Morphine IR...anyone take it or has taken it in the past??

Discussion in 'Fibromyalgia Main Forum' started by RedHeadEMT, Jan 13, 2007.

  1. RedHeadEMT

    RedHeadEMT New Member

    Hi all! Hope that the new year has been kind to everyone.

    I just saw my Pain doc a few days ago and addressed my concerns about the levels of acetaminophen that I am taking. He spent quite a while explaining medically why I really don;t have much to worry about due to my labs and history, but he understands my concerns and suggested that we try me on Morphine IR (Instant Release).

    I also take MS Contin (or time released morphine) so the MIR would just be for breakthru pain. He gave me 15mg tabs and said I can take 1-2 every 4 hours, as needed.

    I'm just wondering if anyone is taking this med or has taken it in the past and what your experiences were on it. I'd really appreciate any feedback before I start taking it.

    xoxo

    K
  2. rosemarie

    rosemarie Member

    I have been on Mscontin for about 2 years maybe longer. I am on a HIGH doseage. I take Msconitn 100 mgs 4 x a day and MSIR 4 x's a day. I wish that I could say that the MScontin does not last the 12 hours that I was told it would.
    Although somedays I can go with out taking anymore than a dose every 12 hours but that is rars. I have been trying to get on a lower doseage. NOt because it does not help but because I get sick of having other doctors gasp when they read my doseage of the MScontin ER.

    I have not had any really bad side effects with this medication. It has helped my pain levels alot the only problem I have is when I have had surgery and my other doctor had a fit that I was taking such a HIGH doseage. He made me feel as if I was addcited to it and was out trying to get more of it.

    Instead of it being the other way that I am trying to redcue the amount I take.
    I was on a really high doseage as I shattered my left wrist 2 year ago and I am trying to get it to a lower doseage as my wrist is better than it was, But I do have days when I need the 4 pills I have been prescribed.
    I don't itch , or get sick with this , I am not light headed, And it really works for me. I hope that it will work for you.

    I have a doctor who started me out on really low doses and when they did not ease my pain from my other conditions , fibro, MPS, Facet syndrome, ddd, spianal stenonsis, oestoarthritis in knees adn wrist, bulding discs,radiuloapthy of the throasic /lumbar spine, tail bone pain, leg aches, pain in my thigh and groin , siactia.
    As my pain got worse he uped the doseage and finally we found the amount of this med that worked for me. I Hope that you and your doctor can work together to find the amount that will help ease your pain.
    HUGS<
    Rosemarie
  3. RedHeadEMT

    RedHeadEMT New Member

    Thanks so much for the quick reply!

    Yes, I, too, have been on MS Contin ER for about a year and half now and it has been my saving grace--it has really given me my life back.

    I was on 60mgs TID (3Xday), but am now on 100mgs TID after a serious car accident where I was driving the ambulance (I'm an EMT...well, on worker's comp for almost 4 months now), responding to a call, when a semi truck rammed into the ambulance at an intersection (at our green light). I hope that as soon as my lumbar/cervical spine problems start to get better, the pain will go down and I can go back down to my 45-60mgs TID dose.

    You are right though, the ER Morphine DOES NOT last 12 hours. My pain doc says that all (except avinza, which kaiser does not cover because it is too expensive) of the time released pain meds are advertised as working for 12 hours, but actually start to decrease in effectiveness within 4-6 hours. That's why he puts all of his pts who are on time-released meds on a TID schedule.

    I've been taking norco (10mgs hydrocodone/325mgs acetaminophen) for years now, but got worried about the liver toxicity issue. Although all my tests have shown that I have no tyl sensitivities (what people show if they are ever to begin getting high liver enzyme levels------------>toxicity), he says that he likes ms ir more ANYWAYS, as it's the most mild on the body in general. SO THAT'S why I wanna try it. Also, since I already take one form of morphine, the ms ir shouldn't effect me negatively, i HOPE!

