My Doctor, Unethical?

Discussion in 'Fibromyalgia Main Forum' started by wrthster, Feb 18, 2007.

  1. wrthster

    wrthster New Member

    I wanted your opinions on this one. I really liked this doctor, was running every test possible and came up with a good action plan. Helped me get approved for Gamma Globulin Treatment

    I have been seeing him for about four months, I am now 5 weeks away from my Disability Hearing with the ALJ. My lawyer sent a letter to the Doctor to ask him more information regarding the Gamma Globulin, because under SSDI that can Potentially qualify you for instant Disability. So it was really important.

    When I showed him the letter, his whole attitude changed. It seemed like he became a different person. From what I could gather, he took it like I was giving up, and only people who looked severely sick or were in wheel chairs were entitled to it. He even went as far to try to back out on getting me the Gamma Globulin which the insurance had approved already.

    I had to wait three hours to confront him and I did. I will not go into the whole thing. He agreed to go ahead with it and I explained my feeling with the disability. But the main point is I went from having an extremely high opinion of him to loosing a lot of respect for him.

    I would change doctors but I have been to so many and this is the first one of many who really gets it and seems to know what they our doing. So what do I do? Your opinions are greatly welcome? Thanks very much.
  2. cristine04

    cristine04 New Member

    I am so sorry about your experience. It's always so deflating when a doctor you once respected so much shows a different side. His opinions on SSI and SSDI likely have nothing to do with you specifically and rather are the result of how he views government involvement, taxation, "hand-outs," etc. "Hand-out" is hardly a fair term when it describes people who are very ill receiving a stipend to survive. But the fact is many people in our society have strong opinions about the issue and your doctor is one of them. His opinion seems misguided given how sick you are and how you deserve this.

    I would try your best, at this juncture, to "move on" with the treatment. At least he is writing the letter so you are getting that ball rolling. And you can get gamma globulin and see if that works. If it does, great. If it doesn't, perhaps move on and work with someone else. I wouldn't shake things up too much now, however, as getting a doctor to give you IVIG is hard!

    I am so excited to hear how the IVIG goes, wrsther. I am getting worked up big time for immunodeficiency (as you and I have talked about on this board in past weeks). I can't wait to see how you do. There are so many tips on how to do well with it; ie, drinking plenty of water before and after, doing benadryl and aspirin before; heating pad and ice packs to help with IV (whatever you prefer)....

    Let me know how it goes.
    cristine in california
  3. wrthster

    wrthster New Member

    Good to here from you, and I am glad you are going to see that Immunologist. I wish you the best of luck, sounds like both of us have a similiar medical history.

    I appreciate your advice and will follow it. I will keep you posted as to what happens. I was diagnosed with Common Variable Immunodeficiency or something like that. Not primary immune deficiency. Make sure before you go to any Specialist so you don't waste your time that they do work with IVIG. They are hard to find.

    You mentioned some tips you had read on to optimize success with the treatment. Can you post them for me or put the web sites or suggestions where I can read about it. Thanks very much and best of luck to you as well. PLease keep me posted as to your progress as well.
  4. TXFMmom

    TXFMmom New Member

    My neurologist and documentation got my disability, initially, and my health has deteriorated so badly, in the interim that good luck on disqualifying me.

    However, I now complete the forms, being very careful about the conditions, etc., and then take it to the doc, who initials everything and signs it. Any time their patients relieve their paperwork, it is much more agreeable to them.