MINNESOTANS PLEAAAASE HELP ME ..so i went to my doc appt today.....ugh..>>>>

Discussion in 'Fibromyalgia Main Forum' started by amilyne, Nov 24, 2002.

  1. amilyne

    amilyne New Member

    hi all
    im amy and i live in minneapolis and i know there are quite a few people here with this crap and my doc and i dont see eye to eye on the pain medicine issue..ugh..so if anyone can recommend anyone who would sympathise ...just a lil bit... that would be awesome.i have healthpartners insurance and im scared to ask for a referral to a pain clinic ..my doc is great in all the other ways but that one.so pleeeeease help me. thankyou all very much...im willing to travel a little ways as long as i can get some pain control...part of the problem is is that im only 22 and "i dont want you on pain meds the rest of your life" and blah blah blah but this is for life right??so anyhow help me please.thankyou
    ami

    [This Message was Edited on 11/27/2002]
  2. amilyne

    amilyne New Member

    hi all
    im amy and i live in minneapolis and i know there are quite a few people here with this crap and my doc and i dont see eye to eye on the pain medicine issue..ugh..so if anyone can recommend anyone who would sympathise ...just a lil bit... that would be awesome.i have healthpartners insurance and im scared to ask for a referral to a pain clinic ..my doc is great in all the other ways but that one.so pleeeeease help me. thankyou all very much...im willing to travel a little ways as long as i can get some pain control...part of the problem is is that im only 22 and "i dont want you on pain meds the rest of your life" and blah blah blah but this is for life right??so anyhow help me please.thankyou
    ami

    [This Message was Edited on 11/27/2002]
  3. ssMarilyn

    ssMarilyn New Member

    I'm in the Lake Minnetonka area, but can't help you with the pain issue. I refuse to take anything short of an occasional aspirin or Extra Strength Tylenol. I treat my pain in other ways, such as heat therapy, aromatherapy, and laugh therapy. Sounds stupid, I know, but it works wonders for me. It takes the edge off the pain so that it's tolerable. Right now I'm in remission, but wouldn't hesitate a second to fall back on my home treatments if needed.

    Marilyn :)
  4. Shirl

    Shirl New Member

    Ami, to the group. So sorry you are in pain, but I can't help with a pain doctor either.

    I don't take pain meds, just OTC Advil if the pain gets bad.
    I also use heat, hot baths, and I take Pro Energy (malic acid and magnesium) which is great for Fibro. Most people with this illness are deficient in this mineral, and our muscles do not heal because of it. The Pro Energy can be bought here at the board from Pro Health.

    It has stopped the spasms, and that sounds like what you are having? Also another good one is 'Natural Calm', its a powdered magnesium citrate, you mix it with water, it almost works like a pain pill, BUT if you take too much of this it will cause diarrhea. This can be bought at most health food stores.

    I do agree with your doctor, at your age, I would try to discourage you from taking prescription meds too if at all possible. But that has to be between you and your Doctor.

    Again, welcome to the board, and I do hope you get some relief soon.

    Shalom, Shirl

  5. northwoodssue

    northwoodssue New Member

    Ami: Run, don't walk, to the marvelous Mayo Clinic ASAP!!!! I saw several doc's in northern Mn for 4 years, all rheumatologists, and they were certain that I had lupus plus fibro. I was at the point of being put on Methotrexate (a chemo drug) used as a last resort for lupus, when I decided to try the Mayo. Insurance wouldn't pay for it, so I did, and it was the best way I've ever spent my money. It was alot cheaper than seeing the other doc's with the wrong dx for 4 years!!!! I do definitely have fibro which is depressing enough, but thank heavens sI don't have lupus too. So, check out their web site and call. let me know how it goes.

    good luck.
    northwoodssue
    [This Message was Edited on 11/25/2002]
  6. DebinMN

    DebinMN New Member

    Hi Amy: I am sitting next to you (dont ya see me??)

