Mikie...about guai treatment

Discussion in 'Fibromyalgia Main Forum' started by seaview, Sep 19, 2002.

  1. seaview

    seaview New Member

    Hello Dear one,
    Thank you for reminding me about the guai treatment.I did read on it once(when I first found this board) but was left with some questions. So, if you could answer what you can I would greatly appreciate it. I am at my ropes and willing to try it. Did you have the mapping done? I do not have a doctor that can do that....does it matter? Did your doctor write script for guai?If mine will not can I still get it and if so...where? I am going to get the book so I can read again about it but I remember these were 2 big ?s for me. oh, how bad is the cycling for you...cant imagine feeling worse than I do right now.:) Is that possible...no,don;t answer that....forget I even said that:) I appreciate your time....Kathleen
  2. seaview

    seaview New Member

    Hello Dear one,
    Thank you for reminding me about the guai treatment.I did read on it once(when I first found this board) but was left with some questions. So, if you could answer what you can I would greatly appreciate it. I am at my ropes and willing to try it. Did you have the mapping done? I do not have a doctor that can do that....does it matter? Did your doctor write script for guai?If mine will not can I still get it and if so...where? I am going to get the book so I can read again about it but I remember these were 2 big ?s for me. oh, how bad is the cycling for you...cant imagine feeling worse than I do right now.:) Is that possible...no,don;t answer that....forget I even said that:) I appreciate your time....Kathleen
  3. Mikie

    Mikie Moderator

    My rheumy prescribed the Guai for me because he "heard it helps with FMS." He had no clue of the protocol, sals, etc. And, he didn't want to know anything else about it. He refused to even look at the book I had brought along. Now, my PCP prescribes the Guaifenex LA in 600 mgs tablets.

    My pain specialist has mapped me, but he never gave me the graphic. I have all the tender spots and then some that aren't even on the map. Unless I'm having a Guai flare, they are not particularly tender to casual touch. If I were to start irritating them, they would become very tender. I do have some newer spots which remain tender. I think the Guai starts removing the debris at the oldest sites first, but this is just an opinion/observation. IMO, it is not necessary to map, Pick a few spots and see how they respond after being on the treatment for a while.

    Yes, the Guai can produce some painful flares, especially in the beginning or when increasing the dose. That's why it's important to start off slowly. I have never had a Guai flare that was any worse than the ones produced by the illness itself.

    You can buy the Guai OTC, but the last I heard, it was only available in 200 mgs. However, I later heard that it was going to be available in 600 mgs tablets. Ask your pharmacist.

    I want to wish you luck if you decide to try this treatment. It is the only treatment which offers the possibility of reversing FMS. There are a few people here on the Guai treatment, including me, who will be here for you if you decide to do it. Good luck.

    Love, Mikie