My Doc says Giving blood might help FM

Discussion in 'Fibromyalgia Main Forum' started by AJME, Oct 27, 2002.

  1. AJME

    AJME New Member

    Hi All,

    I was wondering if anyone here gives blood and if they feel better Physically after doing it.

    My doctor suggests that giving blood could be benefitial because your getting some of the poisons out of your body (contained in the blood you give) and I guess your body has to generate new purer? blood.

    BTW...I'm not condoneing this....Blood letting (not giving blood to the RED CROSS) was popular for hundred/thousands of years before modern medicine. Might have been useful in certain situations for those Hundred/Thousands of years. The old practive of using Leeches to keep open wounds from infecting is making a comeback in modern medicine. (very effective). Something to think about.
  2. AJME

    AJME New Member

    Hi All,

    I was wondering if anyone here gives blood and if they feel better Physically after doing it.

    My doctor suggests that giving blood could be benefitial because your getting some of the poisons out of your body (contained in the blood you give) and I guess your body has to generate new purer? blood.

    BTW...I'm not condoneing this....Blood letting (not giving blood to the RED CROSS) was popular for hundred/thousands of years before modern medicine. Might have been useful in certain situations for those Hundred/Thousands of years. The old practive of using Leeches to keep open wounds from infecting is making a comeback in modern medicine. (very effective). Something to think about.
  3. lucky

    lucky New Member

    That is news to me that giving blood will help getting rid of all the poison in the body. What about those people receiving our blood with these viruses/bacterias and whatever we like to give to them? Poor souls.
    Kind regards, Lucky
  4. BonBons

    BonBons New Member

    That's interesting - my husband is always telling me maybe I'd feel better if I got a blood transfusion - maybe there is some truth to that! BonBons
  5. years ago I had to have alot of blood given to me in blood transfusions during a surgery and have wondered ever since if I got something myself from someone who had fibro ?
  6. karen2002

    karen2002 New Member

    Blood letting was common---but there was no medical benefit from it. As a matter of fact--President George Washington--died as a result of this practice. He had fallen ill with a virus, and since his personal physician was unavailable, he had his barber let blood. (Barbers often practiced, this--thats where the red and white barber poles originated) Then upon his physicians return, he insisted, against the physicians advice, it be repeated. He succumbed shortly thereafter, as his blood volume had become dangerously low.
    There are many natural ways for poisons to be filtered and excreted from your body. Voluntary bleeding is not natural.
    I think it is important to keep the nations blood supply at high levels. There are plenty of healthy people to make this contribution. I do not think those with afflictions such as these are good donors. I for one, would never want to risk passing on my afflictions. Since the cause of fm/cfs is unknown---i feel its a very poor idea.
    Karen
  7. AJME

    AJME New Member

    I think our blood could be good for others with normal immune systems and not cause them problems.
  8. Mikie

    Mikie Moderator

    This discussion just came up. It is just not safe for us to do this until more is known about infectious factors in our illnesses.

    Some people do feel better when giving blood on a regular basis, but for some, it is a very fatigueing process, even in healthy people. For us, it could put us in bed.

    The biggest reason to not donate blood or organs is to protect innocent people from possibly getting our illnesses. This holds true with bone marrow as well.

    Love, Mikie
  9. AJME

    AJME New Member

    Found this info a message board. Don't know who posted it but the person gives 4 reasons for FM. Hemochormatosis a rare blood disease is treated by giving regularly to RedCross. This disease is problem because people collect too much Iron in the blood. Anyone been tested for Hemochormatosis?

    FOUR CAUSES of fibromyalgia
    -----------------------------------------------------------
    Fibromyalgia is a SET of SYMPTOMS. In order to cure fibro, we must KNOW what CAUSES it. I have found 4 illnesses that CAUSE fibro, three of which *may* be fatal if left untreated. There may be hundreds of causes out there, but fibro does NOT cause fibro!

    You can find internet sites on the 3 following illnesses:
    Chiari Malformation, a problem w/ the opening in the skull where the spinal cord goes through. May be inherited, or formed via a mutation or caused by an accident. *May* be fatal, but not always.

