Mikie, Klonopin

Discussion in 'Fibromyalgia Main Forum' started by greatgran, Aug 23, 2009.

  1. greatgran

    greatgran Member

    Mikie , just wondering how you are doing with weaning off Klonopin, I was keeping up with your post but haven't seen one lately or missed it. Are you still working and how are you doing in general? Would like an update if you don't mind as I have tried to wean off xanax but no can do.

    I have never increased my dosage but I do cut back from time to time and even tried to cut way back but I am not ready and may never be. This is the only drug that has helped get me out of the house so guess I will stick with it.

    My dosage is .05 three times a day but I break them in half and usually take 1/4 mg 4 times a day and an extra at bedtime if needed, most of the time I make it on 1/4 mg three times a day unless I have to go out or something more stressful going on.

    The reason I am going into this , my doctor moved and the one that has taken over does not give benzo's now he will dish out the AD's he just doesn't believe me when I tell him I can't tolerate AD's . I don't think he knows a thing about CFS so looking for another doc.

    Thank goodness I didn't take my full prescriptions but had them filled as I have extra since he was reluctant to write me a scrip..

    Hope you are still doing well as I seem to be going backwards but hanging in there..

    Thanks and God Bless,
  2. Mikie

    Mikie Moderator

    I hope your doc isn't expecting you to quit the Klonopin cold turkey. That can be dangerous. If it were me, I'd consider whether I wanted to wean off and if not, I'd find another doc who is more understanding. AD's absolutely do not take the place of Klonopin and one simply cannot switch from one to another.

    Weaning down was more than I can handle right now. Both times I tried, when I got to 75 percent of my 1 mg. dose, I got very jittery and my sleep was affected. Now that I am working part time, I just can't be in that condition.

    There have been some posts here about how to wean down. For some, it has taken close to a year to get off of Klonopin completely. Please do it very slowly if you decide to do it at all.

    If my healing continues, and it does seem to be slowly progressing, I may someday reach a point where I can wean down, but if I have to take it for the rest of my life, I'm prepared to do that. I do not seem to suffer side effects from it and it has, in many ways, given my my life back.

    Whatever you decide to do, best of luck to you. Hugs coming your way and prayers going up.

    Love, Mikie
  3. greatgran

    greatgran Member

    Thanks Mikie for your reply and happy to hear you are making progress, sounds like you have come a long way.. For now am sticking to my medicine as I am sometimes a basket case with it so not ready to even try to cut back.. like you I may be on it the rest of my life..

    God Bless,

    PITATOO Member

    I am off Klonapin now. Was on 2mg bid. Now am on 10mg Valium tid. He said it is easier to come off valium than klonapin. I was put on Klonapin 7 years ago becuase another Dr. said it was easier to come off of than Xanax. Argggghhh. So that probably puts me at 12 years on benzos. But I hear that Valium is easier on the liver and has a longer half life, plus I also did some research as why my blood tests showed me so low in phosphorus(Klonapin leaches it). At that time the Dr. had never seen anyone with low phosphorus. I am a 45 well tommorrow will be 46 yo male and have advanced Osteoporosis which I know is due the the low phoshorus and the Klonapion. But I am so tired all the time on the Valium. I find I can get by with half of what I was described and than take it if I must up to the 10mg tid. Dr. does not know but it is what works for me. Can't be falling asleep at the wheel or at work.

    Why are you going off of Klonapin, if I may ask? I don't see a need(in my case) to go completely off unless it is not helping me. Yes I would love to be drug(meds) free, as I know how they tax your liver and whole system and who knows the real long term impact of some of these. Good luck and please let us know how you do coming off. You are on such a small dose compared to mine. I did not think mine was that high but I guess it really is...Bobby

    PITATOO Member

    DId not read your post fully as why to go off it. I think benzos help by reducing stress hormones that really do damage to our muslces. One more think why I was switched to Valium was that it acts more as a muscle relaxant than klonapin. I was on SOMA and now off completely and I was taking remeron for sleep and off that(not sleeping 100% as good as I was) but I have dropped 15lbs since off the Remeron.
  6. greatgran

    greatgran Member

    Thank you for your reply.. I do not take klonopin I take xanax in the benzo family maybe i didn't make myself clear will reread my post.

    The only reason I was going to try to go off the xanax is I just don't like taking pills and the reputation it has.. I tried klonopin and it was to sedating and so was valium made me feel weird maybe the dose was to high .

    When I take xanax there are no side effects and they do help my anxiety/depression and the misery of CFS in fact it is the only medicine that I have found that makes a difference.

    So, just one of my crazy moods to go off because of what people think when you tell them you take xanax , like you are a drugy..

    I realize until I find something else that helps I will stay on them from now on..as long as the doc is willing to give them to me..The docs are getting so weird about benzo's, the doc I had has moved and the new one I don't care for..

    My Rx calls for .05 three times a day but I cut them in half ,maybe thats my problem I should take as prescribed..

    Hope my reply makse sence as my head is full of cotton this morning.

    Thanks and God Bless,
  7. Mikie

    Mikie Moderator

    I misread your post and thought you were trying to wean off Klonopin too. In any case, I think one has to wean off these kinds of meds very slowly, Xanax included.

