My Dr. wrote a book about CFS/FM - comes out in Feb.

Discussion in 'Fibromyalgia Main Forum' started by upnorth, Jan 14, 2006.

  1. upnorth

    upnorth New Member

    Hi Folks,
    Haven't been around in a while. I just found out my CFS Dr. wrote a book about CFS/Fibro. I'm excited to read it.

    She's been working with patients with these illnesses for over a decade. She was also on the pannel that wrote the Canadian definition for ME/CFS. She's a great Dr. - I can't say whether the book's good or not since it comes out in Feb.2006 I just pre-ordered it.

    Anyway, I thought some of you might be interested.

    Here's the write up on it:

    by Alison C. Bested, M.D., FRCP(C), Alan C. Logan, ND, FRSH, with Russell Howe, LL.B.

    It has been said that chronic fatigue syndrome and fibromyalgia (CFS/FM) are like the old Indian story of the blind men and the elephant. As the men felt various parts of the elephant, they described it as a snake, a brush, a tree, or a wall, depending on which part they had touched. Each thought of the elephant in terms of his own experience, mistaking part of the elephant for all of it. Likewise, everybody working with chronic fatigue syndrome and fibromyalgia has a piece of the puzzle, but much work remains to be done before a complete picture emerges.

    Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia is designed to educate patients suffering from CFS/FM about their illnesses and to teach them coping skills that will improve their quality of life. And while the good news is that people who suffer from CFS/FM aren't dying, the bad news is that it's going to take a lot of time and effort to get better since there is no specific treatment that works for everyone. Some of the issues covered are:

    * Understanding the symptoms and how diagnoses are made
    * Causes of CFS/FM and common psychological consequences, including anxiety and depression
    * The role of stress and how to manage it
    * The connection between the mind and the body in coping with CFS/FM
    * The potential of medications, nutrition, and lifestyle changes
    * The role of complimentary medications and dietary supplements in pain management
    * The value and limitations of alternative and complementary therapies such as acupuncture, massage, homeopathy, and aromatherapy
    * Legal issues about how to deal with medical and legal problems that may arise if insurance benefits have been stopped

    ALISON C. BESTED, a graduate of McMaster University Medical School, is a hematological pathologist who specializes in the medical problems related to chronic fatigue syndrome, fibromyalgia, and multiple chemical sensitivities. In addition to private practice, she teaches medical students and residents at the Environmental Health Clinic at Sunnybrook and Women's College Health Sciences Center. She lives in Scarborough, Ontario.
    ALAN C. LOGAN, is a doctor of naturopathic medicine. He graduated from the Canadian College of Naturopathic Medicine and completed his training in Mind-Body Medicine at Harvard Medical School. He is the nutrition editor of the International Journal of Naturopathic Medicine. He lives in Westchester, New York.
    RUSSELL HOWE, an attorney who specializes in medical disability cases, lives in Aurora, Ontario.
  2. MsE

    MsE New Member

    Will you let us know when it is on the shelves? Sounds like one I would like to read.
  3. Pianowoman

    Pianowoman New Member

    You scooped me!! I was going to post about this next week. I am one of her patients too! I think one of the great things about this book is that finally there will be a book by a Canadian. This should be a help for the many in Canada who are needing information. It should be helpful to others too, of course.

    I'm going to preorder it also. It's due out Feb 1.

    [This Message was Edited on 01/14/2006]
  4. cherylsue

    cherylsue Member

    How are you doing these days? I remember you from last year when I was a frequent visitor on this board. Are you feeling much better now? I hope so. Did you go back to school?

    I am in remission from CFS now and have been working full time since August. I'm functioning at about 90 - 95% and managing the rest.

    Thanks for the info. I hope your doctor was able to help you.


  5. upnorth

    upnorth New Member

    Sorry to take your steam pianowoman - I didn't realize there were folks here who knew Dr. Bested. I ordered the book and it said it would be shipped around the 28th of Feb. Aren't we lucky to have such a good Dr.? I don't see her too often as I live quite a ways from Toronto.

    Cherylsue - I've wondered how you are doing. I only use the board every month or so. CONGRATULATIONS on maintaining your health even while working. What made the difference? Are you concerned with relapsing? What from CFS still effects you? Are you still seeing the CFS specialist?

    I got very sick this past summer after a throat infection and had to drop out of school before I even started. THe program was full-time only and since I was rarely even leaving the house- it wouldn't have happened.

    My life has improved considerably since then. I had my usual remission this fall 60-70%. Since I finaly have a stable place to live (thanks to disability) I'm hoping I'll maintain this through the winter. I've also managed to start a Master's program which I can do part-time. I've started this semester with one course - so far, so good. My goal is to slowly increase my activity over time, hoping to eventually get back to full time. But it's a start.

    Thanks for asking - I hope you maintain your health.

  6. Pianowoman

    Pianowoman New Member

    It's OK , I was joking really. I'm just glad that people are hearing about the book. I love Dr Bested; I see her about every 4-6 weeks. I am slowly improving under her care.

    I do hope that you continue to improve. Good luck in the Masters program.


  7. cherylsue

    cherylsue Member

    It was so good to hear from you. I'm sorry to hear of your relapse, but you seem to be making your way out of CFS slowly with the help of a good doctor.

    My CFS has a viral basis. I no longer see the specialist in Chicago. I think I saw him March of last year. The RX he gave me made me feel worse. I found more relief with alternative medicine such as follows:

    Samubcol Elderberry Extract (clinical trials demonstrated it helps with cold and flu viruses)

    ProBoost - sold here from ProHealth. It helps with immunity and fights EBV.

    I take other vitamins, but I think the above really made the difference over six months.

    I wish you the best of luck. Taking one class at a time seems like a good plan for you as regain your strength.


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