More on Cipro Does this sound like YOU? It is also in your food

Discussion in 'Fibromyalgia Main Forum' started by bunnyfluff, May 3, 2006.

  1. bunnyfluff

    bunnyfluff Member


    Perhaps you have taken quinolones in the past and you think that they worked well and that you did not react negatively to them. Check the following subtle symptoms and the normal interpretations that people make of them.

    ¯ You had a strange bout of tendinitis, for instance in the outer tip of the hip, normally diagnosed as trochanteric bursitis caused by tight belts or resting on you side. The same applies to other areas of the body, like the elbow (epicondylitis) diagnosed as an overuse of your tennis racquet or gardening practices, but you remember that you had never had it before.

    ¯ It takes you longer to recover after exercise. It is not alarming and you have not paid much attention to it.

    ¯ You sleep worse than before; it seems normal as you have a lot of pressure at work.

    ¯ From time to time you have some small throbbing pains in different parts of the body. They last only for a few seconds, so there is nothing to worry about it.

    ¯ It is strange- but you have occasional twitching in an eyelid, or any other part of the body. It is not painful.

    ¯ Some nights you feel some mild itching migrating along your body. One brief itching here and another there. It is more intense in the scrotum or groin. Instead of identifying it as a peripheral neuropathy you conclude that it must be your clothes or the new brand of soap that is more irritating.

    ¯ You feel some stiffness, especially in one or both legs, but it is normal because you are getting older.

    ¯ You do not tolerate coffee as well as before.

    ¯ Your memory is not as good as it used to be. The cause may be too many things to think about and too much stress. And you are no longer a young person.

    ¯ There is an urge to urinate when the bladder is partially full. Most urologists think that it is due to a dysfunction associated with a benign enlarged prostate but in reality it is a neurological deficit caused by the prescriptions of quinolones that they gave you.

    ¯ Some times, you have nightmares while falling asleep that scare you. How strange you think. They are toxic panic attacks that reflect toxic damage to your brain.

    If you have experienced some of these symptoms since you took your first quinolone, perhaps you have reached your first threshold of tolerance, that -once surpassed- can result in the destruction of your life soon thereafter if you take more quinolones.


    Getting floxed is just getting intoxicated, or poisoned. The toxic agent (the quinolone compound) enters the blood stream and spreads throughout the body. The defenders of the quinolones are even proud of the big penetrative power of the drug, that reaches delicate organs like the brain that are very well shielded against most chemical compounds. Therefore, it is not surprising that symptoms of the toxicity arise over all body areas and systems.

    For a complete list of symptoms, see later in the report. A strong reaction generates some 30 to 50 symptoms. In some cases adverse reactions appear right after the ingestion of the antibiotic. In intermediate and severe reactions you may start with a few symptoms and as time passes new and debilitating symptoms arise, especially around the second, sixth and ninth months mark post-floxing. And in many cases of young, very healthy and active people, the worst lesions emerge progressively up to eighteen months or more after the cessation of the drug (we have deducted it beyond any doubt from various crystal-clear cases plus several unwilling re-exposures with quinolones). There are many medical articles as well, that state that a lot of the drug induced symptoms start some weeks to months after completing the treatment.

    Here we include the most easily recognizable and common symptoms in three groups. Please take into account that the heading of the three groups is only for orientation purposes. Some of the disorders are cytotoxic or vascular, for instance, and the headings do reflect that fact. Some lesions have a multiple root like eye damage that can be muscular, neurological, vascular and toxic but are included just in one group for the sake of simplification.

    Joints and muscles:

    ¯ Arthralgias (pain in joints) specially the Achilles tendons, ankles, knees, hips, elbows, shoulders, wrists, neck. Pain of different kinds, very frequently migrating around a joint and then moving to other joints over time. Pains are bearable sometimes but they often are very debilitating, requiring almost absolute rest for months because patients cannot walk at all or more than a few paces or stand up for long. Even if the patient is functional, pains have a neurological root and can be very intense and interfere with normal activities and prevent sleep. These arthralgias evolve to osteoarthritis in many cases with cartilage erosions. The arthralgias start as early as during the antibiotic treatment. In other cases arthralgias show mildly at the beginning and their intensity increases to its maximum intensity up to a year and a half later. For athletes with this type of delayed reaction, a medium level of pain can be constant but some six hours after exercise the symptoms may be present as acute pains that can be excruciating if the limit of tolerance is reached. This limit consists of the maximum exercise that a given body can tolerate before its impaired repairing capacity is overwhelmed by the physical demands. For the average floxed athlete, this limit is much lower than it was before the quinolone intoxication.

