Discussion in 'Fibromyalgia Main Forum' started by kitteejo, Aug 20, 2008.

  1. kitteejo

    kitteejo Member

    Has anyone else had this result of their MRI of the brain?


    I've had three MRI's and all three showed this result.

    Is this part of the CFID diagnosis? I thought I read that somewhere. What does it mean?

  2. DeborahLynn

    DeborahLynn Member

    Yes, I've read in many places that CFIDS patients have this, but at the present time, a person can be diagnosed with CFIDS without getting an MRI.

    God bless! Debbie
  3. ladybugmandy

    ladybugmandy Member

    yes...this is typical of many CFS patients, but not all.

    i do not think it means permanent damage.
  4. lucindalouise

    lucindalouise New Member

    Hi! I had an MRI about 4 years ago, Dr. suspected MS. Fortunately it wasn't, but I did have a large amount of white matter which no one had any idea about, and it was never discussed. What is CFID?
  5. ladybugmandy

    ladybugmandy Member

    everyone has white matter. what did they see in the white matter?
  6. mbofov

    mbofov Active Member

    Did you ask your doctor what the "small bright foci" meant? He or she should tell you.

    I just had a brain MRI this week to check out my pituitary and will be getting the results next week, so I'll be curious to see if I have something similar.

  7. kitteejo

    kitteejo Member

    The Radiologist statement is this: These findings are seen with remote ischemic infarctions, vasculitis, migraine headaches, Lyme disease or demyelingating plaque formation. Clinical correlation and possible follow-up studies are recommended.

    None of the doctors that I was seeing at the time seemed concerned. A Rhemy, Neurologist, PCP and Infectious Disease.

    I found an article from at Dr. Anthony Komaroff form the CFID Association that states: Abnormalities in the white matter of the brain have been found in CFS patients using MRI scans. Typically, these are small(fraction of an inch) areas just below the cerebral cortex, the outermost area of the brain hemispheres. Differences in gray matter volume are also being observed.

    Maybe this is a way to help with a diagnosis.

    I sometimes get a severe pain in my head like a hot poker about the size of a small pea and it stops me from moving and only lasts for about 10 seconds. It feels like something is bursting in my brain.

  8. Jayna

    Jayna New Member

    At least, that's my excuse for when I've completely forgotten something that used to be common knowledge.

    "I sometimes get a severe pain in my head like a hot poker about the size of a small pea and it stops me from moving and only lasts for about 10 seconds. It feels like something is bursting in my brain. "

    kitteejo, that has happened to me too. Several episodes over a few months, then nothing for a year or more. But I instantly recognize it when it starts up again. And it really does feel like something 'popped' in my brain. Are yours more on one side than the other, too?

    None of my doctors have ever had an explanation for it; it's filed under the symptom 'change in pattern, severity or frequency of headaches'.
  9. kitteejo

    kitteejo Member

    Mine is usually at the right temple but sometimes the left. It's very painful. I haven't told my doctor because I don't want another MRI or to be sent to another specialist. Hope I'm not being stupid. Mine come more often than a year but no idea of the connection of it.

    What do you mean by "filed under the symptom"?

  10. moreinfoplease

    moreinfoplease New Member

    Those of you who have had a brain mri, was it with or without contrast?

    Mine was all normal, and was without contrast.

    I'm just trying to make sure the right kind of test was ordered.

  11. Rafiki

    Rafiki New Member

    more than a dozen hyperintensities in deep white matter.


    [This Message was Edited on 09/22/2008]
  12. kitteejo

    kitteejo Member


    I have had three of them, two without contrast and one with contrast. The results were the same on all three tests.

  13. jenn_c

    jenn_c New Member

    He had some funky virus ( no one ever found out what it was) when he was 2. It lasted 4 months and it had attacked his neurological system. He had 2 Brain MRI's. Results: certain parts of his brain light up brighter then others. pediatric neurologist didn't know why. He was dx with ADHD at 4 and has learning disorders on top ofit. He also still gets hand tremors.

    Any thoughts?? Jenn

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