    Northwooeds: PLEASE tell us about the Mayo Clinic and what they do for Fibro. PLEASE.
  7. amilyne

    amilyne New Member

    hi deb,where in mn are you?? are your docs any good at all??? i feel like mine is doing everything possible not to give me anything for pain...i had to fight for ultram but it isnt doing anything for me at all..but thats probably because im only allowed 6 a month...ugh...well i see him in the morning and if he doesnt give me a referral to a pain clinic im going to ....scream....lol well wish me luck.
    amy
  8. amilyne

    amilyne New Member

    hi all i just wanted to bump this up thanks
    ami
  9. allhart

    allhart New Member

    heres a list of pain drs in your area call them see what they say



    Anderson, Alfred - MD 7401 Metro Blvd Ste 185
    Arlander, Thomas - MD 3300 Oakdale Ave N
    Arnesen, Mark - MD 800 E 28th St # Lll36
    Bertram, Lawrence - MD 6490 Excelsior Blvd Ste E104
    Cembrowski, George - MD 3800 Park Nicollet Blvd
    Cohen, Shep - MD 1 Veterans Dr
    Dale, Virginia - MD 3300 Oakdale Ave N
    Foley, William - MD 800 E 28th St
    Harty, Jerome - MD 550 Osborne Rd Ne
    Holmes, Todd - MD 800 E 28th St
    Hong, Back - MD 701 Park Ave
    Horwitz, Charles - MD 800 E 28th St
    Larson, Bert - MD 1 Veterans Dr
    Miley, Timothy - MD PO Box 650
    Monsein, Matthew - MD 800 E 28th St
    Segal, Ira - MD 6401 France Ave S
    Weatherby, R - MD 6500 Excelsior Blvd

    good luck
    kara
    [This Message was Edited on 11/26/2002]
  10. ssMarilyn

    ssMarilyn New Member

    that rents our farm has FM and goes to the Mayo. He reports very little relief from treatment he receives there. It may be that he's just so ill that nothing can be done.

    Marilyn :)
  11. amilyne

    amilyne New Member

    so i went to my appt and the same old no i refuse to give you anything for pain conversation and no pain clinic refferal either...UGH...my doc makes me sooo mad ..so again i ask for help from you all. i need to find other ways to deal with my pain and blah blah blah...pathetic thing is my doc diagnosed me with this crap but whatever ...and i get storys on how people have had surgery without anything for pain and how i can learn to do htat too.ahhhhh,i need a new doc.
    thanks for listening
    amy
  12. teach6

    teach6 New Member

    I don't live in MN, so I can't help you there, but I do want to comment on Ultram. You say you have six pills a month? That's the whole problem, right there. When I was first rx'd Ultram it was from my psychiatrist who knew I was waiting to get in to see a doc who could treat CFS and FM. He was worried about my taking too much and told me to take it during the part of the day I was most "active." LOL

    So I took it in the early afternoon and when it wore off I waited in horrible pain for the time to pass until I could go to bed. When I finally saw a doc who was willing to treat me he wanted to deal with the NMH first, which was definitely my worst symptom. However I realized he thought I was taking Ultram 4 times a day, from what he wrote on the notes he gives me after every appointment.

    So I called and asked if it was better for me to be on 4 Ultram a day or 9 Aleve, which was what I had been taking. When he heard 9 Aleve he was shocked and told me definitely to go with the Ultram. So I told him that meant I needed a new rx, because the one I had was for 30 a month. Once I began taking the proper dose my pain became tolerable.

    I wish you luck in finding a doctor to treat you for your pain. No one deserves to be in this horrible pain with no relief from it.