    ¯ Pains in different areas of the body not considered main joints. Pains tend to be generalized and migrating. Can be mild or very intense. Common areas affected are the back, neck, head (jaw, skull zones), chest (breastbone), groin, testes, plantar fascia (sole of feet) and others. They can be very debilitating. Pains in many muscles over the body (myalgias), that cause a lot of stiffness and soreness. These pains are of every kind, like diffuse, acute, throbbing, pulsating, vibrating, burning, shooting, stabbing, dull, deep, tremors, and many times they increase at night. A floxie can feel pains walking, changing positions when sitting, being unable to cross legs or make some body torsions. In severe cases the pain lasts for five to six years on average.

    ¯ Acute tendinitis over different parts of the body very similar to normal types of tendinitis but different in its persistence and unresponsiveness to conventional treatments. This type of tendinitis is very acute at times, requiring immobilization, and is nearly always triggered by a level of use that was normal in the pre-floxed state, or normal daily use. The tendinitis does not respond to anti-inflammatory medication, which in fact, can make the symptoms worse. Sometimes the tendinitis migrates within a joint and from one joint to others. In the first stages of the floxing, the tendinitis is predominantly enthesitis, which is inflammation of the insertions of muscles and tendons into the joints. In many cases they end up in partially or fully ruptured tendons (achilles, shoulder rotators, wrists flexors). It is a class effect of all quinolones, in other words, all these antibiotics are very toxic for all the tendons in the body, for everybody. For every one- the quinolones cause small and multiple lesions in the tendons, that eventually rupture in those people unlucky enough having weak tendons, having taken corticoids, having pre-existing vascular problems (pre-diabetics) or being magnesium deficient. Long- term floxies, usually affected by a severe reaction still have tendinitis in critical areas of the body 4 or 6 years post-floxing. Very typical long term tendinitis are: plantar fascia, achilles tendon, posterior tibialis complex, insertions of knee’s tendons, both ends of the ileotibial band, iliopsoas area, shoulder rotators, elbow epicondyle, forearm and wrists.

    ¯ Arthritis-like symptoms. Many symptoms resemble those of rheumatoid arthritis and other autoimmune diseases, but are always sero-negative and with a different pattern of clinical symptoms.

    ¯ Osteoarthritis-like symptoms. Joints usually start to make a lot of noise. After the intoxication, and with time, healthy cartilage becomes softened and erosion takes place, and the illness presents itself as a true clinical osteoarthritis. Knee cartilages are specially targeted by quinolones, with a very high incidence of torn menisci (inside the knee). There are many cases of complete destruction of previously healthy joints and the patient has to be submitted to very invasive surgical procedures and or total joint replacement. The most damaged cartilages are the most weight bearing ones: knees, hips and low spine. Cartilages of people that have taken several short-term quinolone treatments, as well as cartilages of those that have taken prolonged courses or high doses, have a very decreased bearing capacity.

    ¯ Permanent stiffness that exhibits a clear loss in range of movements, especially with legs and arms, but that can affect the whole body. The most affected joints are the hips (adduction, abduction, flexion and extension), knees (flexion, adduction), and shoulders (extension). Increased stiffness after exercise. It takes longer to recover from exercise, and there is a clear loss of flexibility. Soreness in many muscles, especially legs and shoulders, with there also being a predilection for the neck. Weird sensations in the muscles and joints. Clear feeling that something is going very wrong.

    ¯ Shallow breathing that causes a deficit of oxygenation that complicates insomnia, recovery and other reactions and metabolisms in the body. During the acute phase the floxed persons can have a sense of not grasping enough air and subsequent sense of dying.

    ¯ Very slow recovery from impacts and blows. Whenever the affected person is hit in athletic or daily activities, the flesh takes much longer to recover from the pain, along with increased haemorrhaging and inflammation. Dark veins, haemorrhage-like patches under the skin.

    ¯ The skin (and other collagenous tissues) loses nearly all capacity of recovery. A cut on the skin near an affected joint leaves a pink scar for many months afterward whereas it would have become unnoticed in a pre-floxing state.

