myofacial pain

Discussion in 'Fibromyalgia Main Forum' started by charlenef, Jul 24, 2006.

  1. charlenef

    charlenef New Member

    i have myofacial body wide and i was wondering if anyone else does and can relate. i wake up and cant catch my breath my chest is tight and it drives me nuts. i also shake inside the dr say they dont know why. after being like this so long im thinking it is due to my muscles pulling really tight.i stretch and use a tennisball for trigger point release but i still cant stay out of bed long my back starts to kill me.if anyone has suggestions on how to make my back pain better let me know. thank you charlene
  2. Txslady

    Txslady New Member

    tried sover.net and it is a telephone internet service. Can you please post again? I also get the tightning in the chest and would love to know how to relive it.

    Thanks
    Shannon
  3. beeleaf

    beeleaf New Member

    Desertsage, can you explain that? I hadn't heard that before, but it seems to be true for me. :~(

    Interesting thread. I don't drop by often, but always find something I relate to when I do. I have chronic asthma/COPD (that does partially respond to meds), but the problems with breathing are more limiting than what can be explained by breathing tests. In other words, I "should" be doing better than I am. I have wondered how much FMS was affecting it, but hadn't considered myofacial stuff. Definitely have the knots and transferred pain, along with arthritis that's visible on x-rays. Hard to tell which is which sometimes.

    Think I will hunt down that book and get out the massager thingy. Thanks!
  4. 1975jet

    1975jet New Member

    Yeah, I can relate- the more I read about this syndrome- the more I think that is what I have along with some complications of PPS- not sure but I do not think I have CFS- maybe FM but the myofacial pain sounds more like me-

    I try not to take pain meds- only muscle relaxers which I will be increasing for awhile per my dr. The pain in the neck shoulders and upper back I noticed when full flare affects my arms, hands and lower back.

    Today, I showed DH how to shampoo using our shampooer- what a godsend.. Bless him, he not well either.

    Listen to Hayley she also is a Godsend..

    By the way Hayley, do you work? I had to stop, but want to go back to college as you know and have looked into tote with wheels- thanks for the input on that.

    Be well
    Janet
  5. 69mach1

    69mach1 New Member

    and have basically been thrown to the wolves...

    jodie
  6. beeleaf

    beeleaf New Member

    I understand the permanent nature of scar tissue. Just didn't know it was part of the deal. Did your doc explain how myofacial stuff leads to scar tissue?

    Not even professional massage has ever made the knots go away. You may have clued me as to why. It's disappointing, but I do like to know what's what, so my expectations aren't unrealistic.

    Thanks.
  7. jesfms

    jesfms New Member


    i think most of my pain is due to myofascial syndrome...knots and ropey muscles...i hae the trembling inside alot so dr has put me on 2l/2 mg. of valium twice a day...and tested me for hypoglycemia...anyway dr. devin starlanyl says she thinks guaifensin helps the myo pain..anything that relaxes the muscle should help...do a gentle stretch program daily too..i do the arthritis program called gentle joints in water about 3 times a week
  8. charlenef

    charlenef New Member

    thanks for the replies guys. wow someone else shakes inside the dr had me thinking i was a nut case. they kept saying that shaking was not a part of cmp and fibro but the longer ive been like this i figure things out myself. hayley do you take any meds? if so what charlene
  9. onnaroll

    onnaroll New Member

    have you ever used your tennis ball on a hard chair. thats what i do its very painful, but it get the blood flowing, and seems to give me relief for a few days .....gl hun
  10. 1975jet

    1975jet New Member

    I have been reading alot on the brain and nervous system and I too believe this has alot to do with things. It does make sense- you have millions of motor neurons and they can get damaged from certain illnesses, accidents, stress that has been put on them over the years, etc.

    I have been reading about MPS, FMS and PPS- it makes so much sense. I am finally realizing -you have to 'Conserve to Preserve' - it has taken me a long time -but gotta do that. I guess I have been in denial about all that was going wrong with my mind & body and didn't stop to smell the roses(sort of) - I guess the damage is done- but life goes on and can't give up..

    Sorry - had to get my 2 cents in
    Janet
  11. charlenef

    charlenef New Member

    i use a tennisball for my whole body on the wall. hayley i am going to ask for lyrica at the dr next tues.i dont know how well it works but i need something for spasticity. my muscle are fighting me when i stretch then some days they pull all day.by the way one of my closest friends is named hayley. you didnt hear that name too much back then
  12. pearls

    pearls New Member

    I can't claim to be an expert on myofascial pain, but I think it might be misleading to simply state that trigger points are scar tissue and they won't go away. You CAN deactivate trigger points - and they are worth deactivating. I have had severe trigger point-caused pain that has considerably abated over time. This is thanks to a number of things. For instance, there are perpetuating factors that can get in the way of such deactivation, such as poor posture and vitamin and mineral deficiency. Fixing those things won't fix the myofascial pain, but NOT fixing them will get in the way of fixing the pain. This is from Clair Davies, "The Trigger Point Therapy Workbook," which is a very good layman's version of the work of Drs. Janet Travell and David G. Simons. They are the ones who did the work on trigger points.

    Once a trigger point is deactivated, that does not mean you won't have to work on it again. You very well may have to do that. The problem is in how you work on the trigger point. Neither Davies nor Dr. Devin Starlanyl advocate the use of mechanical messagers, as nice as they may be. To deactivate trigger points, you must learn how to do it with your hands (in specific ways), with a tennis ball against a wall (tennis ball in a sock to control specific places on your back), or with a knoble (to protect your fingers during massage) or with a Thera cane (designed to help you reach places that are otherwise difficult to reach). Also, there are specific ways to massage trigger points. You can't just rub them. And I cannot tell you exactly how to do trigger points in general, because there are specific ways to work on specific ones. This is where Clair Daivies' book comes in handy. However, I can say the aim is to break up a knot in the muscle fiber, knots you may or may not be able to actually feel.

