My visit with the Reumy today "sucked"! Pls Read!!!!

Discussion in 'Fibromyalgia Main Forum' started by Kacjac, Jan 4, 2006.

  1. Kacjac

    Kacjac New Member

    I took my husband, so he could ask questions, one was about my crazy sleep pattern.....he basically explained that if "I" anticipated a bad night I'd have one, and that my sleep cycle was off,and it was my depression not my FMS.
    And that if I did what he told me, I would get better by 10% each week!
    That i needed to exersise, that was the underlying problems with my lower back pain, knee and hip pain! All body mechanics, exercise the legs muscle's to get the knees, stronger. Told him about my Sciatic pain, well it's really the muscle you need to get stronger, you need to walk, or ride stationary bike, I need to get more disliplined, he said!
    I know I need to exercise, you big dummy!---- I felt like saying!
    I got a lecture on getting addited to pain killers, ( he doesn't perscribe them! No... uh-uh.....
    I told him, I don't use drugs like that, I barely take a half pill!:( ( He is very anti-drugs) but I freakin' didn't ask for any!!!!!
    I told him, I cut back on the Zoloft, to 25mg. from 50mg. because i couldn't see a diff.in pain or sleep and had no libido!
    He upped it from 50 to 75mg. Huh?
    I told him about my RLS, he did perscribe Klonopin, but let me know (again) under no circumstances, was I to continue my Xanax or Sonata with it, and the Sonata wasn't good any way, it would cause rebound insomnia! Ugh!
    I told him about this support group, he said he didn't have anything against support groups, if it was for venting only or friendship, not to listen to any thing anyone said about theory or remedy....just listen to him.....Okay, so I'm listening to him, I'm geeting on here and "venting" " about him" ......ugh, I could spit nails....this was my second visit.....and maybe my last!
    I wished I'd never took my husband with me!
    Disapointed, frusrated, and sad.....Karen
  2. Kacjac

    Kacjac New Member

    He said nothing, when I mentioned my two severe 24 hour headaches!
    But he did say, if you take a healthy person, and put them in a sleep study, and wake them, every 30 minutes, it will throw them into Fibromyalgia!
    So in other words, if we all just got proper sleep and exersise, we would all be " CURED"
    Okay......<rolleyes>
  3. patches25

    patches25 New Member

    That should be your last visit to that duck. Too much quacking and not enough knowledge. Sorry you had to go through that. Are there any local support groups in your area. Maybe someone there would know a good FM/CFS doc. Personally I think there is more good info here on the website than what most docs give so keep coming and listening for good info and help. E.
  4. angeljoe

    angeljoe New Member

    I only saw him twice the first time he did a whole panel of blood work. The next time he went over all of my labs, and did my evaluation. He diagnosed me with Fibro, Chronic fatigue and severe depression. He then referred me back to my PCP and in his notes he said I needed a physiatrist desperately. Who did he think he was to say such a thing? I thought he was the nutty one. Well I did start seeing a therapist and she is great. She doesn't think I nuts, she said I was very stressed. She has helped to calm me a whole long. I will never go back to that idiot Rheumatologist. Never ever again. He had me so upset by saying pain is a mental thing. He said that I made myself hurt because I was depressed. Do I really have that kind of control?????? Well anyway some doctors are the biggest jerks. Just find a good MD that believes and treats Fibro.
    I'm sorry that your husband heard what that fool had to say most of all.
    Hugs,
    Angela
  5. Jeanette62

    Jeanette62 New Member

    Hi Karen,

    I'm sorry your rheumy visit was so frustrating for you. I can't believe your rheumy said you would improve by 10% each week if you exercised.

    I have been exercising faithfully for a year now usually 4 days a week and while I've had improvement physically it sure wasn't 10% a week. Exercise has it's benefits, but it still does not give me any kind of an energy boost like it does for "normal" people, it only exhausts me. I do have more exercise tolerance some days now than I did a few months ago, but that is due to the vitamins and supplements my new doc started me on and finally being treated for a thyroid and iron problem.