    ¯ Cold feet and hands. The presentation resembles Raynaud's syndrome. In many severe cases several phalanges of fingers turn numb or become close to frozen with cold conditions that did not cause any trouble before the floxing. Loss of sensitivity in hands and feet. Increase in the shape or depth of vertical ridges in fingernails. Pains in the nails of the big toes that feel as if they were about to fall apart.

    ¯ Chest pain. Heartburn.

    ¯ Weight loss, probably due to muscle destruction and atrophy and alterations in intestinal function.

    fig.1. -frequency of musculoskeletal disorders in severe reactions-

    Central and peripheral nervous system and systemic:

    ¯ Brain fog, depression, depersonalization, short-term memory loss, and lethargy. Slurred speech. Inability to speak fluently. Forgetting words, getting stuck in the middle of a sentence. Some are caused by the insomnia but it is mainly a neurological lesion of the brain. Headaches, especially unilateral, or affecting one side only. Foggy mind, drowsiness, lethargy, loss of drive and power. Need to sleep. Tiredness and intense fatigue.

    ¯ Twitching, numbness, sensory disturbances, trembling, throbbing, pins and needles sensations, and pulsating pains in muscles and joints are the hallmark of this disease; especially in the lower legs (ankles, Achilles, calves, thighs and knees) arms and hands, but can manifest all over the body. Fasciculations (visible crawling under the skin) of muscles, due to denervation, a very serious neurological symptom. Twitching is manifested earlier in eyelids and the triangle on the back of the hand placed between the thumb and index finger before it can affect the whole body.

    ¯ Insomnia, very acute and difficult to deal with. Restlessness, great loss of sleep quality. Intolerance (great nervousness or increasing symptoms) to concentrated coffee (espresso) and tea. Intolerance to coffee can be present for more than 7 years. Insomnia can last more than 3 years during which is difficult to get more than a few hours of disrupted and bad quality sleep. Anguish, depression, pre-seizure state. During some part of the floxing most people experience anxiety and panic attacks (awakening amidst strange nightmares with fear and a feeling of dying), especially at night or when falling asleep.

    ¯ Vision problems. Diplopia (double vision) and other focusing problems. Large amount of floaters (dark worm, cobweb, string or spot like) that seem to float in the vitreous area of the eyes. Also ziggies (brilliant minute lights that move in a zig-zag or wavy, wandering manner in your field of vision). Sparks (flashing lights). Halos and curtains of watery sight in the upper part of the field of vision that move sideways along with your eye. Waves-like in the outer margins of the sight. Acute photophobia or intolerance to strong sunlight or artificial light. Complete or partial loss of vision (transitory, but lasting up to 6 minutes as absolute blindness seeing only solid white). In extreme cases, complete irreversible blindness has been documented in medical papers. Eye pain, ocular pressure, blurred vision. Loss of vitreous acuity. Cataracts, macular degeneration. Quinolones cause degeneration of the retina, especially the outer margins. In many cases, some very worrisome implications such as dry eye syndrome are also experienced. Dry eye can render 0 mm of tear absortion in the Schirmer’s test.

    o Vision damage reaches its peak about two to six months post-floxing and lasts for years or becomes a permanent lesion, being a marker of the likelihood of recovery (i.e. the drier the eye and longer lasting, the lesser are the chances of overall recovery). Vision damages caused by quinolones have a high ratio of irreversibility. Severe reactions have nearly always associated some degree of damage on the vision that is invariably assessed by the patients as very disabling. We have seen so many, really a great many, cases of irreversible damage of vision, or lesions not cured by the 5th year mark, and the distress inflicted on the sufferers, that this alone would be enough cause to withdraw all the quinolones from the market for primary care treatments.

    ¯ Diminished erectile function (semi-impotence). Difficulty to reach hard erections. Decreased sex drive (libido) both for men and women. Can last more than three years in severe reactions for young people that were very healthy and active sexually pre-floxing.

    ¯ Digestive problems. The quinolones damage the entire nervous network governing the intestines. Alteration of intestinal movements. Intolerance to foods and many compounds. Bad reactions from defectively digested foods. Inability to absorb some nutrients, especially minerals. Weight loss. Destruction all of the flora and proliferation of bad fungi like candida.

    ¯ Violent rectal spasms that may cause fainting. Spasmic pains of every sort and intensity in every part of the body: skull, lower head, neck, jaw, shoulders, arms, back, hips, legs, ankles, fingers and toes.

