MRI--Madwolf, please, your 2 cents.......

Discussion in 'Fibromyalgia Main Forum' started by Combatmedic, May 9, 2003.

  1. Combatmedic

    Combatmedic New Member

    Dearest Madwolf, (and anyone who reads this)everyone's opinion is equally important, just need medical help descrambling this

    For the past.....13 months, I have been seeing a neuro, for suspicion of MS. I have known about a 7mm lesion in the corpus callosum since it was found in April 2002.

    I have the report from my latest MRI, and need your help figuring out if it is talking about two different areas of my brain, and more than one lesion. I think I read it correctly, my Mom hopes I'm wrong. It says as follows:

    "today's examination again demonstrates small foci (foci is plural, correct?) of abnormally increased FLAIR and T2 signal intensity adjacent to the left frontal horn, as well as a small focus within the corpus callosum on the left."

    Now, I read this to say there is at least two (possibly 3? lesions). My mom keeps saying that "maybe it means the frontal horn OF the corpus callosum" My friends on an MS support site tell me that I probably have 3 lesions. What is your take on the subject? The left frontal horn, and corpus callosum are two *different* areas, right?

    This will help me in my decision to see an MS specialist or not. I thought previously that I had only the one lesion in the corpus callosum, so, I declined to see a specialist in Indianapolis, however, if I do have lesions in two different spots, I think maybe it is time to see a specialist.

    Any help on this would be greatly appreciated.

    Thank you again,
  2. Combatmedic

    Combatmedic New Member

    I just hated to bother you, I know you get bombarded, I just couldn't really come to a definite conclusion one way or the other. Unforutately, the report does not have a specific conclusion area, however, this is what the "Impression" says at the top:

    "stable hyperintensities adjacent to the left frontal horn and within the left corpus callosum versus 11/02." (my previous MRI--the 2nd one) this report is the third.

    So, do you think it is safe to assume (is it EVER safe to assume? lol) that there IS more than one lesion, but that the radiologist is saying the two or three that are there have been there for a while?

    Honestly, I'm embarassed at the lack of questions on my part, the thing is, my neuro took my head off on the first visit after misunderstanding a statement I made, he thought I was attacking doctors, and I was only explaining that "I've been sick for two years now, and the doctors haven't been able to get me better" he snapped back at me, "don't blame doctors!!! THEY DIDN'T GIVE YOU FIBROMYALGIA, GOD DID, SO BLAME HIM!" lol---I didn't think I was blaming anyone.

    Anyways, since then, he has always been fine, even cracking jokes, so, I think part of me is afraid to ask questions for fear of triggering another psychotic episode from him! LOL.

    Well, thank you for taking the time to try to help me out. I see the neuro again in July, and will talk to him then, also, I have e-mailed the expert panel at MS Watch and asked them to explain to me further, although they said it may take FOUR weeks to answer a question! lol

    Thank you again,
  3. sujay

    sujay New Member

    Best discuss this with your doctor first. MRIs (and other imaging tests) often pick up what we call "noise", which is findings of unknown significance that we don't really know how to interpret. Your symptoms are probably much more significant, which is another reason you really need to discuss this with your doctor. I'd also recommend checking the search engine on this site for any postings on ISAC. O think hypercoagulation plays a big role in many FM/CFS patients - problem is most doctors don't know how to test for it. Tell your doctor it might be a variant of Anti-phospholipid Antibody Syndrome, and let me know if you or he want any further information. (Dave Berg, of HEMEX Labs, has an interview in the archives of this site, and there website is another good source of information.

    Lots of MS patients are thought to have CFS initially, and vice versa. As many as 13% of patients diagnosed with MS turn out to have Anti-phospholipid Antibody Syndrome, which has scary symptoms but is eminently treatable. Good luck to you as you search for a solution to your problems, and please let me know if I may be of any further assistance.
    [This Message was Edited on 05/09/2003]
  4. Combatmedic

    Combatmedic New Member

    We have ruled out any and all differential diagnosis. However, the report mentions small vessel ischemia (the radiologist) the neuro disagrees. I'm 25 and he said my symptoms are more MS related, not indicative of small vessel ischemia. In fact my first MRI said, "due to the patients age, and the location of lesion, MS should be considered,rather than small vessel ischemia" now on the third report here, it says just the opposite.

    Madwolf, I forgot to answer your question "what does your neuro say"......

    He has always just plopped down in his chair and said nothing had changed. He said this is a good sign that if it is MS, it will be a mild course (RRMS).

    Now, March 18th, while I was registering for my lumbar puncture (which was normal) My mom and my neuro were talking, and she said, "So what are you looking for with the lumbar pucture" he said "mainly MS, we typically see Trigeminal Neuralgia in young women with MS". (I was dx'd with trigeminal neuralgia in June 2002).

    Also, I have had a somatosensory evoked response (SSER) which showed "nerve damage consistant with lesion location". I have hyperreflexes, and no reflex in my right heel. I had a negative hoffman's sign on one visit, and then at another visit it was positive on both hands, notes said "perhaps more brisk on the right". Also noted is hypertone in legs, more so in left leg.

    My labs also say "rare mononuclear cells noted on concentrated cytospin preparation; " I have no idea what that means nor if it is significant.

    Also had numerous other things that were off by a few pts, mostly liver enzymes, etc. BUT also says vit B12 deficient and recommends additional testing. Neuro told me everything was normal---all in all there is about 12 or so things that are in bold type because they are borderline high or low.

    gotta love fibro,

    Thanks again and again you guys.

  5. Combatmedic

    Combatmedic New Member

  6. sujay

    sujay New Member

    Get started on B-complex right away, and get your B12 over 540 as soon as you can. This will probably not solve all your problems, but it can prevent more problems, and might help you feel better. Keep working with your doctor. Both of you need to be patient; treating this illness is like trying to untangle snarled twine.

    You might ask your doctor to check out the viscosity of your blood. "Sticky blood", like we find in Anti-phospholipid Antibody syndrome, could interfere with circulation and look like small vessel ischemia, which we definitely do NOT expect to see in young people.