    Sorry so much for rambling on like this!!! I took a peek at your profile and just wanted to wish ya a happy silver anniversary, Rosemarie! Thanks again so much for your input!


    xoxo

    K
  4. Fudge43

    Fudge43 New Member

    Hello .. I was driven to add some information here ... seeing how hard it is to get the right dosage with a so called 12 hour pain relief ..
    I'm Canadian so what our meds are labeled as may not be the same as the American side.

    I take "hydromorphone" at night for pain because the "oxycontin" 10 mgs twice a day for the so called 12 hour routine does not cover the pain when it is bad ...
    The hydromorphone is at 2mgs, but I take 2 of them a lot of times .. it is a morphine derivative .. so I am on a low dose .. I was just diagnosed about 4-5 years ago ..
    But .. the pain is getting worse and the weather is one heck of a factor in that.

    I was a bit surprised about the high doses stated here .. but not on the level of the need for help with the pain .. I really understand that .. and I know I am lucky to have a doctor that will go higher on the meds when I need to do that.

    My input is that yes .. I take a morphine type pain relief at night .. because it helps the pain and it doesn't keep me awake at night like any of the "contin?" type pain meds ..

    I hope it helps you too !
    Good Luck !
    Joy : )
  5. Kimba4318

    Kimba4318 New Member

    HI - started on it after surgery and he wants me to use that now for my breakthrough pain (instead of Vicoden). It really is [pretty instant. I get some weird nerve [pain in my stomach that comes on sooooo quickly, a pill would not be worth waiting for. ANyway, mine is a liquid and it is like cough syrup. I take a tsp. when needed.

    I could barely walk this morning and took it... a few minutes later I did start to feel some relief. Just giving you my experience with it.

    Does yours melt under your tongue? My insurance would not cover that kind... don;t know why..

    Good Luck to you.
    Hugs
    Kim
  6. shelby319

    shelby319 New Member

    Hi Redheademt and all,

    I am so glad you made the statement about how the time release MS Contin or any of those types of meds, don't last the full 12 hrs as I've been trying to tell my regular Dr. this for awhile now! Or how I don't understand it myself or how the manufactures can claim it does.

    I'm also on MS Contin 30 mgs twice a day and my Dr. doesn't believe in any breakthrough meds, as he claims I'm already on a large dose of morphine now, and that should be working because it is a time release!! UGH!!

    So, as the story goes, and the pain continues, I'm now going to a pain specialist this next week to discuss all my health and pain issues, which are many like you with your car accident and all. I'm so sorry about your accident, as I know personally how difficult that can be physically and emotionally on our bodies and recovery.

    But I did want to ask you, when I see my pain Dr., should I ask also for some breakthrough meds as this amount of morphine I'm on really isn't enough to take all the pain away, so I take an ungodly amount of tylenol throughout the day and no other narcotics. I was on Oxy Ir's right after my surgery 3 months ago, and it worked great while I was waiting for the MS Contin to kick in first thing in the morning or during the day. But he claims its too addicting to continue me on it, so he took me off of it!! How is that anymore addicting than being on morphine ER that we already take?/!! I'm more afraid like you about the tylenol I'm putting into my system.

    All these narcotics I'm not too familiar with either, so is the MS Ir's the same class of drug as the Oxy Ir's? I just know I need something for breakthrough pain, as it seems to be there constantly or I'm just not getting enough of any form of narcotic. I too have many other health issues where I need more pain relief and I do everything I can to control it naturally, but thats not helping constantly and then I get more pain from exercising and my yoga.

    If you could help me out on this, I would greatly appreciate it, seeing when I see my pain speciaist this week I have no clue as to what to ask or do!! Please, only if you can find the time to answer, I really would be greatful for any feedback you can give me!! I do think my Dr. has already made me feel that the amount of morphine I'm on is alot and I don't think it is, so I'm feeling guilty already!

    I do hope your starting to feel better from your accident and can recover to a more normal life that you were used to before. I know I will never recover fully from mine and its been over 10 years now. But I just make the best of it and do what I can and think positive!!

