"My Story" and subsequent questions

Discussion in 'Fibromyalgia Main Forum' started by Stormy214, Nov 16, 2002.

  1. Stormy214

    Stormy214 New Member

    Hey, all...this is my first day on the message board, and my brain seems about to explode from everything I've read here today. Not to mention what it's probably doing to my liver with the extra pain meds. I've been researching via the internet for the past 2 years, but have never checked out a message board or chat until today. I'm reeling from all the suggestions and support I've gotten so far, so before I say anything else...thank you one and all! But anyway, here is my most recent question: it seems that most of the messages I've read seem to indicate that the fibro was either inherited or brought on by physical trauma. I am the first person in my family to develop the DD...at least to the degree that it is debilitating (although I think my mom does have some mild symptoms, and while I had some pretty serious physical injuries when I was younger (I am now 40), the major fibro symptoms did not being until I underwent a horrendous summer of mental and emotional stress 2 yrs. ago. My rheumy disagrees; she says I probably had symptoms long before this but "pressed on regardless" due to my seriously type-A personality. Maybe, but my point is this: up until that autumn 2 years ago, I was ABLE to press on regardless. I suppose if I had any symptoms, I attributed them to getting older. Then, suddenly, after I exhausted myself pursuing my masters degree...driving 90 miles 4 days a week for 2 months, researching and writing my thesis....going back to work (I am a high school teacher), I knew I was dragged out and experiencing physical pains I was unaccustomed to, but the "crash" came 2 months later when my grandmother died. I seemed to come down with the flu a few days after the funeral, then descended into what I now know are the fibro symptoms. I have yet to recover although I do have an "up" day here and there). Is there anyone else out there who has become symptomatic without a recent physical trauma? Also, I was diagnosed as an adult as ADHD (informally, when I had my son tested), and I've seen some things on the internet indicating that there is a relationship. I find it difficult to believe that cervical spine injuries almost 30 years old could be the cause of my symptoms, and I know they are not the result of "depression" as my GP would have had me believe (if I'm depressed, it's because of the damn symptoms!). Is there anyone out there who can relate to this rather long-winded bio? I've heard from several of you who can relate to my specific type of pain (for which I am eternally grateful) but the more I read, the more questions I seem to have! Also: does anyone know anything about the Atkins diet and fibro? A lady from my local support group, who has had fibro for 15 years and hasn't had a pain-free day since, went on the low carb diet. She says that after a few weeks her symptoms went away, and she's been in remission for 2 months. I tried it for a week and went down 2 sizes, which I cannot really afford to do. I have a high metabolism and really can't afford to lose that much weight (so explain my fatigue, please? I should have TONS of energy!). Any experiences with the Atkins diet would be greatly appreciated....sorry this is so long, but my brain is functioning right now and I have to get it all out while I can!
  2. Stormy214

    Stormy214 New Member

    Hey, all...this is my first day on the message board, and my brain seems about to explode from everything I've read here today. Not to mention what it's probably doing to my liver with the extra pain meds. I've been researching via the internet for the past 2 years, but have never checked out a message board or chat until today. I'm reeling from all the suggestions and support I've gotten so far, so before I say anything else...thank you one and all! But anyway, here is my most recent question: it seems that most of the messages I've read seem to indicate that the fibro was either inherited or brought on by physical trauma. I am the first person in my family to develop the DD...at least to the degree that it is debilitating (although I think my mom does have some mild symptoms, and while I had some pretty serious physical injuries when I was younger (I am now 40), the major fibro symptoms did not being until I underwent a horrendous summer of mental and emotional stress 2 yrs. ago. My rheumy disagrees; she says I probably had symptoms long before this but "pressed on regardless" due to my seriously type-A personality. Maybe, but my point is this: up until that autumn 2 years ago, I was ABLE to press on regardless. I suppose if I had any symptoms, I attributed them to getting older. Then, suddenly, after I exhausted myself pursuing my masters degree...driving 90 miles 4 days a week for 2 months, researching and writing my thesis....going back to work (I am a high school teacher), I knew I was dragged out and experiencing physical pains I was unaccustomed to, but the "crash" came 2 months later when my grandmother died. I seemed to come down with the flu a few days after the funeral, then descended into what I now know are the fibro symptoms. I have yet to recover although I do have an "up" day here and there). Is there anyone else out there who has become symptomatic without a recent physical trauma? Also, I was diagnosed as an adult as ADHD (informally, when I had my son tested), and I've seen some things on the internet indicating that there is a relationship. I find it difficult to believe that cervical spine injuries almost 30 years old could be the cause of my symptoms, and I know they are not the result of "depression" as my GP would have had me believe (if I'm depressed, it's because of the damn symptoms!). Is there anyone out there who can relate to this rather long-winded bio? I've heard from several of you who can relate to my specific type of pain (for which I am eternally grateful) but the more I read, the more questions I seem to have! Also: does anyone know anything about the Atkins diet and fibro? A lady from my local support group, who has had fibro for 15 years and hasn't had a pain-free day since, went on the low carb diet. She says that after a few weeks her symptoms went away, and she's been in remission for 2 months. I tried it for a week and went down 2 sizes, which I cannot really afford to do. I have a high metabolism and really can't afford to lose that much weight (so explain my fatigue, please? I should have TONS of energy!). Any experiences with the Atkins diet would be greatly appreciated....sorry this is so long, but my brain is functioning right now and I have to get it all out while I can!
  3. JP