    Barbara
  13. DebinMN

    DebinMN New Member

    My doctors are worthless. I am also searching for a decent doctor that will do something for the pain. I live in St. Micheal, NW of Mpls. feel free to email me of you wish dmlachina@yahoo.com

    DebinMN
  14. Claypot

    Claypot New Member

    Hello... I have a very good dr. Hes located in Edina. And is always very kind and listens when I need Him too Praise God!! Also I havent had any problems getting my meds through Him .I first was seeing him at the Sister Kinny Institute and... Hes not moved out from there to Edina... His name is Dr Will. let me see if I can find a phone number quick here.. ok got it!! but Im not sure if its legal to post in here... just email me at hol1325@hotmail.com and I will try to reply asap.And... ami ur right 6 pills per month is really just a slap in ur face... its like giving someone who waits on ppl a nickel for a tip! ERG!! Also... if you see ur regualr dr again I would ask for a referal to go to the Sister Kinny Institute they have awesome programs to teach u how to live with this DD. Like what will help u or the what Not to do's! They will set up a program specific to ur needs.. so thats awesome, I have gone and learned alot and have used what I learned. I really loved the heated pool and the excersises really did Help and still do! I would think ur regular dr wouldnt have any problems with this request since it has nothing to do with pain meds... although they do also help u in that area as far as advice but they dont prescribe...and they are the ones who recommended to me this dr. Will! GBU.. Love, Claypot
  15. kadywill

    kadywill New Member

    it was criminal of that doc to give you just a few Ultram a month and he should be reported!!!! He is liable for not treating your pain, don't you realize that? Do NOT waste your time with him. Ultram worked BEAUTIFULLY for me until I developed my sever back/buttock problem and, for that, I had to resort to a stronger med. Ultram was a godsend to me, but I started out with 50 mg. at bedtime, then I started taking it twice daily after several years. I got up to 100 mg. 3-4 times a day until I started the Oxt. I still take 50 mg. twice daily as I am trying to slowly wean off of it. I don't believe I need it since I take the Mobic for inflammation (my hands and back), Soma to relax my muscles (my back) and the Oxy. I paln to go to 50 mg. at bedtime only in the next week or so. A nurse practioner friend of mine told me that for FMS, Ultram was a great drug and it should be taken as follows: 100 mg. four times daily!!! The generic (Tramadol) worked fine for me without adverse effects. However, many folks here on this board said that they experienced headaches and less pain relief with the generic. The Tramadol is all my pharmacy carries now, so I'm glad I could take it without problems!!!
    Good luck~~be assertive! We're pulling for ya!
    Love,
    Kady
  16. amilyne

    amilyne New Member

    just me bumpimg this up again...thanks

    ami
  17. DebinMN

    DebinMN New Member

    Just bumping....
  18. northwoodssue

    northwoodssue New Member

    Hi Deb: Sorry it's taken so long to answer. I'm still new to this board and don't know if I should just post a new message on the board or reply to them directly.
    First some background. I saw several md's (including specialists) and was treated for fms and lupus for years. I took prednisone and bloated up like a toad, had a hump on my back, and high blood pressure. Thank heavens that's all gone now. I was at the point of being put on a chemo drup for lupus when I said, enough is enough! I don't want to be on a chemo drug that can hurt your liver, kidneys, etc. So, I went to the Mayo clinic in rochester, mn. I saw a Dr. Steve Yetterburg (I think that's how you spell it) I got there first thing in the am and saw him for about an hour for exam, eval, etc. Then he sent me to x-ray, lab and I returned that afternoon with all the test results. (that's a miracle in itself - same day results) We went over all of them and he explained in detail in a way I could understand just why I didn't have lupus and why I have fms. The treatment might disappoint you as it was what the other md's did, sleep meds, pain meds, biofeedback, etc. The one thing they do have is a 3-5 day program for fms patients that is all inclusive with dx, diet, exercise, treatment modes, etc. I didn't do this because I live in No. Mn. and couldn't get away for this week, and didn't have the money either.
    what I did get from this was a diagnosis in one day, ruling out the lupus all the other docs thought for sure I had. I got peace of mind and confirmation of my treatment.
    I hope this helps.
    ps - insurance did not pay for this and the total bill for the one day with 2 plus hours with the doctor, xray, and lab was about $900.00. I'd spent way more than that over the years with a wrong dx!!!
    northwoodssue