    Target has faxed my doc's office three times to get a refill on my Klonopin over about three weeks. Doc hasn't replied. I found an old bottle of .5 mg. Klonopin pills, enough to last until I see him at the end of the month. That office is a mess but the pharmacist told me they all are.

    This week, I've been trying to get the Klonopin refilled, fighting with my health insurance co. to reimburse me for a bill I paid at an outpatient clinic, and fighting my mortgage company. They are trying to force me to buy Lloyd's of London flood insurance even though our bldg. is adequately insured through our assn. It was written up in the paper as just one more scams the banks are running to try to increase income for them and their affiated insurance companies. I've decided not to let it stress me out. No wonder I need Klonopin :)

    Love, Mikie
  8. greatgran

    greatgran Member

    Yes, with everything going on we do need out meds.. Its bad enough when you are healthy and young,not that you are old, but I am . So for now with all my family problems that I see not ending anytime soon if ever guess it xanax is what it takes then so be it..

    Hope you have your refill by now and things get straighten out for you. Keep me updated.

    Oh, the new doc I am seeing for now does not like to give benzo's which makes me feel more like a junky and I know i am not.

    Glad you had the extra bottle of klonopin, I always keep an extra just in case something like what happened to you happens to me.

    Do you mind telling me how much klonopin you are taking now, do you ever have the CFS crashes anymore .. I am having one this week and everytime I have one I think its the worse.

    Thanks for your help,
  9. Mikie

    Mikie Moderator

    I responded to you yesterday but the board was having problems. I pasted my response into a Word document to save it until the board recovered. I just retrieved it and pasted it back here. Oy!

    I have taken 1 mg. of generic Klonopin for most of the last nine years. For a while, in the beginning, I only took .5 mgs. but it wasn't enough. I've never built up a tolerance to the dose I'm on now.

    I never have the long-term, bone-crushing exhaustion like I did in the beginning. Now and then, I will come home from work and collapse on the sofa and go into a deep sleep. I wake refreshed. I never work more than six hrs. a day nor more than three days in a row. That way, if I am tired, I have at least a day to recover my energy.

    Healing hasn't been linear. Along the way, I've had the relapses which sent me to bed for days. I usually don't have a lot of energy now but I have enough for my job and personal life, taking care of my condo. I do not have much of a social life but that's OK. I used to be a party girl and it's out of my system. I haven't dated in more than seven years. I did a lot of that after my divorce and it's out of my system too. I spend time with my family when I can and I do socialize, on a limited basis, with my neighbors. They are good people.

    Best of luck to you. If my doc ever decides not to give me the Klonopin, I have my old specialist who will. Thank God!

    Love, Mikie
  10. Mikie

    Mikie Moderator

    Just wanted to be sure you saw this and know I responded to you.

    Love, Mikie
  11. greatgran

    greatgran Member

    Thanks for your reply.. I am so glad you are able to do what you do just being able to get out of the house a day or two a week does wonders for the mind.

    This has been a bad week for me , haven't been out of the house this week, couldn't sleep at all last night not even with the xanax, but that happens. My Rx is for .05 three times a day I usally take 1/4 four times a day which seems to work better for me but lately nothing seems to help.

    I have an appointment with a new Doc Monday and how I dread it , starting from the beginning and she may Dx. me with something different.. I do hope she is up on CFS I do know she is up on FM which so many docs think are the same but I totally disagree.

    We shall see now if I could just get some sleep..

    Thanks and God Bless,
  12. Mikie

    Mikie Moderator

    I hope you can get some sleep. Every now and then, the Klonopin fails me and I wake up once or twice during the night. It usually follows exposure to something which bothers me. They used epoxy to put in my new quartz countertop in the kitchen. That stuff has affected my nervous system and my repiratory system. Aack!

    Saw my doc today and he gave me the Klonopin and agreed that it is an excellent med for people with FMS and/or CFIDS. God bless him. Because of the progress I've made over the last nine years and the treatment options which have helped me get to where I am, he is glad to keep the ball rolling. I am so thankful for him. I am nowhere near well but, yes, I feel blessed that I can get out of the house and work a little. It can actually be five days in the wintertime or three this time of year. This week, I'm working four days. Thing is that I don't work many hours per day. That way, I don't get worn out and overworked. I've found out that for me, pacing myself is part of the plan. Working fourteen to twenty hours is ideal.

    Please, my friend, take care and I hope you feel better.

    Love, Mikie
  13. greatgran

    greatgran Member

    Thank you so much for your replies and encouragement..

    Prayers and Love,
  14. IntuneJune

    IntuneJune New Member

    I had been on Klonopin for five years or so at a dose of 0.5 mg. It did help me fall asleep and stay asleep.

    I decreased the dose of 0.25 mg for sometime and that seemed to be doing as good a job.

    Then, I had trouble sleeping again and went back to the 0.5 mg and stayed there for some time. It did not seem to be doing as good a job as when I first started on it.

    So, I made the decision I did not want to up the dose. Very, very, very slowly I started to wean down. It could have taken 6-8 months.....before I stopped, cutting back to 0.25 mg every night to 0.25 every other night.

    When I went to the very other night, I had trouble remembering if tonight was "the night" to take it. :)

    At the end, it was more forgetting to take it than every other night, every third night.

    I am not sleeping well, will have to find a safe alternative.

    Fondly, June