    ¯ Trembling of a limb after sustaining tension with the muscular groups of that limb. For instance, trembling of the leg after toe-raising for a while, or an inability to write steadily after holding a heavy load with that hand.

    ¯ Tinnitus, or ringing in the ears. Ear pressure, usually in waves of pressure. Hypersensitivity to normal sound. Headaches, head pressure, mainly asymmetric. Hearing loss that can be permanent.

    ¯ Heart palpitations and strange pounding and throbbing. Skipped heart beats. Alterations of heartbeat. Irregular heartbeats are usually more common after eating. The heart palpitations and arrythmias are some times life threatening. A serious heart condition called prolongation of the QT-interval is a class effect of all the quinolones, showing once more that they are very defective drugs. Some times floxed persons require the implantation of pacemakers. Many thousands of people die from heart attacks that are not of an infarction kind but cardiopathical, caused by deffective nerve signals. Most all of them are caused by toxic compounds, like environmental hazards or medications, among them the quinolones (none of them are attributed to the real cause).

    ¯ Neuropathies in limbs, with a lot of pain with muscle wasting and nerve involvement. In many cases they resemble muscular injuries. For instance, a femoral (upper leg) nerve neuropathy can be considered a pull in the hamstring; a peroneal nerve neuropathy can be disguised as an ankle strain, or an overuse syndrome and so on. These neuropathies have a rapid onset and grow in intensity for many months. In many cases it takes several years to get a remission of these neuropathies.

    ¯ Alterations of liver, kidney and pancreas enzymes and parameters. While taking quinolones the cholesterol and tryglicerides skyrocket up to three times their normal values, to return to normal range in a few weeks. Quinolones also provoke hypo- and hyperglycemias as a class effect. The quinolones accelerate the progression towards full diabetes of those individuals with an unrecognized pre-condition.

    fig.2. -frequency of systemic disorders in intermediate and severe reactions-

    Autoimmune like responses:

    The main symptoms of a quinolone poisoning resemble those of some autoimmune disorders because in acute intoxications they cause a type of small vessel vasculitis with neurological dysfunction:

    ¯ Dry eye, dry mouth, dry sinuses, dry ear and a shift towards dry skin. Dry eye can be measured with moisturizing stripes rendering null values in severe reactions. Sticky, gritty eyes. Dry eye can have serious consequences if not treated. Dry mouth, especially at night or when taking any vasodilator. Dry sinuses cause many infections that are also opportunistic due to the compromised immune system of the severely floxed persons. Dry ear turns the protective earwax into a sort of useless sand dust. Decreased semen production.

    ¯ Problems with foods and drinks. Your intestines are also altered and their permeability and ability to process foods is impaired. Abnormal intestinal function, food intolerances, chemical disturbances, cycling of symptoms and general malaise. Increased sensitivity to chemicals, especially to quinolone-tainted foods (poultry, beef). Sensitivity to perfumes, health care products and chemicals. Taste and smell perversions. Lack of sense of smell.

    ¯ Cycling or relapsing of symptoms. After the acute phase, nearly all recoveries experience cycles of improvement and relapses.

    ¯ Many symptoms that resemble fibromyalgia, multiple sclerosis, lupus erythematosus, rheumatoid arthritis, reactive arthritis, vasculitis, AIDS and other diseases.

    ¯ Skin rashes, especially in distal areas (hands, ankles). Itching, all over the body, with little intensity, plus more intense in some specific areas (hips, for instance) when taking a hot shower, plus itching in the groin and scrotum at night when hot. Reddish or red-blue upper eyelids. Increase in vertical ridges in nails of toes and fingers.

    [This Message was Edited on 05/03/2006]
  2. elliespad

    elliespad Member

    Did I miss in there where it tells what foods it is in?
  3. bunnyfluff

    bunnyfluff Member

    It is also the anti-biotic of choice for cattle & was banned from poultry in 2004. It is still in widespread use in beef and other animals in the US & UK. Many people have food reactions to these, and do not know why. But, it also builds up in your system, and so does the reaction.

    The anti-biotic goes by many names. Look up quinolone for a complete list.

    I am just stunned. I was given this antibiotic for food poisoning just before i got so sick. All of my symptoms are neuropathic.