    Gentle hugs and well wishes,
    Shelby
  7. RedHeadEMT

    RedHeadEMT New Member

    Hi Joy! (BTW, I love your name!!)

    Thanks for taking the time to add your input. Hydromorphone is the generic name for Dilaudid. It's available in a variety of forms, including pill and injection form. Once in a great while when I have a migraine or have been flaring nonestop for weeks, I get an injection of the dilaudid/aka hydromorphone and it works well.

    My doc did give me the option of taking the hydromorphone also, but we both decided that we'd give the morphine ir a try first since I am on time released morphine anyways. Seems like a natural mate. We'll see. I'm going to try it tomorrow for the first time, as I want someone home with me and my hubby has the day off in honor of MLK.

    Joy, I know that at first glance the doses that rosemarie and I are on seem high, but as you stated, treatment and doseage is based on the level of pain presented and it's actually quite sad to see how many people in the US are undertreated and downright ignored when it comes to chronic pain.

    Anyone who is lucky enough to have a great doc who is willing to work around their pain-- by either increasing or decreasing their meds to correspond to their pain levels over longer periods of time and often reevaluating that dosage-- that person is really blessed. I'm so happy that you are one of those people. :O)

    XOXO

    K

    PS- Your kitties are adorable!!!! My kitty is my baby, too. My husband is an avid gardener and has the most excellent green thumb and he ADORES Spring and fall. He actually started a community garden at a local center for native americans in a poor neighborhood, where the kids come and help him out in the garden. He plants native plants, fruits, veggies, and herbs to the area. The coolest thing is that he also plants herbs and plants that are used in the native cultures. I LOVE MY HUBBY!! :eek:)

    ::gush gush::
  8. RedHeadEMT

    RedHeadEMT New Member

    Hi Kim! Thanks for your thoughts and input. You are such a lovely lady and your kids are beautiful! You look too young to have three kids of all ages! You're so much like me, where I bet you get, "But you look so healthy!" all the time, huh? argh!!! I'm also jealous that you get to live on the water...that's truly been my dream forever. Maybe one day. Do you live near the ocean, bay, river, or a lake?

    Anyways! :O)

    My Morphine IR IS in pill form. Although I do have the syrup also for REALLY rough moments/days, but although I've had it rxed at home for about 6 months or so now, but have never taken it. I did finally open it a few weeks ago during a rather desperate moment and was a bit worried because on the bottle it says that it should be light pink in color, but it looked like a light amber color. I wondered if it had gone bad and ended up not taking it. What color is yours?

    Do you get nauseous on it? Do you have to take an anti-naus med like compazine or phenergan with it?

    Unfortunately, I don't have the one that melts under my tongue. I'd really like that one or the pain med lollipop called actiq, but I don't think kaiser covers it either.

    Take good care of yourself!

    xoxo

    K
  9. RedHeadEMT

    RedHeadEMT New Member

    Hi Miss Shelby!!! Fancy running into you on here again. It's truly my pleasure to help ya as much as I possibly can. So, here goes...

    First off, yes, yes, and yes!!! I hope that with more research, that it will finally be officially established that the advertised 12 hr meds really do NOT last that long. I think that pharmaceutical companies are nervous to back down with the 12 hr statement/ads because it would look pathetic that their "extended release" meds were actually not lasting too much longer than the immediate release!

    I'm upset for you that your doc does not, as you put it, "believe in breakthrough pain medications." WHAT?! Is he a pain specialist? I wasn't clear if he was or not, or if you are just going to a pain doc this next week...hm. Because if you research the issue at all, most patients who are one extended release meds, almost ALWAYS need breakthru pain meds at some time or another, if not fairly regularly, as they wait for their next dose of time released meds.

    Thanks for the encouragement about the accident. It's coming along, but the progress is SO slow, that it is so FRUSTRATING! I also don't see how I will ever be able to get back into the back of an ambulance, as I can't evem lift my groceries.

    As for your pain doc, yes, PLEASE, address the pain med issue. Calmly explain that what you are on right now is not treating your pain well enough and that you often have high levels of breakthough pain. Specifically, give a number of 1-10, describng your level of pain on any given day.