    I was having a lot of problems with RLS for awhile and someone suggested having my iron checked. The CBC blood test showed my hemoglobin was normal which is usually where it alerts a doc to an iron problem. My new rheumy checked my iron ferritin levels and they were very low and my iron binding capacity was off too. Many doctors, even rheumys (my first rheumy didn't) don't always run a full iron testing blood work up. You might have it checked.

    Has your rheumy given you a referral for physical therapy so you can get some exercises for your knee and sciatica? That might help you get started. That was one good thing my previous rheumy did was give me a referral to a PT who had worked with a lot of FMS patients. She was a big help.

    How frustrating to get a lecture on addiction to pain meds when you hadn't even asked for any. What if you had needed something for pain - that would have been very intimidating to even ask about it. btw I don't use any strong pain meds either.

    I can't believe he said only use this support group for venting or friendship, but don't listen to anything anyone has to say about treatments except for your doctor - like he knows it all. Many times we do learn more from each other than we do in a short doctor visit. I can see where it's important to check anything out and not believe everything you hear or read, but it doesn't mean not to disregard everything.

    Sorry you got such a lecture from the rheumy and no support, especially with your husband there.

    Take care and (((((HUGS to YOU))))))

    Jeanette
  6. wildirishrose

    wildirishrose New Member

    Sounds just like him. Mine is convinced that FMS is a result of a neck injury at some point in your life & also stated that 98 % of FMS suffers are victims of abuse. He will under no circumstances prescribe pain killers. He said since this is a chronic illness I should learn how to live with it. ( but provided no suggestions on how to do so ).

    I just hate doctors who think I woke up one morning and said " Hey, I have an idea, why don't I get addicted to pain killers ?? ". I am also insulted that he assumes I would abuse them. Yes, addicts have spoiled it for those of us who could use the drug in the way it was intended, but if I were an addict, I would have more luck talking to my teenaged son than faking an illness just to get some pills.

    I did read...somewhere... that statistics show that patients who have become addicted are under 50, that those older tend not to. So modern docs are reluctant to prescribe narcotics to younger patients. I'm 52, so I guess I just have to wait it out ; )

    I also believe that those docs wanting patients in chronic pain to " tough it out " have never HAD chronic pain...obviously !

    My feeling is this : Don't forget 50% of the doctors out there graduated in the bottom half of their class.

  7. jakeg

    jakeg New Member

    This doc sounds like my old PCPand I told him where to get off after convincing him to refer me to a mental heath professional who cleared me of any types of depresion, stress and anxiety. My last visit with this jerk was with the diag from the phycologist and I told him that he was not qualified (He didn't believe the phycologists findings)to make some of the remarks that he made and should remove them from my health record and that I would not be returning for any more of my health needs along with telling him that I would be persueing this with the state medical board and a lawyer, and you know what he said, do what you gotta do I'm a doctor they'll believe me before they believe you.

    Just move on to another doc. Hope you find one who really knows what we go though every day with this DD. These bad doctors will pay someday for what goes around comes around.

    Jake
  8. Chilepepper

    Chilepepper New Member

    Sorry to hear you had a bad time. I have been thru that also. All they want to do especially if we are a woman is throw anti depressants at us! It is doubly worse if our husbands are with us. I don't go to a reumy. I have been thru the gamit though. over 10yrs of this stuff. I went to a internest, he is fairly young so they are more up on this stuff. (at least that is what I have found). He sent me to a PHYSIATRIST, not to be confused with (PSYCHIATRIST). She is a pain doc. She has really been helpful and understanding, is willing to help in anyway. She knows I am careful with pain meds and she really listens. May this would help you. Just a thought. I wouldn't go back there again. They don't know the damage they do to us when they treat us like that. Hope you can find a better doc.
  9. kch64

    kch64 New Member


    I'm not doubting that he's smart, but in essence, he said that no one on this board or anywhere else, had anything valuable to add to your life, or your situation and that he was more knowledgable about YOUR body than YOU are. I hate that.