    They give this routinely for ppl going to Mexico in case they get food poisoning when they are there. It is sold over the counter in Mexico!!!
  4. bunnyfluff

    bunnyfluff Member

  5. Cromwell

    Cromwell New Member

    Wow, where did this info come from, it sounds as if anyone who took this could get this? Or is it a build up due to eating food that has it in, like chickens previously, eggs, and meat?

    If we never ate that stuff in the first place, would we have a build up just from using it as a pill for a week?

    Love Anne C
  6. hugs4evry1

    hugs4evry1 New Member

    Thank you for taking the time to post this information.

    I applaud the folks who can do this when mentally, I can't....

    So much information that I would never have known if not for you.


    Nancy B.
  7. mejlee

    mejlee New Member

    Thanks for the info. I am going to talk to my dr. about this. I regularly take a 2nd generation quinolone medication, maybe it's time we switch to something else!
  8. elliespad

    elliespad Member

    Thank you for this info Bunnyfluff. I have had HORRIBLE reaaction to CIPRO, all FLOXINS in general. About 10 years ago, my husband and I both realized we have severe pain after eating beef. We have cut WAY back, to where we eat it only once or twice a month. But still notice the increase in pain when we do eat it (especially me). NOW I KNOW WHY. THANK YOU.
  9. EricaCFIDS

    EricaCFIDS New Member

    Wow. I posted just a bit ago somewhere else that I took Cipro for a whole month last July! I don't recall any effects from it, but who knows with all of my symptoms already!

    Do you think this is part of your situation? How much of it?

    And in our food?!?

    We need some good news....

  10. cbs1234

    cbs1234 New Member

    I was hammered by levaquin a more powerful sister drug to cipro.

    It is all over our food supply. It will take a bit of googling and looking at FDA archives, but you will find studies that show these drugs stay in animal tissues for extended periods of time and when you eat the meat, you are ingesting these drugs.

    When I had my reaction, the manufacturer of the drug and the FDA both warned me to stay away from meat potentially contaminated by these drugs. So, I have been eating only 100% organic meats for the last 6 years. When I eat out, I am strictly a vegetarian (I eat lots of pasta at restaurants).
    [This Message was Edited on 08/23/2008]
  11. victoria

    victoria New Member

    with all the different abx and other pollutants in our food, air, and water, we'll never be able to sort out what has done what.

    I do know that I did have my symptoms well before I ever took cipro for bladder infections, but also know that my urologist had to culture me to find out what would kill the infection, and cipro was the only one.

    Sometimes we're caught between a rock and a hard place, as I'd been having ongoing bladder infections non-stop for a year prior, forget what the standard abx treatment was then, but that was 17 years ago and it wasn't working.

    Whether directly or indirectly, I also think that all this contamination of what goes into our bodies have compromised a significant amount of the population's immune systems, leaving the way open for many infections... while at the same time the infections are mutating.

    I think it's a never-ending war... and a never-ending risk to trying to get better.

  12. victoria

    victoria New Member

    Most of the time people do not need to take any abx for 'tourista', immodium is usually all that's needed plus fluids and 'time' - abx have not been shown to cure anyone any quicker...

    UNLESS you start going every which way etc.

    We just moved to Mexico 5 weeks ago; my DH last weekend became really ill, the whole 'shebang' complete with some blood... went to local clinic, he needed 3 IV bags of fluid + 2 IV abx and some to take home, plus some immodium. Neither were Cipro, interestingly, tho don't remember what they were.

    Interestingly, Mexicans themselves rarely go to a farmacia to get abx for anything UNLESS they see a doctor first; they do not, as a rule, diagnose themselves.
  13. bunnyfluff

    bunnyfluff Member

    what you ingest and do not realize it.

    Actually a year later I was found to have Lyme, and actually I had many symptoms before the Cipro (which was for severe food poisoning). Trust me on the food poisoning thing~ I was sick for weeks before i sought medical help, thinking it would resolve.

    Anyway, looking back, the mania, severe weight loss, neuro-type symptoms were there before the Cipro~ HOWEVER, I think it is important to question whether all of the Abx given to cattle, etc., has had an effect on our ability to fight off these bacteria/viral agents on our own.

    I have no idea where I picked up Lyme, but I have pics of the spirochettes in my blood, as well as 2 confirmation tests. So, I know it's an issue.

    I would like to see a poll on how many were strict vegans and came down with these symptoms.

    I don't have time, but maybe others do.


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