My doctor says I have mono...

Discussion in 'Fibromyalgia Main Forum' started by namow, Mar 8, 2006.

  1. namow

    namow New Member

    What should I do, any advice??

    Is it contagious? I feel miserable but since I have felt this way so long I don't know how long have I had it or what.

    Also a relative is coming to visit next week should I tell him about this, should I be concerned about that???

  2. Mikie

    Mikie Moderator

    If not, call him. EBV left to its own devices can make us very sick. It can go stealth in the body, undetected by the immune system and keep us sick for years. I hope you are feeling better.

    Love, Mikie
  3. connieaag

    connieaag New Member

    Do you have FM and now have mono? My 13 year old dughter has had FM since she was 11, but never tested positive for mono or EBV. Monday (3/6/06) she went to the doc thinking she had strep because of white patches onher throat, and she tested positive for mono. Docs are confused because FM/CFS typically follows mono, not this way? Just wondering as she is in a lot of pain with the mono today.
  4. namow

    namow New Member

    I have the two of them but just this week because I was feeling so extremely exhausted got tested for EBV and got the call to tell me that I was positive
  5. Cromwell

    Cromwell New Member

    Last year I had reemergent mono wiht the high EBV and had a terrible year. Never relaly felt mono symptoms but I guess it weakened me for lots of other viral illnesses.

    I was told to rest. Also they are supposed to ultra sound the spleen to make sure it is not swollen as that can be dangerous. Mono is contagious in first form called "kissing disease" not re emergent form

    Love Anne C
  6. Mikie

    Mikie Moderator

    It can reactivate any time we get run down. Most everyone will test pos. for exposure. The trick is to keep it latent so it isn't make one sick. If it reactivates, one needs to take an antiviral to get it back into latency. The transfer factors will train the body to recognize when it reactivates and kill a lot of it off so that it dies down within the body.

    Love, Mikie
  7. momnlt

    momnlt New Member

    I have had mono several times, and my daughter has also had it - I think she got it from me. I was diagnosed with FM after I had the mono the first time, the pain and tired ness never went away. My Dr will not give any persciptions for Mono, says nothing can be done but rest. So I saw you list antiviral twice, what is it and what does it do?
  8. Cromwell

    Cromwell New Member

    so here goes again. I was never given an antiviral. Should I have been?
  9. lilchisler

    lilchisler New Member

    I have always wondered about this connection between Mono and Fibro.

    I was under a lot of stress with my job and my niece ( who worked for me at the time) had really gotten in with the wrong crowd, drugs, etc. She got Mono really bad and could not work.

    I worked her hours and mine plus dealing with all the family issues of a good kid going bad....

    This is when I first noticed that I started coming home and laying down before I could do anything at home. I had never done this. I was always the energizer bunny type. This went on for about 3 to 4 weeks where I was just weak and exhausted. I counted it as just too much stress and working too many hours.

    I then dislocated my shoulder and injured my rotator cuff and had to go the ER to have it set.

    The first thing they asked me was how long had I had MONO?? I did not know that I had it, never even thought about it. By the time that I found out, I had pretty much started recovering from that, but my shoulder pain and the injury would not completely heal. The doctors could not figure out why the muscle and tendon in the rotator cuff would be fine and on the next visit, you could literally put your finger in the gap between the ball and joint.

    Other things were going on too, but the fatique and the unexplained pain everywhere caused them to think of something more going on...thus...much later...diagnosis of Fibro and RA and Raynaud's,now possible Lupus.

    I have always thought that the Mono helped bring it on, but I had always been very stressed. Years before that I had went through a bout of complete hair loss for 5 years and colitus. Ithink the Mono and the injury were just the final blow to my immune system.

    I have had one other time that I had to quit work for almost a year due to the fatique and weakness...through all of this...I looked healthy! (I know many understand that statement).

    I do pretty well for the most part. It took me a long time to try and piece all of this together. I still do not know if there is a connection, but I know the timing of the Mono, the stress and the injury helped this illness become full blown.

    Take care and rest when you can.
  10. Mikie

    Mikie Moderator

    You get mono (EBV) and eventually, it goes latent in the body. For some it does; for others, it goes into a stealth chronic state and keeps one sick. Even if one does recover, the EBV can reactivate any time, even decades later. Researchers are now looking at a connection between EBV and breast cancer. My own doc thinks that the Herpes Family Viruses cause a lot more problems than is now known.

    Antivirals kill viruses just like antibotics kill bacteria. In fact, so many of us are sick with chronic viral infections that antivirals are a main part of the protocols used by FMS/CFIDS specialists. Some are even given by IV. Famvir is the newest AV and is supposed to cause fewer side effects than the older Valtrex and Acyclovir. I switched from the Famvir to the Acyclovir and noticed the latter upsets my stomach. I only use it when I feel a cold or other virus coming on. Pulsing the TF's seems to help me more than anything.

    I do not understand a doc's unwillingness to prescribe an AV when someone is sick with EBV. It probably won't completely wipe it out but it can get the viral load down to manageable and get the EBV into a latent state. Of course, if one gets sick down the road, the EBV can reactivate. The worst thing is to have it stick around below the immune system's radar and continue to make one sick.

    Love, Mikie
  11. connieaag

    connieaag New Member

    As I mentioned above regarding my daughter. Since she became ill 1-1/2 years ago with FM she has not tested positive for EBV. She has had 10+ mono tests since she was 6 and none were ever positive. Lots of strep, but no + mono until Monday. Her doc immediately put her on Zovirax in a high dose. He is a country doc, but so into new things and older remidies as well. A God-send to us!

    He said until antivirals came out, he would put a mono patient in the hospital on an antiviral IV for 5 days to wipe it out of their system. Then the meds came out to do the same thing. He said it basically "melts" the mono out of the system. Maybe this will melt away the FM/CFS as well since it seems to be in reverse order as most PWFM.

    He told us she could go to school Monday. Just to practice good hygene -- we have bottles of hand sanitizer all over the house :) Her left side hurts so badly, but her spleen isn't enlarged. He did order a blood panel and liver enzyes though. Should have that back today.
  12. sues1

    sues1 New Member


    CFS Brain injury Link.....posted 3-9-06 at o4:06 AM by


    It might answer some of your questions. I know I had mono once and did not know it,,,,,,
    I would call the doctor office to see how long or if you can pass it on right now....[This Message was Edited on 03/09/2006]
    [This Message was Edited on 03/09/2006]
  13. namow

    namow New Member

    I couldnt find your message about EBV and brain injury, where can I read that?

  14. namow

    namow New Member

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