Mycoplasma numbers keep going up

Discussion in 'Fibromyalgia Main Forum' started by msjhawk, Nov 27, 2008.

  1. msjhawk

    msjhawk New Member

    I have not posted in awhile. I have been feeling like sh*t. I was dx with walking pneumonia again and my epstein barr levels are up. I have been on 4 anitibiotics since the beginning of October 2 steroids (which is not helping with the weight gain 56lbs in less than year) and my mycoplasma number keep getting higher. They started at 200 something and now are up to 410. I have no idea what this means. I go to a new rheumy Dec. 15 but I don't think I can take anymore. I have managed to keep teaching my first graders missing only 4 days. I even passed out when they drew my blood once. I really feel that I prob. should be in hospital. My family is tired of me whining but I am miserable. My house is a mess and I feel like I am a horrible mom.

    If anyone has info. on these numbers and what they mean I would really appreciate it.

    Take care and Happy THanksgiving

  2. msjhawk

    msjhawk New Member

    I do not know if they are IGG or IGM. I just know that I am tired of fighting this every October thru February. I do know that my immunuglobulin levels are low. Hopefully this new rheumy will be better than the last. I live in SE Kansas so a trip to Michigan is probably not in the cards for me.

    Thanks again for replying,
  3. Mikie

    Mikie Moderator

    An Infectious Disease specialist? One simply cannot keep going with a body full of infection. Because of the manner in which mycoplasmas infect cells, replicate, and burst out of the host cells, they body may begin to recognize its own DNA as foreign and autoimmune illness can develop. This may be the biggest danger in allowing a mycoplasma infection to continue unchecked in the body.

    Good luck to you in getting some help. Have you discussed this number with the doc who ordered the tests? He or she should be explaining things to you. In the meantime, if you want more info on mycoplasma infections, you can go to Dr. Garth Nicolson's website, Immed.

    Love, Mikie
  4. ladybugmandy

    ladybugmandy Member

    i agree with chrissy. is there any way you can see dr. lerner? he takes bluecross and medicare.

  5. fundmyster

    fundmyster New Member

    Have you tried Dr Joseph Brewer? He treats these infections and is KC. His site is I thinks.
  6. ladybugmandy

    ladybugmandy Member

    i have heard good things about brewer but he is expensive.

    i hope you can take sick leave ASAP and see a better doctor.

    i would take drastic measures to see someone if i had this stage, you need a good doctor!

    i wish you all the best
  7. Timaca

    Timaca New Member

    Sounds like you are fighting EBV (depending on how high your antibody titers are); mycoplasma pneumonia, and possibly chlamydia pneumonia (have you been checked for that?)

    Here's an article for mycoplasma:

    If you can avoid the steroids, that might be best. I think steroids can cause pathogens to be more active (reactivate).

    Here's a site for Cpn:

    Best, Timaca