    I wouldn't go back to him If I were you.
    K.
  10. Jen102

    Jen102 New Member

    rheumatologists hate people with FMS. Rheumies are the ones who get "stuck" with us after the gps don't know what to do. Rheumies haven't been trained to treat us and don't have a clue of what to do to help us. Therefore they are a frustrated lot. It can't be that they are deficient, so it must be the patient's fault. Tell the patient to do a bunch of things the patient can't due on acccount of their illness, humliate them in front of their loved ones, disintegrate their support system, and the patient is likely to not come back. My husband oftentimes jokingly says "a problem passed on is a problem solved." Sound like this stupid doc subscribes to this theory. Run, don't walk, away from this dud. Blessings to you. Jen102
  11. Sandyz

    Sandyz New Member

    That is just awful the way you were treated, it makes me sick. He is just another doctor that doesn`t have a clue about this illness.

    The rudest doctor I went to was a Rheumy I saw twice. He snapped at me everytime I asked a question, acted like it was all in my head. Mind you I had a very high sed rate at the time, between 70 and 80. That alone should have made him take me seriously but it didn`t.

    We are sick and need to be helped not shunned and belittled. I`m sorry you had to go through all that.

    Sandy
  12. bunnyfluff

    bunnyfluff Member

    If you can make time:
    I see Dr John Joseph in Carrollton, TX. He is very good, takes an hour with you if you need it! So, sometimes his office gets sort of backed up- LOL! But, he really believes in this DD, and understands what it takes to treat it, and I am getting very good care. I work with him and a pain specialist. His # is 972-492-8700. Also, he is very good about only wanting to see you every 4-6 months as long as your meds are working, so it doesn't eat up a bunch of time and $$ for nothing.

    Please call and get some decent help~it makes all of the difference in the world. Best of health to you!
  13. ang1973

    ang1973 New Member

    About 2 years ago after having been diagnosed with Crohn's disease the prior year, I started have excruciating pain throughout my body. My joints ache, legs, back, toes. This pain is so severe somedays I can barely get out of bad. The last couple weeks I could barely push the button in on the floor shifter of my car. I went into a Rheumy at that time at the recommendation of my primary doc. They were checking for arthritis. She came back and said it was fibromyalgia. Now I had been diagnosed with Fibro 8 years ago, but didn't believe the doc at that time because he had seen me for 5 minutes, threw some prescriptions at me and away I went. I had no idea i had fibro. But this Rheumy that diagnosed me for the 2nd time did nothing. Just told me to get lots of rest, and guess what? I haven't seen her since. I have so many docs i see, and none of them agree on anything. My latest was a Neuro because my arms and hands keep falling asleep. I get dizzy all the time and fall over. He said hed treat me one problem at a time. I see him for the 3rd visit tomorrow. His assistant filled in for my last appt. and told me he doesn't believe in this fibro cr...p. And I asked him "Well if it isn't fibro, then what? Please tell me because I can't take this anymore." And he had no answer for me, just shood me out the door and told me to come back in a week? I wish I knew of a Doc that cared enough to find out whats really going on. Between the crohns and the fibro, I am in so much pain, and sick all the time. What do you do when your supposed to trust your docs, but they don't help. I have 3 daughters relying on me to take care of them. And I don't have a husband, been seperated a yr and 1/2 now. He didn't understand or care either. Now I'm totally alone. I wish someone could help. Thanks for listening.
    I am sorry you also have had so much pain and probelem with Docs. Good luck to you. My prayers are with everyone on this board because you all help more than the docs do.
    [This Message was Edited on 01/05/2006]
  14. 1horse

    1horse New Member

    no wonder we get stressed,depressed and angry. That rummy is a dummy. so dr. really tick me off. If they cant figure out what is wrong they say its all in our head...Iam very sorry your husband went with you..hang in there. hugs peggy
  15. roseylisa

    roseylisa New Member

    I went to a regular dr first and was told I dont do long term narcotics I could barley walk that day the flare was so bad (this was before I knew what it was) I just knew I was in a lot of pain! I then was sent to a who diagnosed me but told me I would have to get my pain med from reg dr I then went to another rhumey and he put me on antianflamatories which of course do nothing for fibro, and they are suppose to be experts?
    I then went to the Dr in our small town and he has helped me the most when I am in a bad flare he gives me pain med. He also understood I needed to be on something to help me get in a deep sleep which is one reason for fibro flares we miss that deep sleep I notice when I get a good nites sleep I feel descent the next day, dont get me wrong I still wake up alot but take neurontin and seroquel at nite (seroquel is actually for bipolar but helps you sleep and neurontin is for seizures but helps with deep sleep and suppose to help with pain) I also take cymbalta for depression. I still have flare ups but not as bad unless Im really stressed out. Sorry so long... your post brought tears to my eyes so familar I'm sending you lots of fibro hugs!
    Lisa
    [This Message was Edited on 01/05/2006]
  16. Kacjac