    JP New Member

    I can relate to your story...I have probably have had this stuff for many years and I was able to push on through the master’s gig. I was finally stumped by a series of stressful work events, from being forced to lay off many of my employees to a very serious postal type threat during the lay off. I left my career almost a year ago, mostly due to cognitive decline and the fatique from pain.

    I finally began to investigate my aliments and discovered more than I care to know. I became somewhat "weak" regarding my stoic A/B personality and finally asked/accepted medications to help decrease some of my symptoms. I am 42...close to your age. I have a passion for life science...I love life. I never went into teaching and I am a teacher at heart. I have been unable to work and the immediate future of work is dim. I do hope to create some type of work.

    Take care,
    Jan
  4. ZosoLight

    ZosoLight New Member

    Hi Stormy,
    My CFIDS came on gradually in my early 20's (or possibly teens) and I cannot point to a single illness or trama as a starting point. However, since then, I have noticed that periods of emotional stress, operations, and injuries I have had since the onset of CFIDS make it noticably worse. Lately, my CFIDS is turning into FMS. I havent had a "good" day in over a year- since an extended period of emotional upset.
  5. Stormy214

    Stormy214 New Member

    Thanks for responding, Jan. Sounds like we have a lot in common. I guess many of us with this DD probably do. From your response, it sounds like you have had the same difficulty dealing with the drastic change in your life...the need to accept help, and admit that you can no longer do everything you want to do. I understand that so completely! I've fought this for 2 years, and am still trying to cope with the changes in my life. I don't know how much longer I will be able to work, and I fear what will happen to us financially if I don't. My kids are all grown, so sometimes the only thing that forces me out of bed in the morning is knowing I still have a horse to feed! I haven't ridden for over a year, but he still needs to be fed and loved, thank God for that. I used to write for expression, but have difficulty doing that these days. "The Fog", don't you know. While I hate dwelling the on the negative, but when I feel like I do today, it helps to be able to talk to someone who really understands what I feel like. My family is wonderfully supportive, but they don't truly "get it," if you know what I mean. They can sympathize, but not empathize. Thanks again. {{{gentle hugs}}}
    Stormy
  6. Stormy214

    Stormy214 New Member

    Hi there! Sorry I missed your post while I was responding to Jan! I bet you are a type A personality, too! I've tried everything I can think of to learn to manage stress and my emotions, but I sometimes think that's harder than dealing with the pain. I KNOW I have to prioritize. I KNOW not every little thing is a crisis that only I am capable of dealing with. But sometimes trying to turn things over to other people is as stressful as trying to manage it myself. Im a mess, and my own worst enemy! LOL And I bet most everyone here can say the same thing...
    This site has been a godsend for me the past 2 days. Just curious about something, though. Does anyone use the live chats? I've checked in a couple of times, but nobody ever seems to be there. Or if they are, they don't respond.
    Take Care,
    Stormy
  7. Rozmund

    Rozmund New Member

    Join the crowd of Type A+ personalities. We do make the world go 'round, but then we do have to learn when to get off the treadmill - or the good old bode says "when" and we "jump" off with FM or other stress related disorders.. Anyway, you are in the real early stages - and there is always hope - I think if you reread your post - you will recognize that you barrelled through life accomplishing great things against huge odds and that now you need a big rest. Paul Pearsall, says it all in his latest book - I listened to him last night for a few hours and in his very calm soft way he sure did explain the American way - we do tend as a society in spending so much energy, time and money in "getting there" that often when we are finally "there" (and that is individual) we break down - the adrenaline that kept us going and masks many problems is no longer needed and those masked problems make themselves known. I have been where you are - had it all, did it all, raised Type A kids just like their mama, they all have super jobs, with super incomes, and live so fast and high that my head spins. In my case, it was a routine operation - but it was the straw that broke my back and tough thing is you never know when these "straws" in life come along.