    For instance, for the ones in my back (the traps on either side of the backbone - mid-back), I drop my tennis ball to that part of my back where it hurts, and push VERY hard against the spot in one direction, and do this several times. I may work on another spot, but for no more than a minute or so on one particular spot during an hour or more.
    A simple back rub will not do, nor will the heat/massage chair I own do the trick. These are short, deep massages that actually hurt while they are being done, but which usually bring relief.

    You need to get yourself a copy of the Davies book and a copy of Dr. Devin Starlanyl's, "Fibromyalgia and Chronic Myofascial Pain; a Survival Manual," second edition.

    About doctors: they cannot be entirely blamed for their ignorance of myofascial pain and its treatment. The knowlege base is doubling at ever faster rates. They cannot know everything. But it is very difficult to find a doctor who really knows about this subject. The Travell and Simons work has been out there for some time, but most doctors have not read or studied it. Dr. Starlanyl herself, who suffers from both fibomyalgia and chronic myofascial pain, had never heard of the work of Travell and Simons, until she sought relief from her debilitating symptoms for a long time - and after she was a practicing doctor herself.

    The ideal thing, of course, would be to have the Davies and Starlanyl books PLUS a pain doctor who understands the Travell and Simons work, AND a chiropractor or other body worker who also has grounding in Travell and Simons. I have wonderful doctors, including a terrific chiropractor, but can't say that they really understand the treatment of myofascial pain. I live in a rural part of the country. Nevertheless, compared to how I felt several years ago, and how I've felt in the past year, by comparison, I feel wonderful - though I often feel rotten - just not nearly so as I used to feel.

    In the meantime, we need to educate ourselves - and do our best to educate our doctors.

  13. lilaclover30

    lilaclover30 New Member

    That pain is real~~~~~~~ I asked my Dr. what all the lumps were on my arms and legs. His answer-------Fatty tumors. I gave up then.

    My back hurts so very bad. Yesterday and today I worked hard, for me. I changeda the sheets, washed them and the pad and pillows. I could have cried when I put them back on.

    I have such painful lumps on the upper part of my thighs and i don't dare touch them.

    I do believe in myofacia pain even if my Dr. doesn't.

    take care and hope your pain eases just a little,.


    Luv to all,

    Joan
  14. beeleaf

    beeleaf New Member

    I found "The Trigger Point Therapy Workbook" at Amazon and just put it in my cart. I noticed another book by the same author entitled " The Frozen Shoulder Workbook: Trigger Point Therapy for Overcoming Pain And Regaining Range of Motion". It hasn't been released yet, but may be pre-ordered.

    The latter might be great for me. Had shoulder problems already, but acquired a new one during thyroid surgery in March (doc thinks it's from the position they put you in). It has led to tendon problems and weakness in the hand. (Not so good for a musician!) I feel sure it's all connected, since pushing on a spot in the shoulder blade makes the fingers feel funny. Anyway, I'm going to try the workbook and see what happens.

    Got the other book you mentioned, too. Boy, am I gonna be edumacated. ;~)
    [This Message was Edited on 07/25/2006]
  15. 1975jet

    1975jet New Member

    Hayley- that is a good one about the congress and IRS - I think they are like Big Brother- anyways when it comes to the Government(sorry shouldn't put down) I think they are part of the KGB.

    Anyways, what is the book called and by Dr. Goldstein? You know that was the name of my specialist that I had to see when I was dx'd with polio(can't believe I remember his name) - Like to check that one out.

    Hugs
    Janet
  16. sueliza

    sueliza New Member

    Hi, I have read a lot of your posts about the trigger point workbook and got it last week. I started using the tennis ball on the scalene muscle in my shoulder blade and a muscle in my forearm two days ago.

    I can already feel the difference! My hands had been so painful my dr had done xrays. It was amazing to read about the exact muscle in my forearm that is causing my finger pain.

    When I hit the trigger point the pain is excruciating, I have to take deep breaths and try to breath through the pain. Is this normal? I have been careful to limit the massage time as recommended.

    Thanks for the information and any tips you have for me. I am going to start on my other problem areas next.

    Sue
  17. Bruin63

    Bruin63 Member

    http://www.immunesupport.com/library/showarticle.cfm/ID/3532/

    This is on the "Home Page" of this website, and there are a lot of links to her website also, by typing in her name, to any Search Engine.

    She also has some Patient Printouts on her website, that helps with your Caregivers/Doctors/Family.

    If you can't cut and paste the addy, just click on HOME at the top of the Message Board here.
    Loads of good information on having the Combo of FMS/CMPD.

    Hope this will be of help to someone, like it helped me.
    I found this PH website, off of a link of hers , like 6 years ago.
    sharonk


    [This Message was Edited on 07/26/2006]
  18. sueliza

    sueliza New Member

    Thanks for the info!

    Sue
  19. Bruin63

    Bruin63 Member

    I was shaking so bad on the inside, and having problems breathing, and right under my breast, above the ribcage, is where I have a secondary trigger point, and it's from the Gallbladder surgery, I had back in 90.

    I was reading back on some of the CMP post's, and thought I'd bump this while I was at it. ;o)

    sharonk