My mom with CFS/ME is undergoing chemotherapy. I need help!

Discussion in 'General Health & Wellness' started by cammie314, Oct 1, 2013.

  1. cammie314

    cammie314 Member

    My mom has CFS/ME and is currently going through treatment for stage four colon cancer. The chemotherapy is called 5 FU and includes avastin and oyxaliplatin.

    She is having extreme pain from neuropathy, a common, but usually not too serious side effect of the chemo. The pain "floats" around her body from one region to another. It can feel like stabbing, or burning or a broken rib.

    The oncologists have never dealt with the pain she describes before so they said the pain is not caused by chemo and that maybe she fell, or has a kidney stone, UTI, etc. The treatment tends to involve looking for the pain source in typical ways(blood tests, xrays for broken bones).

    Oxycodone is prescribed for the pain but it doesn't work well.

    Does anyone have any new comments on how chemotherapy effects patients with CFS/FM? Does anyone have ideas about drugs or therapies that work? She is on Cymbalta and that did help but chemo has intensified all of her CFS problems.

    I have not found almost any information online about CFS and cancer treatment beyond this forum and the oncologists is great but knows almost nothing about CFS.
  2. Soul*

    Soul* Active Member

    I wish I could help but I don't know any details either. I do know chemotherapy has been used as an alternative treatment for CFS but know no details on this either. I hope she finds some relief soon and you take good care of yourself!

    I did a google search in Dutch but didn't find anything either...
  3. jaminhealth

    jaminhealth Well-Known Member

    I don't have info with those with CFS/ME/FM with cancer treatments, BUT, your mom needs to do all to work on keeping immune system strong...and there are MANY alternatives for people to use while in chemo treatment. Many treatments...

    For starters: Google: Alternatives to use while in chemo also

    Google: Grapeseed Extract/Pycnogenol and chemotherapy

    Many cancer reserch hospitals are using grape seed extract in their
    cancer research....city of hope, univ of maryland, mayo and others
    I'd bet.

    You will find MANY suggestions...

    My gf helped her brother while he underwent chemo some yrs back and what she did was go to our Santa Monica Homeopathic Pharmacy and talked to them and they put together a package of supps that she sent to her brother...he's doing fine and I don't know what cancer he was dealing with....

    I don't know where you are, but you would do good in contacting the above pharmacy and talk to them about your needs and desire to advocate for your mother...

    So many are so lost in this battle and need all the help they can get from their loved ones.

    The chemo will destroy the immune system, so one has to counteract the effects of chemo.

    Many years ago, 18 yrs, I went to a lecture on Pycnogenol and at that lecture we were told it "may" prevent cancer....I've been on that supp and grape seed ex ever since...so far so good...

    Good luck and seek out support for your mom's immune system....and stay
    sugar free.