My Week: from Bad/Embarrassing to Good (or at least better)

Discussion in 'Fibromyalgia Main Forum' started by JLH, Jan 20, 2006.

  1. JLH

    JLH New Member

    I had an appointment with my Rheumy on Monday. I had been feeling pretty bad all weekend—my pain level had been really high. My back had been going into these spasms so often that I could not sleep at night. Without much sleep combined with a high pain level leaves me completely undone!

    I waited for over 2 hours in my doc’s waiting room in an uncomfortable chair which got my back to hurting worse. I had to keep my head turned at an angle to watch the TV, which got my neck and head to hurting. After getting back into the exam room, had another hour wait.

    The Rheumy tells me that my Lupus is active, my Fibro is no better, tells me to exercise and lose weight (as always! Ugh!). But, he did 2 good things! One was to give me a shot of some type of cortisone or something in my knee—oh what a relief! The shot hurt because he hit a bone spur and said he had to work around it, but that was OK. My knee feels like new now!!! It had been hurting so badly that I was limping in order to favor it, which made my other leg hurt more. The arthritis in my left knee is really bad, but this made it feel like new!! It had been about 6 months since I had last had a shot in it.

    The other positive thing was that he started me on a different arthritis drug—every one that I have tried has done nothing for my arthritis. He said different ones work differently for everyone—which I know is true. This time I am trying “Voltaren”, 75 mg, 2 x day (generic is Diclofenac). This one works!!!!!! Hip, Hip, Hoorah! I have finally found some relief for my arthritis pain! Lortabs, or any other pain pills have never touched the arthritis pain and inflammation—this new NSAID does! But, it doesn’t do anything for the fibro pain, which I expected and the doc said it wouldn’t.

    So, there is my bad and good part of my week, because I am feeling better now (except for my back pain and spasms, of course – I don’t think I will ever get rid of them!).

    Now for the embarrassing! I felt so badly by the time I left the doc’s office (back spasms, high pain level, weak and shaky), that I could hardly walk to my car. When I got to the car, I just sat and cried, with my arms trembling. I called my older daughter to tell her I didn’t know if I could physically drive home and of course, just cried on her. She couldn’t come to get me, but just encouraged me to sit there and rest. I did—I sat in my car about 30 minutes or so. I just hate it when I do this!! I can’t stand it—it makes me so upset at myself because I feel like such a weakling and I used to be such a strong person. But my lack of sleep for days and my high pain level for days gets me like this.

    After I got my self together again. I drove to the local Office Max which was just a few block from the doc’s office. I had to get me a 2006 Planner. I really use this planner to write down my daily sugar readings (for my Endo) and note all of my doc appointments, etc. I was not about to have to drive all the way back to town to get it—which is about 40 minutes away from my house.

    I made it back to the back of the store and picked out my planner. On the way to the cash register, I realized that I could not physically walk that far. There was 2 store employees standing close by just talking and one looked at me and quickly came to my aid. He said “you look really pale—are you OK?” and I said “no, I can’t stand in that long line to buy this—can you take my Visa and it and go buy it for me while I sit in one of these display office chairs?”

    He said he rather not take my Visa, but he would open up a new register for me so I could check out quicker, and helped me to the checkout. While in signing my receipt, a girl who married a distant cousin of my husband came up behind me and starting chatting. She asked me if I knew who she was. I could have cared less, really! I told her that I was sorry, but I was in so much pain that I could not even think – and I just start crying AGAIN! Right in the store. I felt soooooo stupid, but I could not help it. I had absolutely no control over my emotions at that time. Here I am, nearly 55 years old, standing there crying in Office Max! She said she could tell by looking at me that I was not well and offered to help—but what could she do? Nothing.

    Well, I was in so much pain, that I could not walk out of the store. I did, but by shuffling one foot in front of the other, like taking baby steps. I had my cane but I actually thought I was going to pass out. I had illegally parked my car right by the door entrance because I knew that I could not walk even from a handicapped parking place. When I got outside the store, I just stood there crying. Oh, how embarrassing. I just wanted to die. My “relative” came out and took my purse and sack and helped me the few feet to my car.

