for you but I wanted you to know that you weren't the only one.

    Maybe allergies?

    I have been using ice packs and heat packs on my head and neck and taking more than I should of Aleve, Tyelnol, and Ibprofen.

    Hopefully someone will have some good advice!

    kate
  3. UnicornK

    UnicornK New Member

    I was taking verapamil to prevent them, but Monday night i fainted and my blood pressure dropped to almost nothing. Spent 2 days in the hospital. Now I don't know what I'll do.

    When I ahve a migraine I take an injection of Imitrex. Problem is, you can only take 2 injections a month. I think it can do something to your heart.

    I'm going to talk to my pain doc next week. In the meantime I'm praying that I won't have one.

    I hope something in this will help you. Talk to your doc. There are treatments.

    God Bless.
  4. Teerose

    Teerose New Member

    I have migraines, my DR. have me on zolmitriptan and it works great for me, maybe you can ask your Dr about(zolmitriptan) it.

    Teerose
  5. Cinlou

    Cinlou New Member

    I don't get migraines but my daughter does. She has had them since she was about 11, she is 17 now. She was using Imatrex only and still was getting more than 10 times a month.
    We made an appt. with a neurologist, he put her on Elavil, 25 mgs, and told her to use the Imatrex too, if she got a migraine.

    Well, she has only had ONE migraine in the last 2 1/2 months! We are so pleased. I don't know if you have tried Elavil, but it sure has helped.

    The neuro was so happy, he says he rarely gets someone that is that easy.

    I hope you find relief soon.
    Cindy
  6. jake123

    jake123 New Member

    I have added to my regimen of Topamax, Nortryptilene, Relpax, Indomethicin, Skelaxin - a herb/vitamin thing called Migravent. The neurologist I go to recommended it. You can get it off the internet.
    I haven't had any of those "little" headaches nor have I had a big one. I so hope this works.
    The Migravent has feverfew and butterbur and magnesium and B vitamins.
  7. starmom

    starmom New Member

    I have had migraines since I was 4 (first diagnosis of one, had htem earlier). My kids have all had migraines by age 6.

    Imitrex and other triptans are for treatment of migraines. They will stop a migraine, esp if taken at the first sign of one. If you have had one for a while the docs here may also give phenergan and a shot of Toradol (ketorolac). This will stop most long lasting migraines that have not responded to Imitrex.

    zomig and relpax are also triptans. There is a limit to how many you can take in a month, week, or day. Depends on which one. Maxalt is another med to stop migraines, but I believe it is ergotamine based, could be wrong.

    If you can take imitrex you can take more doses by nasal spray than injection, and more by tablet than by nasal spray. I can take up to 2 100mg tablets in a 24 hour period.

    Verapimil is a calcium channel blocker. This type of med is the 2nd choice in migriane prevention. It works very well for some people. There are other calcium channel blockers also.

    The first line of defense in migraine prevention meds is beta blockers. They lower your blood pressure, but also prevent migraines. Examples are propranolol (more expensive) and atenolol (dirt cheap). You will have to play with dosages and which one works for you.

    Another type of med for migraine prevention is anti-seizure meds. Valproic acid (depakote) is being used, but it has some pretty risky side effects. Topomax is also used. I had great luck with topomax for a while. But nothing lasts long for me.

    MAOI's are the last line of defense for migraine prevention. They have serious interactions with most other meds, and from what I have heard the side effects are not good.

    My neuro and my doc both say that if you get more than 2-3 migraines a month you should try preventative meds. Right now Lyrica seems to be working to prevent mine. I know it is an anticonvulsant, so maybe that is why.

    Without meds to prevent, I have 5-7 migraine days per week, every week.

    Hope this helps!