    Also describe the TYPE of pain: i.e. sharp, stabbing, dull, throbbing, etc. Sometimes that is helpful in establishing what and how much meds your may need. Explain to him that your life's quality has gotten low recently due to the levels of pain. If he is a good and responsible pain doc, he will be happy to work with you in establishing the correct pain "cocktail" tailored to you.

    First see what he suggests for relief, his plan, persay. Mention what has worked for you in the past: the oxy ir in your case. He may agree to rx this for you off the bat, or he may suggest something else. If so, give it a go and see how it works. If after trying it for a while, you don't see improvement or you have bad side effects, immediately let him know. Oftentimes, it can take a while to find the right med; it's a trying process where you and your doc have to be patient with the situation and one another.

    Also mention HOW MUCH tylenol you are currently taking a day, in millegrams. This may be enough to convince him of your need and perhaps concern him about your intake of acetaminophen enough for him to rx you something stronger and more effective, without the potential of liver toxicity.

    In answer to your question- yes, morphine Istant Release is in the same group as oxycodone instant release. The only diff may be that some oxy ir's (i.e. percocet) may contain levels of acetaminophen, as MIR does NOT.

    Lastly, please don't feel guilty about your pain med consumption. It's good that you are aware of how strong and serious these meds are, but I think that this further goes to show how you must truly NEED them if you are asking for more. Any decent doc should identify with that and work with you to control you pain.

    Gentle xoxox,

    K

    PS- What delicious baked good are you holding in your arms in your profile pic and did you bake it yourself? WOW! Can I get the recipe? :)
  10. TinaJones

    TinaJones New Member

    I'm in the club of being on high dose pain meds. I'm on Avinza (420mg per day); Dilaudid (8mg 3x per day) and Actiq (1200mcg, 1 per day). I've had doctors look at me and say "and you're still breathing?".

    Just wanted to mention a couple of things: I've NEVER had a med last what it is supposed to...I've been on the Duragesic patches, MS Contin, Methadone, MSIR, Oramorph - too many to name. Anyway, Avinza is the 1st med to ever last the true amount of time - 24 hours.

    Re: Kaiser - I know that Kaiser varies from region to region. I'm from the Bay Area, too (Walnut Creek) and had Kaiser there for many years. Moved to Colorado a year ago for my husband's job. Anyway, Kaiser does cover my Avinza and Actiq here. Again - it could be because it's CO; but just thought I'd mention that.

    Re: hydromorphone (Dilaudid) - if the MSIR doesn't work for you - this is a good medicine to try.

    I've never had the usual side effects to the pain meds, which is good; the bad thing is that I have an extremely high tolerance level - which means it takes really high doses to even touch my pain (which is obvious looking at the doses I'm on). I'm usually about a 9 out of 10 on most days. That being said, I'm getting the pain pump surgically put in in two weeks (with Fentanyl); it was a huge decision, that doesn't come without risks...but I've got to try something to try to get my pain under control. My prayer is that it just gives me some - ANY - amount of pain relief.

    Last thing: I completely agree with what you said re: finding a good doctor that will work with you. I finally found that doctor once we moved here. I do feel very blessed, and am so happy when I read about someone else finding a great doctor.

    I really hope the medicine works. After you take it - let us know how it does for you. Take good care --Tina
  11. Kimba4318

    Kimba4318 New Member

    Awwww... you made my night. You are a beautiful person inside and out. It really is true that this darn disease is so silent that others say... "but you look healthy". Each year though, I look in the mirror and get scared sometimes... LOL, but true.

    RE: the water.. we live on a creek right off of the chesapeake bay. I do find serenity in it. My father always had boats and got my husband into it and that was it... we "had to" find a place on the water. We bought a cottage here about 4 1/2 years ago and then 3 years ago tore it donw and built a house that could fit all of us better. My daughter is my "step " daughter, but she is MINE. I hate to even say "step" but just for the age differences, some people wonder why, etc. I raised her, she is my child and loved very much.

