My pain has escalated!!!!!

Discussion in 'Fibromyalgia Main Forum' started by clueless, Apr 2, 2003.

  1. clueless

    clueless New Member

    I did`nt think this pain could get any worse but it does`nt seem to reach a level and stay there but keeps getting worse until I am in such over powering pain that I am afraid to go to bed as it gets even worse when I am lying down.Does this just keep getting worse until it literally breaks down some needed part of your body and it actually kills you? I really hurt my husband because I said it would be the best way to go.I have not given up until now but I am in so much pain and have an old body that does not stand pain very well any more.I can`t help but believe this is a killing disease in certain circumstances such as an older person like me.
  2. Bellesmom

    Bellesmom New Member

    Please, please hang on. I am not going to give any advice - just tell you I am praying for you that the pain will ease. I am 62 so I have concerns about how this works in older people, also.

    Bumping this up to top again.

    Love
    Pam
  3. bejo

    bejo New Member

    You may be going through a flare right now.If so the pain will let up some as the flare lets go.I too am not so young.I'm 60 years old and know how depressed you can get with fibro.Come here when you need comfort,support,understanding or just some hugs.It will be hard for your husband to really understand how you feel and why you feel that way. Sending you some starter
    ((((((((hugs)))))))) bejo
  4. KayL

    KayL New Member

    So sorry you are suffering so much. Are you taking meds for your pain?

    You could well be in a flare. I feel like I've been in one for a couple of months. Then, this week I had 2 days where my pain was significantly better. I was so excited, thought I was on a real uphill turn. This morning I feel like I crashed into a wall.

    What are you doing to deal with your pain? Maybe someone here can offer you some other suggestions/ideas of how to feel better.

    Karen
  5. jka

    jka New Member

    please don't ever give up!i know how bad the pain can get.i often feel as though someone spent the night beating me with a baseball bat.the pain seems to get worse then it gets alittle better.i live for the better days.

    goodluck
    kathyc
  6. layinglow

    layinglow New Member

    Clueless I am so sorry you are suffering so!
    I, too, know how it is to reach that point, when you hurt so bad, you just cannot fathom another day, or even wish that another would not dawn. Thank goodness this seems to ebb and flow though. Just when I hit rock bottom it seems I get a reprieve--if only for a short time, sometimes. It sure helps you catch your breath though.
    You will be in my thoughts and prayers that your pain will ease, and you will get a breath of fresh air.
    Soft hugs,
    LL
  7. Riomio

    Riomio New Member

    HI, I this is my first post on this board. I can so relate to the Fibro pain getting worse as I age. I was diagnosed about 19 years ago and was told that the pain would not worsen by the Doctor. Boy, was he wrong! I don't think that there was as much information about Fibro back then. It was like " you have Fibrosistis" ( the name they gave it back then.) The good news is it doesn't get any worse. It has gotten much worse, especially this year. I do have pain pills but sometimes they don't work that well. I have tried several medications and sometimes they work and sometimes not. Today I am having a "not too bad day" after several "bad" days. I am glad for the reprieve but I know that it will get bad again. I pray all the time for relief for all the Fibro and CFS sufferers. Having this chronic pain makes it hard to make plans ahead of time. I try to live in One day at time. It helps to know that there are others like myself who live with this. I pray for a good treatment that will work for us and also a cure.
  8. seaview

    seaview New Member

    I am so sorry to hear of all the pain you are in. I had 4 days of intense non stop a week ago. As far as the age I can say that my mom who is 65 is really having a hard time.She didnt know what was really wrong with her(thought just arthritis and old age) untill I found out I had FM. She was told she had FM 15 years ago but was told nothing could be done so she forgot about it. When I started researching it she saw all her symptoms down on paper and remembered what the doc had said. She has to really pace herself. She must lay down for a rest every day(something I also have to do)and she has to think about the consequences of any physical activities she does. She is in alot of pain and also lonely as she is pretty much homebound. So, know that many others out there both your age and us younger ones are suffering too. Just listen to your body and rest when needed. Also, ask your doctor for help with the pain. My moms doctor has been really good to her. My doc is slowly coming around and seeing that I am not faking it.:)I send my prayers your way.....Kathleen
  9. ritepoetry

    ritepoetry New Member

    I will be sixty-one next week and I have suffered for many years with excruciating pain. I have been in remission since taking Vioxx, which I consider my "Miracle Drug". I'm also on Tylenol w/ Codeine for pain. I have refused to take any hard drugs only because I have a low tolerance for most medications (I've been on and off of thirty-some drugs). I have often thought that if the DD doesn't kill you the drugs would do you in. I just wanted you to know that most of us have been suffering with this chronic illness since our teen years or earlier. I was overwhelmed with exhaustion, pain, dizziness, etc. before I knew that I was suffering from Fibromyalgia. When I would suffer with excruciating muscle aches, which forced me to wrap "HOT" towels and/or a heating pad around my legs I thought this was normal (It came with the territory when working long hours on your feet). My heartfelt prayers are with you and I'm hoping that you all will find some relief from your pain and suffering sooner than later.

    Warm Hugs,
    Sandi
  10. dierdremccormick

    dierdremccormick New Member

    It is terrible that you are suffering that much pain and no doctor has given you adequate pain relief. My father suffered from lung cancer for two years, and took 10 mg. of ocycontin every day - never needed more, for his pain. He was able to function just fine. You should be given the same consideration as a person who is in chronic pain FOR ANY REASON! If your doctor is not handling your pain, tell him you are going to report him and FIND ANOTHER DOCTOR! It is a doctor's DUTY to treat your pain. Don't give up and don't be a victim. You have a right to have your life back.
    Good luck to you.
  11. Manwithfibro

    Manwithfibro New Member

    If you believe the Guaifenesin theory, then FM does get dramatically worse as the phosphates have no where else to go but to destroy joints.

    I think there is atleast something to the theory.

    hang in there.
  12. Shirl

    Shirl New Member

    I am so sorry to hear you are in so much pain. I have been there also.

    You said that you can't lay down? Are you laying on your stomach or back? If so, try laying on your side. I can't lay on the back or stomach anymore, it makes the pain worst.

    I learned to sleep on my side with a pillow between my knees. It seems to be a great help.

    Are you having your husband rubbing your painful areas? a good rub is 'Banalg', its very strong, but it works wonderful for that awful pain. Use gloves, as it is hard to get off the hands and will burn the eyes if you happend to put your hands near them after using it.

    Also a soak in a tub of very warm water with;

    3 large bottles of regular Peroxide
    3 cups of Epson Salts

    If you could just sit in the tub for twenty minutes, then have a heating pad in your bed and lay down right after the bath in a warm bed. Its a wonderful way to ease the pain.

    Believe me, this pain won't kill you, but is sure feels like it sometimes. I have had this now for over 20 years, and many times I though I would die from the exaustion that the pain put my mind and body through.

    I have hurt and frightened my husband many times telling him just about what you said too.

    Please get a wireless mattress heating pad, they are just wonderful for the pain and the stiffness during the night.

    I sure hope you are feeling better soon, please let us know how you are doing.

    Also call your doctor for something for pain, this is terrible for you to suffer like this when there is pain meds out there that will help.

    I can't take them, but I would if I could when it gets as bad as you are describing.

    Shalom, Shirl

  13. Mikie

    Mikie Moderator

    What you are using for pain relief. Have you seen a pain specialist? You are entitled to relief from your pain.

    Love, Mikie