My name is Fibromyalgia

Discussion in 'Fibromyalgia Main Forum' started by Lendy5, Aug 17, 2006.

  1. Lendy5

    Lendy5 New Member

    My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.

    Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too.

    If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!

    I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively.

    You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.

    Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next!

    In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia.
    [This Message was Edited on 08/17/2006]
  2. lightnerbride

    lightnerbride New Member

    I wish I knew how to copy this and email to my husband and some other family members!
    Thanks
    A
  3. Lendy5

    Lendy5 New Member

  4. Spinworks

    Spinworks New Member

    Hi A:

    You can email to your husband. Use your mouse and highlight what you want to email to him. Then hit Edit - copy. Then open Word and hit Edit - Paste. You then can save an have a permanent copy on your hard drive. To put in email to your husband you can attach the Word document or do another edit copy and then edit paste onto your email body. Hope this helps.

    Doris
  5. catj

    catj New Member


    I have never done this but just had to tell you how well you discribe my life as I live it now. Thank GOD someone understands. You deserve a crown.

    May I suggest a Pain Clinic if you have not tried it. They seem to be helping me for the time being. But I give credit to God , of course.

    Thanks,
    Catj
  6. Kryssie

    Kryssie New Member

    That is the first thing I have read on this site. I just joined. You nailed that on the head!
  7. Lendy5

    Lendy5 New Member

    Actually I ran across this poem from doing a search on the board here.

    It really does hit the nail on the head don't it?

    Thanks for reading everyone, I thought you would enjoy it just as I did.


    Love & Hugs

    carolin
  8. blueski31717

    blueski31717 New Member

  9. peachbunnee

    peachbunnee New Member

  10. NyroFan

    NyroFan New Member

    Carolin:

    Use it for your advantage. Good job!

    nyrofan
  11. ytneluk

    ytneluk New Member

    this is copy...you can read this ....
  12. mgmarble

    mgmarble New Member

  13. IowanMom

    IowanMom New Member

    Thanks for your post! It was truly wonderful. That's exactly how I think we all feel.

  14. dixie22

    dixie22 New Member

    I cried as I read this, Its the truest statement I have ever read about the subject.


    Thanks for posting this!