My immunologist visit

Discussion in 'Fibromyalgia Main Forum' started by heapsreal, Aug 13, 2008.

  1. heapsreal

    heapsreal New Member

    I wasnt expecting much, Im glad i didnt get my hopes up because, without blowing my own trumpet, i think i know more about cfs then he does. I got the normal run down on how everyone has been infected with ebv, mild exercise, antidepressants and i will slowly get better, although probably not back to pre cfs state. Well i think I am slowly getting better anyway but this condition as we all know is up and down, so i never hold my breath.
    Im over looking for any magical cures(although inosine/immunovir has been a great help lately) and see new doctors and telling them the whole storie again (should have taped it).
    Im just going to stick with my GP and keep on keeping on, he understands what its about but his hands are tied as to a treatment, but he will give me scripts for sleeping tablets etc to help manage the symptoms.

    Not feeling down and out just over it and going to move on.
  2. ladybugmandy

    ladybugmandy Member

    it sounds like you are giving up. may i ask why? are you having a hard time finding a CFS specialist in your area?

    i would urge you to continue fighting to improve and not just manage your symptoms. there are still things left to try!

    i know it is frustrating to go from doctor to doctor, but there are doctors who know a lot more about the disease than the ones you have seen.

    just my 2 cents....
  3. heapsreal

    heapsreal New Member

    thinking im wasting more energy worry about this thing then i need to, letting it rule my life. Im just moving forward with the things i have learnt, keep myself healthy and not expecting to much from doctors. Until its on the front page of every news paper that they have a definate test for cfs and a cure, im not going to get to excited.

    Alot of people do improve with time and Im going to be one of them, no negative thoughts here just getting on with life.