MRI Results

Discussion in 'Fibromyalgia Main Forum' started by Danielle, Apr 5, 2006.

  1. Danielle

    Danielle New Member

    Hello,

    The MRI showed 7 herniated disks in my thoracic spine. None were affecting the spinal cord. I think that the technician probably had not seen someone with that many bulging disks in that area.

    The doctor wants to do a myelogram and said surgery would probably help relieve some of the nerves that are compressed. I'm not sure about having surgery with fibromyalgia.

    I'm getting more opinions before I do anything. I just wished the technician wouldn't have put me through 2 days of unnecessary stress. She had said "I don't mean to scare you, but she needed to talk to the doctor to see if I should see the doctor sooner"

    I was afraid of major surgery or a tumor because I had smoked along time. I have anxiety and my mind always thinks the worst. Thank you for all of your concern.

    Danielle
  2. neen85

    neen85 New Member

    I bet the tech thought you were in pretty severe pain and didn't want you to end up having treatment or pain relief delayed due to the severity of your condition. Or perhaps she was wanting to see if he was going to order another test on the spot due to the large number of discs affected.

    I am glad you are getting help and no tumors were involved Danielle! Keep us posted on what you and the doctor decide to do. Daneen
  3. kjfms

    kjfms Member

    ...I am so sorry for all you are going though and wish you the best in your pursuit of help.

    Now...that said :)

    I think you should report this Technician because it is not a her place or job to make any comments to patients. That job fall to the Radiologists and Physicians.

    Your situation shows exactly why technicians should not comment (also their training-they are not physicians), because it can cause a lot of stress to the patient and frankly she should have known better.

    I do hope you will a least write a letter to the head of the hospital or their compliance officer, if you feel up to it. It may help in reining the technician in and save this from happening to other patients.

    Again I do hope you feel better and I am sending you my good thoughts.

    Take care,

    Karen
  4. Pianowoman

    Pianowoman New Member

    I think the tech was just doing her job although she could have said it in a different way so as not to cause you more stress. She is obliged to check further into results that she sees as possibly a problem. If it had been more serious and she had ignored it, she ( and you) could have been in more trouble.

    I'm glad you have seen the Doctor and have some answers.

    Kathy.
  5. ckzim

    ckzim New Member

    I know exactley where you are coming from though...it is scary when someone, who we think is the professional..makes comments, then just sort of leave you hanging there...

    The comment made to me was..."that don't look good"
    I thought I would faint right then and there.

    Anyways...I have Fibro..I've had surgery, on 4 discs in my neck...I smoke...(like a chimmney)...and I got scared about those things too...but all was fine....really wouldn't of NOT had the surgery...

    It really did help...with lowering the pain level...the fatigue, as the pain wasn't as intense...just the whole thing...was well worth it.

    Hope this helps alittle.
    KathyZ
  6. Cromwell

    Cromwell New Member

    I had posted to you, but it went off the board for some reason.


    I know having all these discs bulging is no pucnic but I am glad things are treatable.

    You are right to get more opinions when it comes to surgery.

    I also think we all need to watch some of our postings(NOT YOURS) on scary topics as I can see how it affects many of us. We all mean well, but we need to stop and think before we post-the web is full of scary stories.

    I am glad you were able to get some support here and hope you can put your mind at rest now. Always remember what I said to you about "not all people who drive cars have accidents"-it is true, we can get in a right old state just because of little bits of information and not the whole picture.


    Love and good luck,

    Anne C
    [This Message was Edited on 04/05/2006]
  7. Danielle

    Danielle New Member

    It took me 9 years to get this test. At least now I have proof that something is wrong. I e-mailed my doctor at Kaiser and told her what was found. She immediately set me up with an orthopedic specialist.

    I want to try and get all of this approved through Kaiser and maybe get a referral back to the doctor at the university. I'm not rushing into any surgery. It is very uncommon to have thoracic disk hernations. It's like 1 percent of patients will have problems in that area.

    Maybe if they had found this earlier I could have had therapies that would have helped or kept things from getting this bad.

    I forgive the technician. I'm sure she was probably concerned with what she saw. I am angry that I have had to endure this much pain for so long under the assumption that it was "all in my head". I am angry because I was treated like a hypochondriac. I knew something was wrong but they weren't listening.

    I am going to contact the media or a government official regarding this. People with fibro and chronic fatigue are treated differently and that is wrong. I will keep you all posted on what happens with this. I work for the government in the health department, maybe someone here will listen to me.

    Danielle