    Susie
  8. rachel432

    rachel432 New Member

    please look into the instructions for imatrex injections, i believe you can take more then 2 shots a month. i looked it up and the instructions are that you can only take two shots of imatrex a day seperated by at least an hour, there isn't a monthly limit. the risk with imatrex i believe is that it can increase you blood pressure.

    i also get headaches on and almost daily basis but imatrex didn't work for me. i take topamax 150mg daily and neurontin 900mg daily to reduce the severity of the headache. they have helped. when the headaches are really bad i go back to the old standby of taking vicodin for them. it helps a lot.

    i hope this helps.
    rachel
  9. bigmh

    bigmh New Member

    Hi Julie...you have gotten some really good responses here.

    For me, unbearable migraines 15-25 days/month are finally (after 5 years) down to 6-10/month with this preventative combination:

    50 mg nortriptyline (an old AD)
    60 mg inderal (blood pressure med)

    I am thankful that my 2nd neurologist just kept trying combinations of meds to prevent them (the 1st gave up on me).

    After I have the migraine, I take 10 mg Maxalt, sometimes with Torodol. If it's really bad, I use an Imitrex injection. At times I have gone to the ER for a shot.

    They are miserable things...I wish you the best and hope that you find something that works for you.

    Blessings, Ann
  10. woofmom

    woofmom New Member

    My migraines were bordering on unbearable. I decided to give benadryl another shot. So far for the last two nights I haven't been awakened by a headache.
  11. earthdog2000

    earthdog2000 Member

    Dear Kate,
    Thanks so much for your reply! It does help to know that so many other people have had this problem and the suggestions I got were really great. Read some of the posts and maybe they will help you too! I'm soooooo sorry you have been suffering for so long and I hope you find some relief soon. It's funny, someone on the posts said to try Lyrica and my doc just prescribed it to me for muscle and nerve pain. I took 150 mg. and slept better than I have in a very long time. The best thing is that I woke up with only a slight headache. Maybe this will work for me, I'll let you know.
    Thanks again, hope you feel better soon, Julie
  12. earthdog2000

    earthdog2000 Member


    WOW, thanks to everyone for all of your replies! I never realized that there were so many meds for migraines! The only one I ever tried was Imitrex and it made me feel soooooo loopy and tired yet I could'nt sleep! It's funny but my doc prescribed Lyrica for the bad muscle spasms and nerve pain I was having, esp. at night. I took one last nite and slept better than I have in a very long time and woke up with just a slight headache! I hope this works and will let you all know if it does! I think it was Rachel who said she was taking the Lyrica. How long have you been taking it and at what dose?
    Thanks again fellow suvivors,
    Julie (Earthdog)
  13. mrsjethro

    mrsjethro New Member

    My ob/gyn has terrible migraines weekly and I discussed with him because I was having them really bad and very frequently. He actually goes to a headache clinic. I have normal blood pressure, but he prescribed 25mg Tenormin, which is a low dose blood pressure pill. I took them for a couple of months and I haven't had but 2 migraines since then and it's been 7 months. I still keep the imatrex on hand just in case, but haven't needed it. I don't know if this works for everyone or not, but I sure did get relief from it. He also gave me several refills in case I need them again sometime in the future.

    I have also used Fiorinal in the past and have used a combination of Benadryl and Ibuprophen with a cup of hot coffee. They all sound pretty strange, but they really worked for me.
    Hope you find some relief!!!
    Mrs.
  14. usanagirl

    usanagirl New Member

    Look for the thread for Magnesium and Migraines...

    I believe I have explained the benefits of taking 600mg of magnesium per day.

    Let me know if you are unable to locate it.

    Truly,
    usanagirl
  15. cw

    cw New Member

    I believe the max dose for magnesium is 400mg a day. I recently started it and after 3 years of migraines/tension headaches I've has good relief. Also doc changed me to amitriptyline 150mg and Xanax 1/2 to 1mg day and 1 mg klonopin at bedtime for myoclonus. It seems like this combination works and don't know which med changed my Headaches, but I think the Xanax did it. Good luck..
  16. usanagirl

    usanagirl New Member

    My physician is a specialist in Nutritional Medicine and his recommendations are 600mg when you are taking a completely balanced high quality supplement...no toxicity concerns. He has a book called What Your Doctor Doesn't Know About Nutritional Medicine May Be Killing You...I highly recommend it.

    usanagirl