    Hemochromatosis, a blood disease where too much iron is found in the blood, causing the body to store it in various organs and which causes irreparable harm to that organ/s leading to death. Simple control is blood-letting on a regular basis at something like the RedCross.

    Wilson's Synrome is caused by thyroid function and body temperature that is too low. NOT fatal, can sometimes be cured permanently.

    Fourth is an inherited illness called Familial Mediterranean Fever, thought to be rare in the US, but I have a list of about 300 people diagnosed w/ fibromyalgia and other illnesses who are now healing w/ control for the medication for FMF. This illness is fatal if left untreated.





  10. karen2002

    karen2002 New Member

    People in need of transfusions are suffering illness, trauma, etc. which tax their immune system. That does not fall in the normal...category. The gift of blood from us--could very well be a trigger, on an already suffering system.
    Karen
  11. Mikie

    Mikie Moderator

    Is that between 60 and 70 percent of us have chronic mycoplasma infections which are stealth and can cause horrible symptoms. In addition, many of us also have other stealth pathogens in our systems.

    I know how hard it is to rid the system of chronic mycoplasma infection because I have it and have been on antibiotics for about a year. If I try to go off them, my symptoms recur with a vengeance.

    I would never want to visit this illness on another.

    Love, Mikie
  12. granmama

    granmama New Member

    ....and that is when my fibro started during the de-ironing process.
    Hemochromatosis is a genetic disease. It is common among those with Celtic, Irish and Scottish decents.
    Phlebotomies (blood letting) is a process that removes the iron that has accumulated over the years. Most are detected in their 40-50th decade of life. Generally, one is given a script for weekly phlebotomies until their FERRITIN (stored iron) level is reduced to 20mg or below.
    Then, the patient is put on a maintenance schedule, usually 2-4 times a year.
    Excess iron can damage many organs such as: liver, heart, brain and joints.
    Fibromyalgia is known to be associated with Hemochromatosis.
    I would not recommend giving blood to feel better, it certainly did not work for me!!
    BTW, at the time of my phlebotomies, my blood was thrown away and not accepted by the RED CROSS.

    Everyone should have their FERRITIN level checked as a part of their annual exam.

    granmama
  13. lucky

    lucky New Member

    Mikie has explained it best of all. And it is not only us we have to think about - what about the recipients of our blood? Take care, Lucky
  14. toots2

    toots2 New Member

    Nothing personal but I think your dr. is a quack. My advice to you would be to see a rheumatologist, a dr. that specializes in fibro. What he is suggesting makes no sense. If we had poisons in our blood, why would we want to give it to someone else? Toots
  15. RoseTx

    RoseTx New Member

    The best advice I have for you is to run... NOT WALK away from this nut. He sounds like he got his license to practice from the corner store. I wouldn't let this guy touch me with a ten foot pole. Rose
  16. herblady

    herblady New Member

    what if the stealth virus theory is correct and we have viruses in our blood that could infect someone else? you might feel better temporarily but have infected another person with this. that dr. is a nutcase or stupid, take you pick. cindi
  17. garyandkim

    garyandkim New Member

    to risk the health of another. Our doctor who is also an infectious disease specialist says no one with FMS or CFS should give blood.

    Take care, Kim and Gary
  18. lindasue

    lindasue New Member

    regarding the Blood Donation post 10/23/02 10:15 AM

    Well I did some research after reading about donating blood. I call The City of Hope....Cancer Hospital here in Southern California. I spoke directly with a lady in charge of blood donation and she told me "under no circumstances" should a person with Fibro. donate blood. She was very direct about this answer and told me that expecially a person with cancer does NOT need fibro. in their body. Not only does it cause MORE pain....it breaks down their ability to accept marrow transplants for some reason......I'm sure the same goes for epstein barr/cfids as well. I am not trying to put down someone who does donate blood......I just needed to be informed myself and wanted to pass along what I found out.
    warm, soft hugs,
    linda

  19. sybil

    sybil New Member

    due to use of inhaled steroids and the fact i had hepatitis B in 1981.
    but i can't really see how this could help us and it may make the recipients of our blood quite poorly,

    sybilxxx
  20. herblady

    herblady New Member

    they won't take mine either because i had hepatitis b when i was 19. the lab has assured me i'm not a carrier but still, if you have the antibodies, they won't take your blood. cindi