My Doc says CFS and Fibro are the same

Discussion in 'Fibromyalgia Main Forum' started by puffy1, Nov 16, 2006.

  1. puffy1

    puffy1 New Member

    My dotor told me on my last visit that in his oppinion CFS and Fibro are the same thing.

    He said this while relunltantly filing out the questionaire the attorney gave me to give him he was not happy about doing it and kept thowing out sacastic remarks.

    I am not sure if it is the same thing or not. I only know that after I was dx with mono in 88 I never really got my strenth back the pain I think came later but its been too long now to try and go back and oin point that.

    any one else have a differnt veiw on this??

    Puffy1
  2. mezombie

    mezombie Member

    This was posted by Suzetal a few days ago. Maybe this explains why your doctor thinks CFS and FMS are the same.


    What's in a Name: Fibro vs. CFS
    Fibromyalgia and chronic fatigue syndrome (CFS) share a number of symptoms, and the names are often used interchangeably in the medical literature. If you're confused about the difference between the syndromes, you're not alone. Even doctors are confused. Many experts, however, think fibromyalgia and CFS are the same -- or are at least variations of the same -- pain and fatigue syndrome.

    Research shows that between 50 percent and 70 percent of people with fibromyalgia also fit the criteria for CFS, and vice versa. Because the symptoms are so similar, the difference between one diagnosis and another may be simply a matter of degree. "Most patients with CFS have some kind of pain, and, of course, that is a hallmark of fibromyalgia. And most patients with fibromyalgia report fatigue -- a hallmark of CFS. Likewise, both involve a high frequency of sleep and cognitive disturbances," says Cary Engleberg, MD, chief of the infectious diseases division at the University of Michigan Medical School in Ann Arbor.

    The diagnosis also may depend on whether your doctor is more familiar with the criteria for CFS, developed by the Centers for Disease Control and Prevention (CDC) or those for fibromyalgia, developed by the American College of Rheumatology.

    There are a few documented differences between the conditions. Fibromyalgia often is traced to an injury or physical or emotional trauma, whereas CFS tends to have a flu-like onset. Researchers have found that people with fibromyalgia may have abnormal levels of several chemicals, such as substance P and serotonin, used by the body to transmit and respond to pain signals. Also, people with CFS only do not have tender points.

    These findings have led to different trends in research. Many fibromyalgia researchers have explored problems with pain transmission and pain amplification that may affect the condition. Researchers who study CFS have tended instead to investigate what role viruses may play in triggering CFS.

    Until researchers determine conclusively the fundamental biological, neurological and psychological differences between the syndromes, the diagnostic label makes little difference as long as both the physician and the patient take a comprehensive approach to treating symptoms. "Rational treatment consists of maintaining good general health -- in other words, a balanced diet and exercise as tolerated, and symptomatic relief of pain, sleep or mood disorders with carefully selected medications or cognitive behavioral therapy," says Dr. Elgleberg.
  3. suz45

    suz45 New Member

    I'm not sure if CFS and FMS are the exactly the same but I think they are in the same family. In the past seven years since my dx. the one thing I have discussed with other professionals are some of the differnces. I have noticed that people with CFS usually mention a virus, strep, serious illness or infection and than the CFS rears its ugly head. On the other hand the people with FMS and CMP seem to have had a physical trauma such as car accident, fall head injury or surgery which seems to trigger there symptoms.

    I have noticed for myself with FM/CMP that I do not have the same level of chronic exhaustion nor do I get the sore throats or infections that seem to really affect the people with CFS. Both my PCP, Neuro and now my new chiro seem to agree that they are related and are in the neuroimmune disorders spectrum but that FM peole respond one way and CFS another unless you have both which does happen. Either way we are all dealing with chronic ongoing issues that need addressing. This is just what I have researched and discussed. I think the vote still may be out, perhaps a hanging chad (lol)

    Suz45
  4. puffy1

    puffy1 New Member

    I have had all of the above no wonder I feel like crud lol
  5. Marta608

    Marta608 Member

    Grumpy that he is, I think he's right. I think FM is a symptom of what is stupidly labeled CFS. The reason I think this is that I had CFS for 11 years before I quit an SSRI too quickly - and then I added FM pain to my symptoms.

    Marta
  6. charlenef

    charlenef New Member

    i think there is a connection with somethings i am never tiered though i am physical week and fatigued i am not sleepy at all i never nap and im in bed most of the day. hope this helps charlene