    Kacjac New Member

    I was really depressed last night, I have finished reading every post this morning, and you all have helped me out a lot!
    I'm feeling better now.
    Thanks for all your concern.
    I'm reallly getting fed up with Dr's, if I didn't need my Levoxyl or Toprol XL I would just quit going.
    Still not sure about going back to him, I thought maybe, If nothing else to tell him, just how I feel about our last visit, I dunno!
    It's nice to know I'm not the only one out there with these troubles, but dishearting too, to know, we have so much trouble with Dr's also. It fact it's scary at times.
    I guess you just have to keep searching for one you can get along with.
    I have decided I might have a yeast problem, I am in the process of looking at my diet for a change in my symtoms.
    I can't thank you all enough with your input, advice, and referal's!
    Hugz, Karen
  17. lovethesun

    lovethesun New Member

    Mine ruled out everything else through tests and then sent me to A NEUROLOGIST AND RHEUMY TO GET CONFIRMATION ON fIBROMYALGIA.The young doctors are really more up on Fibromyalgia and CFS then anybody else.Linda
  18. turtlelou

    turtlelou New Member

    I know exactly how you feel. So many of us have had these sanctimonious doctor visits. I've never understood how doctors can treat sick, vulnerable people so badly! Do they know what we're going through? Do they know how badly we want our old, healthy selves back? Like anyone would make this stuff up! When my first joint problems occurred, I went to a rheumatolgist. He told me I "just needed to push myself." Before I became ill, I had been swimming, jogging, and bike riding anywhere from 30 to 50 miles 4 times a week. I didn't need to push myself, but I took his poor advice. I went for a bike ride about 20 miles. I spent the next two weeks in severe exhaustion and pain. I spent the days with my hands perched on couch pillows because any kind of movement was excruciatingly painful. Never did that again. Pain is a good teacher. I also went to a neurologist. At the time I was having many neuro-muscular symtoms. He actually didn't believe me. He said, "Chronic Fatigue Syndrome-whatever that is." I was furious. I wrote him a letter saying I would refuse to pay him unless I received an apology. Really reamed him in a letter. I did get that apology by the way. I never go back to doctors that treat me this way. I refuse to be told it is all in my head, or to be treated less than the intelligent, vivacious person I know myslef to be. Keep looking. A good, supportive doctor is your best bet and you deserve it. I found a nurse practioner who has helped me. Without her, I'd be lost. She spends a great deal of time with me on each visit, she believes me, she gives me great advice, and I feel we are partners in my health care. Please don't give up on finding the care and validation you deserve!
    [This Message was Edited on 01/05/2006]
  19. mamaseta

    mamaseta New Member

    I would stop going to him, write a strongly worded letter to whatever local group helps people with stupid doctor problems, and egg his mercedes! What a horribly insensitive person!

    Thankfully, all my docs have been much more understanding (though not much more helpful!). All they can really do is prescribe what is acceptable to the insurance companies. I choose not to let it get me down (I can't afford to go any "lower"). Just keep searching for results from on-going research!

    Keep your chins up.............
  20. JLH

    JLH New Member

    What is with these rheumys? I think they are all nuts!!

    Mine is exactly like yours. I just hate going to him!

    And ... I have an appt. in a couple weeks.

    All he tells me is that I need to exercise (I'm NOT ABLE to exercixe), lose weight, and go to bed early for a good night's sleep and I would feel better.

    Same speech each time. He does not believe in anything stronger than Arthritis Strength Tylenol for pain! :(

    And ... I have to wait hours to get in to see him. And .. he is a read NERD!

    Janet