    RE: MSIR...I surprisingly do not need nausea meds. I do have promethazine here for bad times, but not needed very often. Mine is actually a blue syrup. I do find it very effective now. I am just careful about using it.

    I wish you the best of luck with it all. My life did change after I finally saw a great/caring Pain Management doc and he has truley been a lifesaver!

    Nice talking to you. Keep us posted.
    Big Hugs
    Kim
    [This Message was Edited on 01/14/2007]
  12. RedHeadEMT

    RedHeadEMT New Member

    Hi Tina! Welcome to our little community!!! ::hugs::

    Thanks for your input! I will definitely let everyone know how it goes with the morphine IR and if that doesn't work, I'm glad to hear from someone that the dilaudid is a good choice to try.

    You know what I say to people who are SHOCKED at "high" levels of pain meds? "PISH POSH!! Unless you've been there and done that, shush! What dose and med may work for you may not work for squat for me!" Each body is SO very unique and special, with its own indivual chemical composition, its own pace of breakdown, etc. I'm tired of shocked doctors and amazed nurses. It's just so annoying.

    Wow! What prompted such a huge move to CO? Do you find that the weather in the bay was better for your symptoms or that CO weather is better? Just curious.

    Thanks for letting me know about the covered meds. I will def ask about the avinza during my next pain doc visit. Wouldn't it be nice to just take one dose for 24 hrs instead of 3?

    How exactly does the Actiq work? I've always wondered how you make sure to lick the proper amount and how quickly it kicks in, how it makes you feel, etc. I'd appreciate any info you may want to share on that.

    Anyways, take care of yourself. Good luck on the pump surgery...when is that? What other pain probs do you have, if you dont mind me asking? Do you get a choice of what med gets put in the pump? Hm...

    gentle XOXO

    K
  13. TinaJones

    TinaJones New Member

    I just want to second everything - literally, every word - that Readheademt said to you. For a doctor to say to you that he doesn't believe in breakthrough meds is ridiculous.

    I'm really glad to hear you have an appointment with a pain specialist. Tell him what you've used before that has worked. Re: the OxyIR - there IS straight oxycodone immediate release. It doesn't contain any acetaminophen, etc. I, too, try to stay away from that or aspirin as I do agree that it's worse taking that, in terms of the liver.

    Re: your morphine dose - we are all different...it takes a little bit of meds for some, a lot for others. In my opinion, you are on a pretty low dose of morphine (look at my above post for my meds). We should obviously try to use the least meds we can, but I can't understand your doc saying you are at a high dose???

    Re: addiction - I think so many doctors fear the DEA coming down on them, or a lawsuit or whatever. I think I read a statistic that said only 1% of chronic pain patients become addicted to their meds. There is a MAJOR difference between addiction and physical dependency. Yes, after awhile on pain meds - a person's body does become dependent on them...which just means you can't just quit cold turkey (well, you could - but you'd be very ill). Addiction is completely different.

    Point being, I hope you have a really good appt with your new pain doctor. Explain everything to him; what's worked/hasn't worked, etc. Most good pain docs will give you something for breakthrough pain - the days where you get a worse than normal headache, or more than usual back pain, or whatever your personal pain issues are. Yes, it's good to be at a high enough long-lasting med dose that you don't need breakthrough meds all through the day, everyday. But it's completely reasonable to request a breakthrough medicine for the worse-than-normal days.

    I hope your appt with the pain specialist goes really well and that you walk out of there feeling like you were understood and got your needs taken care of. Let us know how it goes. Take good care! --Tina
  14. TinaJones

    TinaJones New Member

    Thanks for the welcome; I've been a member of the board for a few years - but my kids are just now at the age where I can steal a moment or two away (I have six boys, ages 11 down to 3). :)