    I had to sit in my car AGAIN there for about 30 minutes so I could pull myself together so I could drive home. I thought that I made a stupid move trying to get that planner, but I knew that I would never get anyone else to go to town and get one for me. I know I could have ordered one off of the internet but would have to pay $5 shipping to get a $20 planner, and I hate to pay those S&H charges!! But this time, I think it would have been worth it!

    Well, I finally made it home. I took a Lortab on the way home. I hate to take pain pills when driving—I don’t want to cloud my judgment any more than the fibro fog that I already have! My husband fixed us supper and I stayed in my recliner the rest of the evening watching TV.

    I have slept until 1:00 pm every day this week, except for today (Friday) trying to recuperate! I am finally feeling better. I feel a little stronger, my knee feels great, and the new arthritis is helping my overall arthritis pain. I’ve had a headache all week but it is gone today. All that is left is a foggy head with this loud buzzing sound.

    Looks like things are looking up for this weekend! At least it’s better, so far, than last weekend!!

  2. Bailey-smom

    Bailey-smom New Member

    Just know that almost everyone here could tell you that we know how you feel - don't be embarrased. You can not help it if you feel that way and on real bad days the tears will just fall.

    It is good that you are feeling a bit better - I hope you have a nice week-end and can relax.

    Kelly
  3. darude

    darude New Member

    So sorry dear sounds awful. I too have had days like that so I don't wann go anywhere now. One time I felt dizzy and blacked momentarily out and ran red light. That was it no more driving for me.
  4. fivesue

    fivesue New Member

    How trying all your appointments seemed this week! Glad your knee is better and the new med is working and that you have your day planner even if it almost killed you! (-:

    You know, sometimes it is better to just order online! Forget the shopping thing.

    Hope you have a great two days...what a sweetie your husband was to fix supper; I have a husband like that.

    Hugs....
    Sue
  5. JLH

    JLH New Member

    I'm really looking forward to one weekend where I'm feeling better. (I'm looking for some wood to knock on!!!) LOL

    I just can't believe how quickly the shot in my knee has worked!!

    ... and this Voltaren, the NSAID for the arthritis, has really helped my arm and elbow. I don't know what I had done to my right elbow, but it was killing me. I knew I had arthritis in it, but all the rheumy could figure out was that I put too much weight down on my cane when walking with it. When he said that and I thought about it, I do bear down on it awfully hard which was hurting the muscles in my arm and elbow. This med has really helped it.

    Now, if I could just get rid of this horrific back pain!!!!!

    Oh well, I'm not going to gripe ... because I do have some improvement!!

    Hugs,
    Janet
  6. darude

    darude New Member

    Hi Janet Glad to hear somthings working. I had cortisone shots in docs office in my back and yes worked straight away for me. After that I had nerve blocks at the hospital.
    It got rid of the awful back pain due to bad disks and pinched nerves. Now it's my legs that hurt so thinking of having the shots in knee. It's been a year since nerve blocks and lower back has been soooooooo much better. Oh and I use Diclofenac cream to rub on tender spots. Great stuff. Maybe I should try the pills.
    [This Message was Edited on 01/20/2006]
  7. JLH

    JLH New Member

    yeah, those shots in the knees are great. Rheumy told me that if this shot did not work, he had something different that he would try--he didn't say what it was. I have experienced a little pain while up on it today, but not much.

    I might have to try a nerve block in my back--maybe that might helped my pinched nerve. I have 3 lumbar epidural spinal injections but they did not help.

    I've not heard of Diclofenac cream--just the pills--I'll have to ask the doc about it next visit.

    Boy it sucks to get old!!! And to think .... I have another birthday coming up soon .... on Feb. 2. Ugh! I'll be 55 then. I can wait! LOL

    Much love,
    Janet