    I quote:
    In his 10-year study of "winners", along with their spouses and associates, Dr. Pearsall discovered a
    pattern he identifies as "Toxic Success Syndrome." His research confirms that TSS victims suffer
    from an adult form of ADD-attention deficit disorder. Paul Pearsall, Ph.D., is a licensed clinical
    psycho-neuroimmunologist, a specialist in the study of the healing mind. He holds a Ph.D. in both
    clinical and educational psychology.

    When I first got this thing - I rearranged my home to make it energy efficient for me. I delegated duties like mad...
    I decided that a lot of things could go - with regard to housework, entertaining, and commitments - I learned to say no - I was always quick to say yes to a friend in need - but I had to learn to say - "let me think it over and see how I feel" - the way you put yourself first to accomplish all those wonderful things now has to come into play for your health - your body needs that fine mind to look out for it - Think of it like breaking a leg - you are darn careful for along time after the healing process before you run a marathon again - same with FM - take it easy - only do what is necessary and if that is your job - well then that is what you do - I have seen me fall asleep in my clothes many a night after doing performance reviews - it would kill me to not give a good one and I would knock myself out trying to be the diplomat - satisfying upper management and then satisfying the needs of my 5 departments - without tearing down the personality I was reviewing in the process. It was a tight rope to walk but I did it for 13 years - until one day I had a simple hard sneeze - and I prolapsed big time - and surgery resulted and so did FM.
    If it wasn't the surgery I know now it would have been something else - an emotional trauma, or whatever. My body was screaming for attention and I was not paying it. I paid attention to all the other things that I thought would not survive without my hands on intervention. I have found that it really doen't matter if your family does not "get it" - you have a condition - bonified - and the biggie in treatment is rest and stream lining your life. We all understand on this Board - genuinely - and that type of support is precious. Sure you look great - so does a person after a triple bi-pass - but they do not go back to living without skipping a beat.
    It will take time, but with a few books around the house on the subject and internet sites printed off and left around they will get you - and hopefully not "get it" - Research is going on like mad all over the world - we will lick this thing....you've got what it takes to do it - and soon I just know you will be posting on the board to give us all hints and tips....cause your a teacher and a smart lady. Your family will be so proud of your great attitude as they learn more and more through you. Cheers
  8. Stormy214

    Stormy214 New Member

    I know we just "met," but from now on I am going to call you "Oh Wise One." You sure hit the nail on the head in so many ways! I have always put EVERYTHING first but my health. For so many years, the only sick days I ever took were because my children were young and needed me home. Then I needed more schooling to make more money and to be a better teacher. Then the kids needed help embarking on the next stages of their neo-adult lives...and then, and then, and then...I was rudely shoved from the treadmill, as you so aptly put it. I have to admit it frightens me to hear you say I'm in the early stages, however! If this is only the beginning....well...oh, wow. I don't want to think about that now. But your advice is certainly wise, and it came through loud and clear! It makes me realize that I've been trying to claw my way back up on the treadmill. I've been researching this until I'm chasing my own tail. Brain fog gets in the way a lot, don't you know, but you're suggestion about leaving the literature out instead of putting it on the bookshelf is wonderful! I tend to try to explain too much, and need to let others read about it from someone other than me. I've got a lot of great stuff bookmarked on the computer, and after I post this, I'm going to start them printing....then hit the bath tub! *sigh* I used to love hot baths when they weren't so necessary. Thanks for sharing your wisdom, and for the inspiring words of encouragement (not to mention the wonderful compliments). I truly hope that someday soon I can return the favor by being able to offer advice that can truly help someone. MANY thanks!
    Stormy
  9. LindaGa

    LindaGa New Member

    Hi and Welcome:I'm 55 years old and was dianosied offically 8 weeks ago,but had the symtoms and run around by drs for 35 years(read my profil)I found this board 6 weeks ago and it sure helps to talk with people,ive never seen anyone in chat either. I know what u mean about going on I was raising 3 children and pushed my self very hard to make their life good with all the children things I was a brownie mom ect.Now they are all grown.During them years I had a few breakdowns due to pain thr drs said was in my mind u know the story if u read the posts, so we do push and try not to knows the pain we are in.Excuse me the fog is bad and im rambling and the speeling is one thing ive lost>hope the board helps you >LindaGa