    Re: the move to CO: it was a HUGE change. I lived in the Bay Area my entire 32 years - even going to college at Saint Mary's in Moraga (that was my big move away from home - what? 20 miles)!! But I'm a lot less homesick than I thought I would be, except for missing my parents and good friends terribly. We needed to come here because of my husband's job. I'm not sure how long we will be here, and whether we would leave if we have the chance, I just don't know. There are many, many CA "transplants" as many here call them! It's beautiful here, and there are MANY more sunny days than I thought there would be (we are in the 'burbs of Denver). BUT, yes, the cold December/Jan has caused me higher pain than usual. I'm taking many more HOT baths these days. The biggest thing, though, is that I've finally found a great team of doctors - in CA, Kaiser took a more wait-and-see approach; here - my doctors are MUCH more aggressive. They are like - you are 33, with six kids - we've got to get you at least a bit more functional. So, that's been a huge blessing.

    Ok, onto other things :) Re: Avinza - it's a capsule full of tiny balls that release over the course of the 24 hours. My doctor had me try taking half the dose in the AM; half in the PM - then trying it just once per day. There was no difference - so I just take it once in the AM. YES, it makes a HUGE difference not to think about taking meds all day long. Because, inevitably - I'd forget a dose, and then be behind in terms of my pain.

    Re: the Actiq - I have to say that this is the first thing I've taken that works for my pain...not much, but at least a little. I have a feeling it would work well in someone whose tolerance isn't as high as mine. The method is a little tricky because you don't want to "lick" it like a sucker because then it goes to your stomach - and it's missing the point of the meds (to get directly into your system). So, you have to keep twirling it around the sides of your cheeks, etc. The great thing for someone in chronic pain is that it works in 3 to 5 minutes. Yes, it is WAY expensive - it would be $1300 for 30 if we didn't have insurance (and the Avinza IS expensive too, about the same amount). But, like I said, thankfully Kaiser covers it. I hope you'll discover that Kaiser in CA will cover some of these meds (in the event that yours don't work, but I hope they do!!).

    Re: the pain pump (intrathecal drug delivery system) - my pain doc mentioned it about five months ago - because of my pain levels, all the meds I've tried, etc. I said no at that point but researched it over the months, read people's stories, etc. Nothing comes without a risk, even the oral meds we are on. So, as my Avinza dose kept going up - I finally said that I wanted to try it. My husband had wanted me to get it months ago. So, I go in in about two weeks for a three day "trial"; my doctor thinks I will definitely do fine with it - and I'll stay two more days to have it implanted.

    They can put a variety of things in the pump - morphine, hydromorphone and Fentanyl are the most popular that they use. The doctor decided no on morphine because it has a threshold to how much you can use in the pump without things going hay-wire with the cathetar; so it was between Dilaudid and Fentanyl - and, after the Actiq worked - we decided to go with Fentanyl. Side note: it takes such a little amount of meds for it to work - because it goes directly into the spinal region (where our oral meds eventually go to anyway). So, in reality, I'll be on much less meds than now, and I'll have an oral breakthrough (probably the Actiq) as needed.

    Well, I've written a book already :) SORRY! Thank goodness I type fast!! I will write later or tomorrow to answer about my whole pain issues (in brief, I promise!). But I need to get the kids tucked in and get my own self to bed shortly.

    Like I said - I hope the MSIR works for you - that would be great! And I loved your response to people who comment on the amount of meds. That is so true - until you've walked in someone's shoes - NO comment!! Take good care --Tina
  15. RedHeadEMT

    RedHeadEMT New Member

    I'm a St. Mary's alumni also!!! I got my Bachelor of Arts degree in Political Science/Pre-Law, with a concentration on women's issues and environmental law in 2004. When did you grad and with what major? Had you done anything with your degree? Any fave professors?

    I'm so excited for you about the pump...I really hope that it works for you because everything you wrote sounds wonderful, if it works like it should.

    So, the Actiq pop is actually FENTANYL released directly into the very vascular mouth/cheek and tongue, being absorbed into the bloodstream way faster?...cool. How do you know when to stop rolling so that you don't overdose on the med?

