My Name Is Fibromyalgia

Discussion in 'Fibromyalgia Main Forum' started by Lendy5, Dec 29, 2006.

  1. Lendy5

    Lendy5 New Member

    My Name is Fibromyalgia, and I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.

    Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too.

    If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!

    I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively.

    You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.

    Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next!

    In closing, (I was hoping that I kept this part a secret), but I guess you already found out. . . the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia.

  2. paulmack

    paulmack New Member

    Summed up very succinctly,
    at least it won't take away our sense of humour,
    well said,
    Best Wishes,Paul.
  3. leubie

    leubie New Member

    WOW!!!!!!--------What a great post!!!------you should submit this--------very well written--------do you mind if i share this w/ family and friends??????---------thank-you so much------thank-you so much!!!!!!-------------------take care---------love to all-------------laura
  4. mrpain

    mrpain New Member

    This is written well and I had copied it a few months ago but can't find it, so I'm marking this for future reference. Can you remember who wrote this?
  5. kriket

    kriket New Member

    and printed it out. Then I conveniently placed it around various places for certain family members to notice it, so that they would pick it up and read it, and MAYBE understand a "little" better.

  6. monamea

    monamea New Member


    Very nice job. I liked this alot too bad none of my family will read it or even believe it. My Daughters think that fibro is all in my head. Wish they would read it. Keep doing such a nice job on your writing.
  7. Lendy5

    Lendy5 New Member

    Thank You everyone but I did not write this story. I was posting this for another member so she didn't have to do a search to find it. This story along with The Spoon Theory and Letter To Normals was posted yesterday by me by searching the message boards.

    This was written by Terri Been of Colorado and I think she has done an excellent job of describing this illness.


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