Discussion in 'Fibromyalgia Main Forum' started by hensue, Nov 10, 2009.
We were hopefully going to do this together. Whats up?
Thank you for thinking of me. I had an appointment scheduled for Monday morning with an Infectious Disease doctor. The called me Friday to reschedule because I need a longer appointment.
The reason I need a longer appointment is because they want to confirm my Dx of CFS. What a joke, they have all my records from first diagnosis, fevers, infections, ect. through the years, and all my well documented labs and findings from Dr. Lerner. I have a feeling its because the orignal doctor who refered me to the ID doc is unrelenting in his Dx of depression with me. It's sad, it really is. I really wish I was in a position to move to Detroit.
But, I am prepared with my literature of XMRV, Lerner labs and records and all that to give to this doctor when I show up there Thursday morning. So, I am sure hoping this will work out and I will get my results a few days after you.
Please keep us updated. Hey, weren't you going to come to Minnesota?
I cannot take the cold. I do not know how anyone takes it up there. We had some days in the 50's I thought I would freeze to death.
You are still there right?
If you have tests that show different from depression, such as MRI or cortisol, be sure and take those.
There are a few abnormalities that CFS sufferers have that does not match the abnormalities of depression.
Thanks so much. I do have all those abnormalities and they are in my records. I also have the pertinent lab findings highlited and ready to go with me.
It's just the doctor (and I use that term loosely for him) I saw last week is so bought in to the psycholgical etiology theory. I resented having to see him, but he was my only local GP with my records as I have not seen anyone since Dr. Lerner six months ago.
The appointment was wierd. He was very impressed by the Science publishing I presented him, yet he persisted with Depression surveys. He did refer me to an Infectious Disease doc though, so hopefully she will take me seriously.
Hensue, I am just the opposite of you, I actually welcome the cold most of the time. It's the heat I absolutely CANNOT tolerate. Summers in Minnesota are high humidity and I usually cuddle up close to my air conditioner. Winters you will find me outside in my t-shirt until it gets below 0.
Separate names with a comma.