Myalgic Encephalomyelitis new to Board

Discussion in 'Fibromyalgia Main Forum' started by loopyloo, Apr 26, 2003.

  1. loopyloo

    loopyloo New Member

    Hi Everyone,
    I'm new to the board i live in the UK i hope i'm aloud on this board as i think you all seem to come from the USA, I have been ill since 1997 finally diagnosed in 2002 with M.E after seeing several DRS specialists and lots of medicals etc and five years later, is this the same as CFS and FM as they all seem to have the same symptoms
    love Loopyloo x
    [This Message was Edited on 04/26/2003]
  2. loopyloo

    loopyloo New Member

    Hi Nink,
    Thanks for making me welcome, in the Uk we go to our own GP(Doctor) and they send you to a specialist and then they diagnose you and you go from there and they say what medication you should have.
    From some of the stuff i have read you seem to do it diffrent in the USA and you dont have the National health service we have you have to pay for every thing we pay just gbp6.50 per item in your perscription.
    loopyloo x
  3. Shirl

    Shirl New Member

    Hi Loopyloo, welcome to our world. We don't care where you are from, everyone is welcome here.

    I am not sure of the terms for FM/CFS in the UK, I have Fibromyalgia, not Chronic Fatigue Syndrome. Lots of pain and little sleep is the most common symptom of FM.

    CFS is fatigued all the time, plus an all over achy feeling, sore throat, swollen glands, flu like symptoms too.

    Some of the symptoms do over lap between the two illnesses and can cause confusion.

    Glad to have you join us, and hope we hear from you often.

    Shalom, Shirl

  4. skychomper

    skychomper Member

    welcome to the board, loopylo,

    we love everybody! and its great to have you

    just having a place to come to read and share information has become a huge help to me in my quest for better health.

    -skychomper

    p.s. I like your name!
  5. leokat

    leokat New Member

    Just wanted to say I'm from the UK and have been diagnosed with cfs by my doctor and FM by a specialist.

    I think there are a lot of 'grey areas' where cfs, FMS and ME are concerned as well as a lot of overlap.

    As far as I can assertain:

    cfs is mainly characterised by fatigue (thought there may also be pain - not necessarily in the typical FMS 'Tender Points')that has not been present lifelong. There are other associated syptoms.

    FMS is characterised predominantly by pain in specific areas of the body ('Tender Points'). However, there are many other typical symptoms including fatigue.

    ME is often thought to have originated in response to a virus or bacterial infection and may have more associated neurological symptoms and fatigue.

    The above is a gross generalisation and I wouldn''t want to be quoted.

    Anyhow - welcome to the board.

    leo
  6. averilpam

    averilpam New Member

    Hi Loopyloo
    I'm from the UK too, there are several of us here.
    I know people who have been diagnosed with ME and also some with CFS.

    I don't think they are the same illness, but who really knows. There seem to be many root causes of these various syndromes.
    I don't have an official 'diagnosis' but think I probably have fms, seem to have so many of the symptoms, though my pain (so far) is not so severe as many here experience.

    I personally don't feel that having a name for my condition is as important as finding relief from the many symptoms I suffer, and ultimately improving my health and quality of life.

    This board (more to the point the people here) has made a huge difference to me, not least for the support I get and feeling there are people who understand/relate to my experiences.
    Pam[This Message was Edited on 04/27/2003]
  7. lucky

    lucky New Member

    I just like to mention about the difference in names in different countries.
    CFS (Chronic Fatigue Syndrome) or CFIDS (Chronic Fatigue and Immune Dysfunct Syndrome) in the U.S.A.
    however, in Britain, Canada and I believe Australia CFS is called ME.
    In Canada the most familiar name is Chronic Fatigue Syndrome, however, the most active support organizations call themselves for example ME-Action Group, etc.
    Kind regards, Lucky

    P.S. And welcome to all the English ladies who have joined this board.

  8. goingslowlycrazy

    goingslowlycrazy New Member

    Hi Loopyloo,
    I'm leaving a message here in the hopes that you ticked the 'alert me when someone replies button'.
    I have posted a message for you on the board today but the board is moving fast...I just bumped it.
    Message is called 'message for loopyloo' (imaginative huh?) and is by me (obviously) doh - having a bad day LOL
    Hope you get this and see my message.
    If not, I will post it again in a few days...
    hugs
    Mary x
  9. gardengrow

    gardengrow New Member

    Welcome! I love your name alot- it sure fits CFS or ME as it is called where your from. Glad you found the board here and you will find so many people who can help and support you here. We are from all over but have so much in common. Some are housebound some can work a bit. I have had CFS for three years and am just trying to learn as much as possible to help myself. I dont know about the doctors there but many doctors here in the U.S. dont beleive in CFS. My doctor sent me to a specialist who diagnosed me with CFS and when I went back to my regular doctor with my diagnosis he didnt really beleive in it. Alot of doctors just think we are depressed or something. Anyway, hope you stick around so we can get to know you!

    Gardengrow
  10. loopyloo

    loopyloo New Member

    hi garden grower jody shirl and every one else who has made me feel welcome i cant wait to read the board every day once the kids have finish reading there e mails oh garden grower the name came from my dog lulu who is crazy but it does fit for M.E as well

    big hugs to everyone
    love from Loopyloo xx