    I can't believe that you're a mom of six!!! You are amazing, girl!!!! I can't even begin to imagine how hard your life must be. I can't even imagine having ONE baby to deal with now. My husband and I JUST became godparents for the first time today, actually and we're excited about that cuz we can spoil him and love him and send him home when he's cranky or being a brat!! lol I do have tons of experience with kids cuz I basically raised both of my little sisters. I was 11 when my first little sister was born and immediately started changing diapers and waking up to her in the middle of the night, when the second little sis was born 4 years later...same thing happened. But I was healthy and younger than with no FMS. Case closed.


    Anyways!!! Write when ya geta chance!!!! :O)

    GENTLE XOXOXO,


    K
  16. Fudge43

    Fudge43 New Member

    That is so nice to see an individual note back to input, thank you !
    I love hearing about your hubby and his garden adventures .. I think that is so wonderful .. I'm jealous that he has a longer gardening period with warm weather over there .. and more exotic looking plants because of your climate !
    I also try to use as many native plants as possible .. and I love herbs .. I jar Tuscan Rosemary every Autumn for little Xmas treats, for friends.
    Ontario's weather this year ( as well as so many other places) is so out of sync it is a worry. In light of that ... I'm still busy planning my garden ! haha

    My hubby and I are so lucky to have a such good GP .. there is a shortage where we are , so there is no option to find other doctors .. i feel so sorry for people here that have bad ones .. and we have our share of them too !

    My hubby has serious issues with exposure to extreme toxins from his tour of duty in Gulf '91 .. so that is always in the back of our minds .. the depleted uranium, oil well fire smoke every day .. extreme heat cooking it even further .. it is like waiting for the "other" shoe to drop .. and that is STRESS.
    It seems we have all gone through a very stressful impact(s) and that affect is ongoing.

    This 12 hour business is so ridiculous with these meds .. I have adjusted my scheduling of it to "me" it is a shorter period in the day time .. and at least at night, I have the hydromorphone when it gets to be too much to handle. So I am managing it on relatively low doses .. BUT .. I know I have room ? to go up when I have to , so that is a comfort.

    YES .. the people who can't get a good doctor that will help them with proper pain meds .. what hell on earth that must be ? .. that is NOT the basic ethic of a doctor .. "first cause NO harm" .. they ARE causing harm to that person who is suffering.
    Wow .. sounds like I am on my soap box again .. haha

    In any case .. I enjoyed reading your bio .. I was pre law in university too .. funny , I bet a lot of women started out that way .. seeking JUSTICE ? haha
    I also had mono around the age of 20 .. a lot of us had that from what I have read. I makes you wonder .. is that the open door combined with the rest of what happens ?

    Thank you for the compliments on my kitties .. we love them so ! .. animals help when you are feeling rather at odds with the world. Cats are our specialty though .. they are less demanding than dogs, haha

    I hope you find the answers and help you are looking for !
    Good Luck !
    Fudge Joy : )
  17. shelby319

    shelby319 New Member

    I want to thank all of you and Readheademt and TinaJones, you two gave me great feedback and don't make me feel quilty now about the amount of pain medication I take, like my Dr. does.

    Redheademt~~I know how you feel with your accident and how it effected you, for which I'm so sorry about, but the fear of getting back into the car for me was a long process as I used to get panic attacks afterwards and wouldn't drive for the longest time! Now ten years later I am still a little nervous as for driving long distances, but I use "baby steps", and do a little at a time and walk my mind through my own therapy program. LOL!!

    For the pain specialist I see this Thursday, you both gave me some of the best advice I've ever gotten, and that I thank you for so much!! I will tell him what has worked for me and what hasn't worked the best. I think my own Dr. got a little nervous about using alot of narcotics and trying so many different ones, that maybe he was being questioned by the DEA or something. Because he's usually pretty good as far as helping me. I just couldn't get beyond he belief of no breakthrough meds, to the point of me looking it up under everything I possibly could, to find out if there was something wrong with me or if it was him!! Now I know its my Dr., and not me!! So, no more quilt on my part!!

    Also I know now how these drugs do work and how they do loose alot of their strength with a time release form after awhile, and again its not me!! It's the pill!!

    I also know that the MS Contin 30 mgs is not alot of medication, and that I do need extra relief during the day, and thats my pain talking and telling me to do something about it, which I was afraid to do something about!! Now I feel normal in my thoughts!!

    I did list all my meds I take and which ones work and don't, and what type of side effects I get on each one. Is this something we all should do when we see a pain specialist? I tried also to tell him how my type of pain is, and made a calendar of everyday and what I was doing that brought on extra pain and what type of pain it is. Another good thing to do?

    I did want to add that this is a pain management Dr. who I have seen before, that gave me spinal injections for my back a couple of years ago. So, he does know some history of me and he also was one of the anestheoligists that was in the operating room while I had surgery on my knee after my car accident. Handsome, and I mean handsome man, and very compassionate, understanding and also treats Fibromyalgia. This is a good Dr. to see, right? I do hope I found the perfect Dr. and he will understand why we need something for breakthrough meds!! Anything to help with this pain, which is more than just having this DD, but all my other pain issues.

    If it takes narcotics to help me function and live a semi-normal life, than I want to take them no matter what others think, or the possiblity of addiction or tolerance!! Or the stigma of taking narcotics which so many friends or relatives think is awful for us to take!! They believe if we are on them, then we can't function normally!!!

    So, my question would be...is it wrong to ask for another pill to take along with the MS Contin that is in the narcotic family without some Dr. thinking your drug seeking? I'm not, I want to be normal and live my life to the fullest!!

    To Readheademt...my bread recipe got put under the chit chat board after I posted it here. Hehehe..I guess they thought it didn't belong here, but I didn't know that at the time. Its an easy bread to make and I use the bread machine to do all the kneeding for me..it sure makes it easier on my arms and then take it out of the machine and let it rise and then put into the oven. Let me know if you find it on the chit chat board...if not, maybe I can redo it here or somewhere else, as it is a really good tasting bread if I say so myself!! LOL!!

    Is there anything else I should know before my apt. this Thursday or what else to ask or tell him...this will be my last hope I think..so any help would be greatly appreciated once again girls!!

    Thank you all for everything you've done for me, and to make me feel so much better about myself, as I was starting to doubt myself and my pain problems by the way my PCP was making me feel!!

    Gentle hugs to all and to you Readheademt and TinaJones, I can't say enough about all your help and encouragement through this difficult time. I guess you could say, I've been a little depressed over all this and this upcoming visit to the pain specialist.

    Oh, Readheademt..let me know how you make out on the breakthrough med, and maybe thats what I'll ask him for my pain also!
    Sparkle and shine everyone~~
    Shelby
  18. RedHeadEMT

    RedHeadEMT New Member

    Sorry it took so long to repond. But, I'm on it and ready to answer your questions!!

    As for asking for something for the breakthrough pain, I think that you should ABSOLUTELY do it. Just be careful how you phrase it. Ya don't wanna go in there, going, "Hey! I need some more drugs cuz the drugs that I'm already on aren't nearly enough!" lol

    I would explain to him that the MS Contin has helped to dull your pain most of the time, but that there are times during the day, after you have already taken your MS Contin, where you have a big bounce in your pain level and it's really decreasing your quality of life. Medical professionals will usually respond very positively to that, since it shows that your main concern is your abaility to live life like most "normal" people.

    Your doc may then SUGGEST something to you. I would give it a try and if it doesnt work, let him know asap and he should be willing to continue trying new things for your BT pain until you find the med that matches your chemistry the best.

    I'm so happy that we were able to help oyou in any way that we can. Anytime you have ANY questions at all, please feel free to ask. I'm always happy to help.

    I will def look for your bread recipe, although I think we just gave away our bread maker! SHOOT!

    As for the MS IR...I think that sadly, the Norco works much better, especially in combo with flexeril or soma. I will continue trying the MS IR today, but I dunno about it...hm.

    Well, keep me updated as to what happens on Thurs ok? Good luck, athough I'm sure you don't need any!!!!

    gentle hugs,

    K